Trip to Tijuana Mexico change my outlook forever
Comments
-
Here us a little test...Research this chemo "Irinotecan" they are bring this into trials for Stage IV bc. They are also thinking for us TN girls. (I know someone who did a phone consult with one of the top TN doctor's and this was a possible recommendation.) Read the completed trial info out there from China and other countries that show that this does not work with bc patients. I already know someone who is taking this drug for colon cancer. They get hospitalized weeks at a time for severe diarrhea. I mean life threating diarrhea. This is a really difficult drug to tolerate. Why are they going to put it through trial's here when other countries have proven this is a poor choice for bc patients? Remember when reading trial info look at progression time and how many responded. A trial is considered a success if you don't progress for TWO months. Also who how many were in the trial.
I going to watch this drug over the next year and see how much time is spent on this in the US before they move on.
Flalady
-
Thank you for your feedback. I apologize if I was rude in my messages -- I'm getting another PET on Monday -- the one a month ago glowed like an Xmas tree around my liver but the cancer markers were normal and nothing showed in the CT or MRI. I'm a wee bit stressed. I apologize for any disrespect I have shown in my snippy messages. But no excuse to take it out on people only trying to help.
Your information does make one think twice. The only person I 100% trust is my sister. Before I do anything I bounce it off her (she's a physician, but a good one, a bit of a rebel) -- I know she gives me the best info and lets me decide on things. What's good about her is that she's in Canada and isn't tied to the purse-strings of any insurance or pharma companies. And a doc that prefers a natural path to a chemical one, or in combination, depending on the circumstances. Loves to grill the pharma reps. Yeah, it is hard to know what to do -- but I feel that I get the best info from her.
Reminds me of a story -- when she used to deliver babies, she had an intern in her delivery room. He said he was looking forward to practicing his stitching. She promptly tossed him out -- she told him as long as it is in the best interest of the baby and mom, everything goes natural, no one practices on her patients. She loved being assisted by nurses who were also trained mid-wives - they knew the best hands-on, natural ways of helping the moms and babies.
I guess I just wanted you to know that so far my sister is my best resource. I'm smart, but slogging through the data sends my mind spinning. However, I will go through all the articles and reports you have provided over the weekend. It will help me stay sedentary as told to be for the PET.
Thank you again ladies, again, sorry for my snippiness.
Warmest regards,
Elizabeth
LVI -- lymphovascular invasion. I guess I should change my signature file so it says that.
-
Elizabeth,
No apology is necessary. You are very lucky to have someone like your sister, who can help you go through some much of this information that is now available. It's can be very overwhelming. What did patients do before the internet?
I hope you get a excellent report on Monday. Stay focus on keeping your body health, happy and fit. (I sound like the Dog Whisper
)
Flalady
-
konokat:
If you do have liver mets, check out radiofrequency ablation. It is a minimally invasive procedure which is effective against liver mets. Don't know where you live but I know they used to do it at Rhode Island Hospital and another hospital in Mississippi. I found it when I was helping my own sister who had lung cancer. I had researched the 5-yr. survival rate and found for her lung cancer, that it was only 5% so I knew that whatver the drs. were doing wasn't working. The RFA was fairly new and her oncologist would not even look at the paper I tried to give him. Unfortunately for her, she went the chemo/rad/surgery/chemo again route, had a hellish year and passed away. We did end up going to RI Hospital to check out the RFA but it was months too late. My cousin's father-in-law who was told he had 9 mos. to live, did the RFA for lung cancer and lived for several years with good quality. I wish my sister had trusted me because I had done hours, days and weeks of research to come up with that but she did not want to know anything. I am not a dr. though so I can see why you would trust your sister. I have bc now and want to know everything. Anyways, sorry for rambling, but I know they do it for liver mets, hopefully you will find that reassuring.
Peeps
-
My darn PET/CT was cancelled -- scanner down. So I have to wait another week. At least it gives me another week to read floridalady's articles! Peeps -- I heard of RFA. I'm just outside Boston so I think there should be a hospital that does it, if my current one doesn't. Thanks for the info,
One good thing -- I decided whether I get good or bad news, I'm going to organize a girls' trip. I have one definite for the south pacific (that's on my bucket list). I was thinking of the Serengeti, but when I thought about it, I'm not too keen on the lionesses savaging gazelles, even though it is perfectly right for them to do so. :-)
-
Konakat...Can I come to? LOL I hope you girl's get your trip plan and think of us while you are face to face a beautiful lionesses or tiger...hopefully not eating any gazelles. I know they have to eat...but I don't want to watch either.
