Anyone starting Chemo in August 07?
Comments
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HOO-RAY for NIPPLES!! (It's the little things in life, really, that make it worth living...)
So glad about the Micro-Lactin...I keep forgetting to take it (i'm such a ditz) and I remember when i say to myself ("man! I'm really sore today...uh...duh.") I've even got it in one of those little plastic things with a letter of the day of the week on each little compartment.. So at the end of the week when i refill it, I realize I've forgotten about half the weeks stuff.
whatEVER.
Hey, I just have to tell you all. I was reading my MRI report that she's sent to me (with a hand written note wishing me a happy thanksgiving, she's wonderful.) and it says (and I quote:
"...Previously seen 5 mm focus of contract enhancement at the right anterior six o'clock position HAS CLEARED." (Emphasis mine.)
What?? What was it, and how does it "clear"? Dh suggested that I "smoothie-ized" it away with all my kale, broccoli, spinach, and fruit meals. I wonder. Our bodies were designed to fight off stuff - including cancer - and maybe mine is nipping stuff in the bud (so to speak), now that i'm giving it some weapons to use... Isn't that interesting? We may never know.But it's all good news.
Have a good rest-of-the-weekend
...we'll see if this posts the jibberish when i hit submit...holding breath...crossing fingers...
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Yay on the fipples, De Ann.
Your new girls are complete now!Kaye--on the MRI, hmmm, you're right, one will probably never know what was what. I do know that my very first breast MRI had some issue with the contrast enhancement, so it could be something as simple as that, rather than a true spot of something that has disappeared. Who knows. I went through this with a spot on my liver that was deemed a cyst during my staging scans, then was not noted during a followup CT post-chemo. Where'd it go? Was it a cyst? Was it there but not noted this time? One could go mad.
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Hi Ladies,
Sorry I haven't been on in a while. My wonderful daughter decided to have dinner with my laptop and spilled an entire glass of water in it. Sadly, my one year old computer died. I'm sneaking on my dh's work computer.
Kaye, congratulations on the good news!!!!!
DeAnn, congratulations on the nipples!!! I can't wait to get mine.
Lilith.....good luck with the job.
Nash, sorry that going to the center is so hard for you. That stinks. My onc always examines my lungs, chest, neck...etc., each time I go. These days I love to be felt up by anyone. My bs does it, ob/gyn, plastic surgeon and onc. Now that I have the new "girls" I just have to get my dh to feel me up again!!! LOL
I'll be back again soon. As soon as I get my computer fixed.
Hope everyone else is okay. Hugs to all.
Jackie
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OOps with the water. Bummer, mom.
Well, we're glad you checked in any way you can. I had to laugh at the "These Days I love to be felt up by anyone." comment. Isn't it the weirdest thing that one of our main regular social events involves laying on a table while a woman (or worse!) feels our breasts? And we THINK NOTHING OF IT.
So odd.
Hugs to all - hey Nash...if the benefit falls through in spite of all your hard work, maybe we could all just come down and watch YOU skate, and then donate money to BC.ORG. Who needs a Fancy Producer? (Pffft!) -
Hi girls... I have been reading on and off on the board, but everybody was silent here - I guess we are all getting busy with our lives - which is a great sign!!!
On my side not much to mention. I set up the date for my fipples/ovariectomy at the end of the month (28th of nov), it should be pretty easy, I expect... at the same time, I am asking for some tummy liposuction, so I hope to wake up with perky breasts and a waist (first time since years...). Well, I've always been all for optimistic projections!
On the job side, I am seeing the same folks again next week - there are a couple of tentative appointments that they need to confirm. I am getting so absolutely besides myself with my current job, that if these meetings go well I'll start composing a letter in my mind... as a sleeping aid!!! HA. Not that the new job would be "all that", but the fact of moving out of here is very very appealing. At any rate, I keep having too much on my mind, permanently, keeping me up at night and wondering what my life will be like in one year. Sometimes I wonder if I should just kick all such complications to the curve and have trash disposal picking it up - but alas, it would be pretty lonely here after that... on a good day, I can find humour in all this complication anyway! a laugh is always good.
