time for me to tell my story

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Comments

  • candie1971
    candie1971 Member Posts: 4,820
    edited October 2008

    Dee,

    So glad you found us. I am nearly 2 1/2 yrs.out and I MUST say, I would not have gotten this far without the help of our dear bc sisters here on this site.  As many sisters have said before me...you will get through this. There is life after a bc diagnosis. I didn't think so at first, but our sisters here showed me the way and they continue to do so. I started in the chat room and blossomed to the boards also. Your bc sisters will always be here for you, at anytime.

    Try to rest and relax as much as you can.Enjoy your hubby and boys. Take the xanax as you need...gosh, I still do (best discovery!!lol).

    Hugs and prayers,

    Candie

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    jrg, I went through that too..my initial reaction was bi lateral..but after coming home and reality setting in I decided on lumpectomy.

    Candie..thank you..I do enjoy my guys and I try to relax as much as I can - Im still early into my diagnosis and I know it will take a little time..and yes, xanax is a great discovery, a woman must have invented it!!

    Jane, My Angel...there are no words to thank you for being there for me.. you are a wonderful, kind human being.. and now I am proud to call you my "elephant sister!!"

    Warm wishes to all of you..

    D

  • rrs
    rrs Member Posts: 614
    edited October 2008

    I'm so sorry about your mom.  You are a strong, smart woman to be here online looking for support and information.  You cancer was detected early - that is so important.  Focus on learning all you can about your treatment options and less on the fear. There is a lot of information here and on other websites.  Take charge of your treatment.   

    Yes, you need to eat and be in the best of shape - think about Rocky getting ready for the big bout with what's his name. 

    It is normal to be upset - hey, it IS a big deal after all!  You don't have to be superwoman - and it sounds like you have a good supprt system.  Take time for yourself - do nice things for yourself - you've been through a lot and now is the time for pampering.  You can go back to being superwoman later :-) 

    I know this might sound silly but breast cancer has had some positive impacts in my life.  I've learned what is really important and what isn't and I've taken so much better care of myself.  I exercise regularly, eat healthier, avoid negative people and situations and have made many other changes.

    Please, if you haven't already, read up on how to avoid lymphedema.  There is a lot of good information here.  And, were is MY xanax????  I would love to have that to help me sleep through my hot flashes Laughing

    Take care.

  • Jeansbeans
    Jeansbeans Member Posts: 175
    edited October 2008

    Hi Dee!  I am sorry you had to join our club, but we are here for each other.  I too have similar DX as you, and I fell so very fortunate that mine was caught early by MRI, I have strong family history, My mom Now a  29 yr.cancer survivor at the age of 86!, My Grandmother dx at 54 and my Greatgrandmother dx at 55. I was dx at 53 in May 08. I had 1.2 cm, .05cm stage1 0nodes involved and ER+/PR+, HER2- MY decision to have a bilateral mastectomy with tissue expanders was made with great support of family and Dr's.  I have to only take tamoxifen for 5 yrs.  I feel with your DX like mine we will grow old together.!! Hang in there, your days and nights will get better.  Always know we are here for you!  Gentle hugs to all my sisters, Jeanie

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Oh Jeanie, thank you soo much..And my love to your mom for being a 29 year survivor!!!

    Soooo uplifting to hear that!! 

    I cant wait for my nights to get better..I really do miss sleeping.. Im getting much better during

     the day..(less worrying, etc) ..but I just wanna snooze !   Lets see what tonight brings !! 

    Hugs..

    Dee

  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited October 2008

    Hi!  I just joined too!  I know about the not sleeping, not eating, and not living part!  I went through that too. I got better with gaining more knowledge,making some decisions and the undying support of my family and friends. It is amazing how kind people have been! I had a mastectomy with and expander on Sept. 23rd and was back to work as an RN, in 3 weeks. I was amazed how easy the recovery has been. I still have some hurdles to cross, my tumor was sent for onc typing today, and I have exchange surgery in Jan. to look forward to! But for now I just feel lucky, and take one day at a time. Keep up the positive attitude and better days are comin!Dawn

  • boobytrapped
    boobytrapped Member Posts: 61
    edited October 2008

    Hi Dee - Just wanted to add my own good thoughts for you.  My diagnosis is almost the same as yours, and dx'd about same time. I'm starting my rads next week. I agree that first month after dx is the scariest time when you don't really know anything. Cancer was all I could think of day and night for weeks, even having cancer dreams....ugh.  Felt much better after lumpectomy and finding negative nodes, etc. and finally getting a treatment plan in place. Gives you a feeling of control. I love this site for giving me so much information and the stories are amazing.

    Thank you long time survivors for sharing your wonderful stories and encouragement. Its makes me feel so much more hopeful knowing that some day down the road I can look back as this part of my life as ancient history.

    Jane - loved the elephant sisters story.  I'll remember that.

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Thanx Booby.. 

    Does anyone know how often I will have to visit my oncologist? Im having rads and tamox..Do I need to see him every three months? Does he take blood each time??

    I met with him for a consult last month and today is my first apptnmt since my lump/snb..

    Will I start tamox now or after rads??

    Dee

  • Marple
    Marple Member Posts: 19,143
    edited October 2008

    Dee,

    Make note of all those questions and ask your onch. today.  I saw rad. onch. every week during rads.  Med. onch. I saw every three weeks during chemo and then every three months.  He has bloodwork done before every visit.  I think after next onch. visit it will be every 6 months.  My treatment was 2 years ago. 

    Good luck today, and hugs.

    Sharon.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Dee -  all of our doctors seem to be different.  I didn't start hormone therapy until I was finished with rads.  My Oncologist wants to see me every 3 months while I'm taking the arimidex.  So... that's every three months for 5 years.