Kaye, I am thrilled at your MRI results. Thrilled. You are absolutely right, our bodies have the ability of healing ourselves - as long as we don't tamper with it with too much stress or unhealthy stuff. Our mental processes can help - or can limit such healing. Problem is, I never know what works best!!!
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oh, and... Kaye: I just received the microlactin... finally!!! (I may receive a double in a few days, as I complained and they said they would re-ship... we'll see). I'll let you know how it works.
WHY do they make the pills so LARGE???? what is with those people? is that hard to see that throats are only "that" wide???
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Hi, girls. Jackie, LOL, I hope your new girls get some action besides medical attention, too!
Lilith--fingers crossed on the job prospect. Sounds promising.
Kaye, LOL, you guys may just have to come down here and watch me skate solo, which isn't all that exciting, but at least we'd all be together. Heck, you guys could all skate then, too, which would be fun! Trust me! Anyhow, I had a series of conversations with the skating club last week, and basically they can't handle the finances for the show (for legitimate reasons). So now I have an e-mail in to the fund raising department here at bc.org to ask for their guidance on how to handle the funds. Haven't heard back, and if they don't help, then my last option is to ask the rink if they'd do a for-profit show for themselves, and donate part of the proceeds to bc.org. Because otherwise I'm back to square one with having to incorporate as a non-profit, which I really don't want to do. Who knew this would be so complicated?
On another note, I went ahead and scheduled a thermogram of my boobs for this month. I figure it can't hurt, and there is a place here that's qualified and who refers patients to my surgeon for follow-up. So that should be interesting.
And finally, do any of you have persistant low WBC? My WBC had come back up to normal following chemo, but then starting in July, the WBC has been between 3.2 and 3.7. Which isn't terribly low, but it is much lower than I am normally. The onc thinks it's an aftermath of the chemo, but I don't understand why it would have been OK from January to June, then suddently dropped and stayed low. I have this fear of secondary leukemia as a result of the chemo. Onc seems unconcerned, but then I don't trust her (yes, I know I need a new doc).
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Hey Nash,...DH says: (and I'm mostly quoting here) The distance is the same to City of Hope for you, as it was for me (he just did the calculations from your house to C of H.) It would take you just under 2 hours. It would be good if you knew someone was taking you seriously, and you trusted their expertise. (Here is where my mostly quoting ends.)
In their recent newsletter they talked about a 28 year old who had stage 4 IBC that was undiagnosed because her local doctor told her to ignore it - for about 7 months - because it was a "cyst because she was too young for breast cancer", so her surgeon had a big surprise when they took out a lump after she insisted on it and found 3 tumors. She went to C of H, and the rest is history. That was 3 years ago, and she's now in excellent health.
ok. Public Service Announcement over. I just worry about you Nashie, and I want to know you're getting the best treatment and resources out there. It's not like flying to New York, or Texas.
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Oh, i forgot.
1) I love to skate. I'm a klutz, but I have fun. (at least it was fun 20 years ago.)
2) My WBC has been normal.
3) Oddly, my liver has been normal as well - since my 3rd chemo tx. Maybe T/C fights HepC.
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Lilith - Good luck with the job! Sometimes a change is just what we need in our lives, and if this is something you really want, I hope it comes through for you! When are you going to have your surgery? Keep us posted!
Nash - I agree with Kaye that its worth making the drive to find a good doctor. I did have lower WBC the few times I've had it checked. Not dangerously low, but in the low normal range. I think it is pretty common.
Oh, and I'm a lousy skater, but I can skate backwards a little. That would be my trick of the evening! Even if the skating show doesn't happen, let's still plan to get together!
DeAnn
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I agree, DeAnn--even if I can't get the show on the road, so to speak, we should plan a gathering anyhow. I should know in the next couple of weeks if the show will go on. I still haven't heard back from bc.org regarding help with handling the finances, which is sort of annoying, so I'll re-email them, plus talk to the rink again.
And thanks for the info on the WBC--did your counts come up after chemo, then go back down? That's what mine did, which makes me worry about my poor bone marrow. But then I like to obsess over lab results.
Kaye, tell DH thanks for the info on City of Hope. I looked up your onc, and she looks like she's super bright, with the PhD on top of the MD. My only concern is 4 hours of driving plus the appointment makes for a big block of time, which is OK for quarterly checkups, but would present more of a problem if I had to go more frequently for some reason. I still have limited time available b/c of the kids' schedules--not as bad as it was last year by any means, but it's still a bit of an issue. But I promise I will give it serious thought, b/c the current situation is just not cutting it.
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Hey All,
Sorry I've been a bit on the quiet side lately just lots of "stuff" going on. I'm thrilled to read about some of our happier moments with you all closing out treatments and getting great MRI results and new nipples and foobs and possibly new jobs too! Perhaps there's closure to some of this madness after all.
I was back to the radiation oncologist for my 6 month (and final) check up. All was well except I still have a fair amount of discoloration on my breast. While there I confided to him that I had been disillusioned with my medical onc. for a long time and gave him some reasons but not all. He recommended a female onc. that is in the area but not part of his practice. When I left I scooted back to talk to the techs for a few minutes and basically asked 7 of them their opinions. All of them stated that yes, she is who they would see. When I asked why they all said that she has an excellent reputation and that they see lots of her patients and everyone of them rave about her. So......Nashie I am biting the bullet and calling for a consultation and perhaps making a change ASAP! My last visit in Sept. to my current was the straw that broke the camel's back...the place is a zoo/ I waited over an hour after my labs and then she was 'frosty and rude." I just decided that I'm been nuts to put up with this and even if the new MD isn't right for me then by God I'm going to keep looking!!!!!! My other question to you all is even though I'm scheduled for every 3 months visit, I only see the onc. every other time and the nurse practioner (who isn't any better) the next visit. To me this is a huge waste of time and effort. YOUR opinions please?
BTW I'm still trying to get the results from them regarding the vitamin D testing they did!
Most of the reason I've been absent has been that we've been doing some remodeling on our townhouse (not actually us but Expo). It has been maddening with hurry up and wait and wrong or broken products being delivered. If my DH didn't work 10 minutes from home I don't know how we could possible have managed all the appts. for measuring/remeasuring/delivering/re-delivering and installs. But thankfully it's basically finished and we're beginning to get back to normal. Hey girls I didn't have kitchen countertops or a sink or dishwasher for almost 10 days. Since I don't do well with a lot of restaurant food and love to cook this was a real bummer. But I'm enjoying my new kitchen and baths.
P.S. Once again I don't have any upper eyelashes. I don't get it...this is about the 6th or 7th time since finishing chemo that they have all fallen out. I know they have to recycle and sort of get in synch again but geez!!!!!! Any of you still dealing with this?
Hope you all have a wonderful weekend. We're enjoying the beautiful trees in north Georgia right now. Best to all...
June
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Hi June,
Wow! Sounds like you've been busy, but I'm glad to hear you have a new and improved kitchen. I'm mostly glad, however, to hear that you are going to be going to a new onc who will hopefully give you the kind of care you deserve. I think I would be very upset if I had an appt for a checkup and didn't get to see my onc. That seems really odd.
Oh, and I am still having eyelash issues a little too. They aren't all falling out, but I get little patches of no eyelash here and there. I just don't wear mascara on those days so that it isn't as obvious!
DeAnn
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Hi June! I was thinking about you yesterday - wondering what you were up to. Thanks for checking in!
Hope the new onc works out...sounds like a change is due. I see my onc EVERY and I do mean EVERY time. Usually her Physician's Assistant (I think that's what she is...I know she's not a nurse practitioner) is there with her TOO, so every time I usually get both of them. But I always see my onc.