    I'd ask your oncologist the questions you have and get his/her answers.

    Doreen

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    I just met with him, Im starting rads next week and he said I can start tamox when the rads are all done, which should be before Christmas but he said i can wait til after the holidays.. He wants me to go for a vaginal ultrasound before I start rads..Anyone else do that??

    Dee

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Doreen, you are almost 4 years out..thats fantastic..how has it been?? 

    Dee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Dee - yes - In April I'll be 4 years out.  It gets easier and easier with each day.  Like many others here occasionally I'll have a weird pain and think I've got cancer .. it's the cancer-itis thing. I see my oncologist every 3 months ... and get clinical exams at that appt -   and yearly mammogram. I'm doing great and enjoying dancing with NED  (No Evidence of Disease). 

    I'm glad you have your treatment plan decided on...  I truly felt much better once I'd made my decisions and just had to take each step of treatment. 

    I had a transvaginal ultrasound ... but mine was more related to fibroid problems in my uterus.

    We're here to help support you ...  just like our sisters were here to help us. These forums are such a tremendous resource ... 

    Hugs,

    Doreen 

  • Remo
    Remo Member Posts: 4
    edited November 2008

    Hi Dee, Wow I know how you are feeling. A single phone call can change the rest of your life. The more you find out about this disease, the less anxious you will be about it. Read everything you can. Talk to the women going through this. I have learned so much just by reading posts. I will be done with radiation soon. I have 10 treatments left out of 33. Then I go on to the Tamoxifen. And I wonder how I will do on this drug after hearing so many that have problems. But everyone is different and can be affected totally different. I just remarried again after losing my husband to cancer 12 years ago. I married a wonderful guy and I feel bad that he has to experience this also but we will get through it. Hang in there. You need to stay positive. Think of all the things you have to smile about and know that cancer is NOT the worst thing that can happen to you. I encourage you to write down your feelings in a journal. That really has helped me. Bless you.

    Sending hugs your way!! 

  • Sons4Us
    Sons4Us Member Posts: 35
    edited November 2008

    Thanks Mary..  Im starting to function a little better now..Its always on my mind but what can I do..I have to live, and go foward.. I do have so much to be thankful for..and so much to smile about-  I did start a journal - I had to, I couldnt keep my feelings bottled up anymore..

    How have tthe rads been?  Did you burn?  My rad onc says corn starcha nd pure aloe is what I need to use, what are you using on a daily basis?

    Hugs,

    Dee

  • farila_1966
    farila_1966 Member Posts: 224
    edited November 2008

    Hi Dee,

              Just dropped in here to see how you are doing.. I am glad to know you have started a journal. That really helps.

    Wishing you peace and happiness.

    Love and hugs

    Farila

  • Debbie1218
    Debbie1218 Member Posts: 45
    edited November 2008

    I also need to tell my story. Why is that? I also have a wonderful, supportive husband, sister, children. But somethime I think they really cannot understand what I'm going thru, no matter how hard they try. My story: I initially had an enlarged axillary lymph node, and once removed was malignant, but undifferentiated cells. So I had the breast MRI, PET scan, U/S, and eventual core biopsy, which was positive for IDC. My breast tumor was < 0.5cm, and the node under my arm was 5cm.They initially did all of the other tests trying to find the primary site. When I had the core biopsy, it was a 2 1/2 hour procedure, because they were having trouble finding the possible tumor that was seen on the MRI. I am now 16 days post mastectomy, with one more node positive. I am supposed to see the Radiation Oncologist Monday and the Chemo Oncologist the following Monday. Can anyone tell me what usually happens on these first visits? Also, I am ER- which seems to be very uncommon. Anyone also ER- with knowledge about this - please fill me in. Thank-you to all you who are so brave and so positive. I hope to be there mentally soon also.

    Debbie

  • Sons4Us
    Sons4Us Member Posts: 35
    edited November 2008

    Hi Debbie--  As these wonderful ladies said to me when I first got here --YOU WILL GET THROUGH THIS !  You are in the "unknown" area right now. Once you get started on your treatment plan you will feel better.. I know I did and I am only 2 months post diagnosis.

    Hang in there, it does get better..

    Hugs,

    Dee

  • Debbie1218
    Debbie1218 Member Posts: 45
    edited November 2008

    Thank-you Dee. You seem so positive and are less than a week ahead of me diagnosis time. "Unknown" seems to be the story of the last few months, as my lump under my arm popped up it seems overnight. And that was the first week of August. It's like this big cloud of "unknowns'' for months. Am working on hanging in there. But it gets so hard being positive for everyone around me, when all I want to do is go in a corner and cry.

    Thank-you for your hugs and encouragement,

    Debbie

  • Remo
    Remo Member Posts: 4
    edited November 2008

    Hi Dee,

    I am glad that you are doing a little better. Hang in there. It just takes time to get into your routine and be good to yourself. Actually my skin is holding up well. Only 5 more treatments to go. They start me on boosts on Monday. I have to go in early so they can do all the measurements. These next treatments will focus only on the spot where the cancer was found instead of the whole breast. I'll let you know how it goes.  

    Mary

  • Sons4Us
    Sons4Us Member Posts: 35
    edited November 2008

    Thank you Mary..

    Im on number 3 today !  If all goes well I will be finished on Dec 31 st !!!!!!  Happy New Year to me !!  Fill me in on how you make out.. so glad you're almost finished..

    Love,

    Dee

  • brena
    brena Member Posts: 458
    edited January 2009

    Deeg,

    Please tell me how you discovered your lump? was your lymph node swollen, if so how long before you  brought it to your docs attention? did you go directly to biopsy? did the lump hurt or painless? What steps did you go through to have it defined with cancer? Sorry so many questions, trying to help a friend.

    thanks

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