Ahhhh, construction and remodeling. What fun. Do you need a painting contractor? I know one who "will work for food" at this point. I'm getting ready to make matching signs so we can stand on the freeway onramp.
GACKKKK this economy is like something out of a bad movie!No recurring eyelash exodus issues here although I've heard that it happens that way...sometimes several times...what a bummer. (I think it's a bummer, anyway. I don't have any eyelashes to speak of on a GOOD day, so I can only imagine the frustration of watching them go and come and GO again.
oops - more later - gotta fly
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Hi everyone,
I have been MIA for awhile... I'm trying to get caught up on our group's news, but I'll have to go back and read the rest. I've been looking for a job and there are none to be found. I know the economy is bad, but... if I apply for a job, I EXPECT a phone call and an interview, but I'm NOT even getting that. I think it is because I haven't really worked (except this past summer, at that expensive dress shoppe!) for 2 years. So I guess that NO ONE will hire me, since I wasn't working because I moved to NC., and THEN I got bc, so ... sorry, but I was busy doing other things, and I guess that makes me unqualified to work agian. Sorry, I'm just feeling sorry for myself.
Lillith:
Good Luck with your job interviews!! I hope you get that job!! Have you been working when you were getting tx?? I don't know how ya'll did it!!! Thinking of you! Please post to let us know when you hear the news!!!
HugsHarley
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Harley - keep it up.
No matter how the economy is bad, there are still positions to be filled. Maybe not plentiful, but there are some...
No I didn't work during chemo. That is one of the reasons I want to move: my current position has so changed, I have really been put on the back-burner - and I am hating it. I think I have an excellent shot at the position I was mentioning, and maybe there is also another opportunity I am looking into. Who knows. If I'll have to take a decision - well I'll come to you gals for advice!!!
I am sure something will come your way. 2 years off the workplace is not that long. Bear in mind that end-of-year is approaching, so companies may actually not look into hiring - but they are also preparing the new budgets. Why not send some spontaneous applications around? you may find a niche that is not yet advertised, and be in before everybody else...
Hugs.
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Hi Harley,
Not knowing exactly what position you're looking for it's hard to comment - however since you worked at the dress shop, I'm assuming you might be looking for something similar so I saw something recently that I've been thinking of in case I need to add a little income myself. During the holidays people frequently need a little extra help, which might turn into something more substantial, depending on the economy, etc. etc. etc. One idea was larger department stores looking for help in the wrapping/gift/shipping departments. Another (and one that I thought sounded fun - being the consumate dog-person that I am...I know you do cats, but....) was dog walking services. A friend's daughter who lives in NYC is making about $6,000.00 a MONTH walking people's dogs! And I saw a news clip that the holidays are a VERY busy time for pet caretakers/dog walkers. Just an idea. Errand-running companies might fall into that category as well. There were others, but they are buried in my cerebellum. I'll post 'em when i remember 'em.
Keep looking, HAPPY HUNTING! - commit yourself to God, and something will turn up!
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Oh, and Nash,
I really do understand the distance/time factor in considering a new onc. But something you said has stuck with me, and that was:
"My only concern is 4 hours of driving plus the appointment makes for a big block of time, which is OK for quarterly checkups, but would present more of a problem if I had to go more frequently for some reason."
If that "some reason" was another bc diagnosis...I would WANT you to be where you trusted their expertise...suddenly time doesn't seem as important under those circumstances. Dh pointed out to me that the issue might really be your kids being away from you for a few more hours under present circumstances, as opposed to not being with them at all in the future because your onc wasn't at good as she could have been. (I will not use the word "inept". she's probably very good for more run-of-the-mill bc diagnosees...but you have a pretty potent history.) This is sounding like a hard-sell case. I'm sorry. If you were any more confident in her ability, I wouldn't even bring it up. But you don't seem to be...and even though all doctors make mistakes...I trust all the oncs at C of H. Mine may not even be the best one.
I know you'll make the best decision for you - whatever that might be...You are a very smart bird. Know that I / we care about you!
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Nash,
Shucks! It sucks that you are having problems getting financing for the ice show! Maybe what you suggested, asking the rink to put on a 'for profit' show, and donating part of the proceeds to bc, maybe that would work. I am still hoping to go, if it's still a go!
It stinks when you need to switch drs.! In my area, there are NO specialists, oncs included! I have to go to Wilmington NC which is an hour away! Ok.... that is only ONE hour, so bad example, I guess. I had thought about going to Duke, in Raliegh, Durham NC but that is just SO far away... over TWO hours, but my insurance won't pay for that. I'll be thinking of you, and praying that you find a REALLY good onc who is easy to talk to.
Lillith,
Thanks! I have always worked in an office, usually receptionist work. But, the area where I now live is a golf resort/beach area, and there just are NO offices nearby. I have even started applying at Drs. offices, but again, since I haven't got any experience working in the medical field or working with insurance claims, no one wants me.
I'll keep trying, and hope I'm really starting to lose hope.
Kaye,
Thanks! Well, through working at that dress shoppe, I found that I don't really care for working retail... however, since I live in a resort area near Myrtle Beach, that is all I have, I'm surrounded by it! I have worked before as a receptionist, and that is what I really want to do.
The pet sitting job sounds great, but my neighborhood is overflowing with people who have printed business cards, and three of my neighbors are doing petsitting!
Hugs to all,
Harley
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Hi, girls. Harley, keep plugging away, sweetie. Job hunting is very stressful, but it's a numbers game, and eventually something will come through.
I STILL haven't heard back from bc.org about handling the money for the show. Hmmph! Will contact the rink soon about the for-profit idea.
Kaye, you and DH are 100% right. And I bit the bullet yesterday and called a cancer center that is about 1 hour away from the house. I will try them, and if that doens't work, then I will go to your onc at City of Hope. I promise. This onc in San Diego is coming recommended by several other women in the area, and she has a reputation for being very bright and very blunt, two qualities I like in a doctor. Her nurse called me back right away, was very professional, said she's off today, but will get back with me Thursday, and will schedule me to see the onc some time in the first part of December. So I will be making a move one way or another. Thank you for the encouragement, b/c it's hard to make a change from the current cancer center--I'm so entrenched there after years of weekly trips with my mom.
OK, gotta run and get the kiddies--love you guys.
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Nash,
Thanks for the warm job hunting wishes!
I would think that bc.org or even your local American Cancer Society might be able to help finance the show. Oh, but if you've already tried that, sorry if I missed it...
Good luck with the new onc. Change is very stressful, but it seems like it may be be a good thing for you. Thinking of you! Let us know how it turns out!!
Hugs
Harley
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Hey gals, It's been a long time. I have just caught back up with the posts. My story is that I am just plainm working too doggone much. We had a person leave our office and the workload is just immense (Healthcare IT). So I have not only missed out on keeping up with you lovely ladies, but my poor kids barely see me anymore. Sucks. I am trying to find a balance.
Tomorrow I go back to my onc for a 3 month visit. I still find the idea of going depressing. So Nash, I think you are a real trooper for even being able to go to your onc at all. Does everyone know the song with the lyric, "If I just Lay, If I just Lay here, Would you lie with me and just forget the world." ? That song came on as I was in the car tonight and it made me cry. I remember hearing that song last year and just wanting to curl up with DH and hide away. Funny how things can hit ya.
Mostly, I am doing pretty well. Kay & DeAnn, your smoothies inspired me to do something for myself. I haven't gone smoothies, I have been exercising. This last weekend I was down 2 pant sizes! 2 !! I am really happy. I am going to try to keep it up and make it part of my lifestyle. Extra weight is supposedly linked to increased recurrence. I can only do what I can control. So this is what I can do. I am down probably about 30 pounds from when this whole debacle began.
Well anyway, I am glad to have caught up with everyone. I'll try to peek in more often. I miss you all when I don't stop in. Hugs gals, Angie
P.S. Lillith- I am with you on waiting for the sheer weight of my hair to take some of the "puff" out. At best, my hair looks like one of the Jonas Brothers. At worst-- and it's generally at its worst, it's more like 1/2 the cast of 'Welcome Back Kotter.'
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Angie, LOL--Jonas Brothers hair. I have three words for you--lots of gel. Having lived with a small shrub on my head for all of my life, I'm here to tell you that hair product is your friend. And I know that song you're talking about--very fitting.
June--I'm glad you're going to be switching onc groups, also. Your group sounds about as lame as mine. I made an appointment with the new onc today for 12/22. The onc's nurse has been fabulous so far, and I think that boads well. I was so relieved when I got off the phone with her that I actually started crying. And hey--you'll have to post pics of your remodel on our yahoo group!
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Angie, I totally know the song you are talking about. I was just thinking back to last year at this time because one of my colleagues just asked me yesterday if I would call one of his customers to offer my support. She was just recently diagnosed, got her port this morning, and will be starting chemo the day after Thanksgiving. I'm so thankful that we all have that behind us. We all have our challenges each day, but at least chemo is not one of them this year. Oh, and you go girl on losing the 30 lbs! That is incredibly inspiring, especially with everything that you have on your plate with work.
Harley, good luck with job hunting, honey! I'm afraid I am useless in terms of offering any advice. I have been at the same job for 17 years now and don't even remember how to write a resume.
Yay, Nash! I too am relieved to hear that you have made the appt with the new onc. I sincerely hope that this doc will give you the competent and thorough care that you most certainly deserve.
Hey, I had a follow-up with my plastic surgeon and I am scheduled to get my tattoo on Dec 15th. So, by Christmas, I will have all my reconstruction complete.
Hugs to all!
DeAnn
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That's exciting that you're almost done with reconstruction, DeAnn! Whoo hoo!!!!
Today's my mom's birthday, and Veteran's Day was the anniversary of my dad's death, so I'll be really happy when this week is over.
Hope everyone has a good weekend!
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Angie - WOW ... 30 pounds? Think about thirty pounds of HAMBURGER. You are amazing! I am so inpired! Now that it's a little cooler maybe DH & I can walk...You GO girl!
and Nash... hugs. Big ones.
We'll set the date, DeAnn, of 12/15 and we'll have a tatoo party for you. "Wish you were here"....type.
Love you all...
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I went for my thermogram yesterday. I will get the results in about a week, and we'll see if my boobs are glowing. The highlight of the procedure was when the tech said, "Can you lift your hair up out of the way?"
And on the show front, I was ready to throw in the towel today and conceed defeat, then ran into one of the coaches who said she's been pondering the finance issue, and will have time in January to meet with me. So I guess I will wait until then and see what she has to say. I still say you guys all come here, we go skating, then go out to lunch, then go shopping, then go out drinking. It would probably be more fun. I STILL haven't heard back from bc.org, which makes me not all that enthusiastic about raising money for them. But maybe I'm just being cranky.
OK, now I'm babbling. Hope all is well with everyone.
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Hello all...
well done for the thermogram, Nash. I am sure the results will be good, and you are really doing all you can.
) great about the hair, it grows like crazy huh? sooooo nice. Big hugs.
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Got the thermogram results--my "bad" boob is glowing in an area that I've been having a lot of pain. I hope it's just some sort of inflammation from the radiation or something. The holistic doc wants conventional imaging done before the next thermogram in February. I'm due for a breast MRI in January, plus I'll see the new onc in December, so that will work out.
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Wanted to add that the thermogram also showed that there also may be a problem with my thyroid, which is interesting, b/c I often thought I might have thyroid issues, but my latest thyroid panel came back normal. Hmmm.
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