Also check with your insurance about RFA. My insurance will not cover this treatment or cyberknife because they are not proven treatments..... But I would go for it if you can.!
Flalady
-
Good Lord!! They wouldn't do the RFA? It's been routinely provided for 6-7 years in Canada for liver mets! And free, I must add. I certainly hope I don't have to choose between my boyfriend of 3 years (who stood by me through this all) in Boston or heading back to Canada for treatment! What a choice to make! And, how ironic!!
-
Let me clear up what I said konakat...It's not approved for bc to the liver mets. It is approved for other kinds of liver cancer. BC to live is a whole different kind of disease and that is where the insurance companies are coming from. Yes! it sucks.
Flalady
-
I don't have BC, but my sister does and mom has uterine cancer.
I am going to start taking b17, enzymes, and vit D as prevention. I already avoid any gluten, and drink distilled water.
-
-
I'm curious and intrigued by your references to transfer factors and Imreg materials. Do you have a reference indicating that relationship and that they are in TF's?
-
I was the director of the Cancer Patient Interface and was involved in the evaluation of some of the Mexican cancer clinics. Cutting to the chase; We found that overall outcomes were about the same as US treatment centers. The big difference was the holistic atmosphere in these Mexican clinics. They addressed the disease as well as nutritional, physical and spritual needs.
I was amazed at the compassion the the clinic's staff. The experience at these Mexican clinics is far superior to anything I had seen in the US. I always said, if I was terminal with cancer, I would not hesitate to go to a Mexican clinic. I felt that the Contreas Oasis of Hope was one of the best.
-
Dear Readers,
I do not feel traditional western medicine has all the answers; nor do I feel alternative medicine alone works on everyone and in both types of cases buyer beware and do your research. I have gone to alot of cancer treatment centers in the past 10 years with my mother (stage 4 endometrial cancer,) grandmother (stage 4 breast cancer,) and aunt (stage 4 colon cancer.)
My mom went to the Oasis of Home in Mexico for stage 4 endometrial cancer aprox. 8-9 years ago. We had a terrible experience there and was charged a fortune. The treatment was non-effective and the doctor was trying to get an extra 10,000.00 from my father after already paying the thousands of dollars in fees and already included on invoice. She had all the treatments there including the dentritic cell vaccine therapy that we had the responsibility to bring back to the states in dry ice and a cooler with no help or advise from the clinic. It did not go well to say the least and the doctor's office was very dirty. I have the pictures to view where they were taking the blood and open needles touching tray. I do not recomend going there. By the time she came home, the cancer had advanced significantly and her immune system white blood cell count poor. She had to go to a hospital once back in the states and passed away quickly. When she first arrived there, she was much healther then most of the patients' being seen. There are wonderful and more safe alternative clinics in the states or germany. I do not recommend going there and I do not feel Dr. Issel (the origional founder) would be very happy with the greed and level of care.
-
RE: The Angeles Functional Oncology Programme at the Angeles Health International Hospital (Tijuana, Mexico)
STAY AWAY from this Mickey Mouse, hocus pocus, utter joke of a hospital!! This place uses ‘alternative cancer treatments’ but the problem is they simply don’t work!! The whole thing is a scam and will cost you around $35,000. You will see lots of ‘survivor stories’ littered online including videos on youtube and, although I wouldn’t go as far as to call these people ‘stooges’, it is highly questionable as to whether any of these individuals had cancer at all in the first place.
When you first make contact, you will receive an Email from a lady called Marla Manhart who will dazzle you with her knowledge of specialist cancer treatment hospitals which are available in Mexico and the techniques that they can offer such as hyperthermia, cell
vaccines, ozone therapy, T-Cells and a number of others – all of which are painless, non-invasive and offer no side effects!! It all sounds simply too good to be true and, as we discovered, this is precisely the case.You will then receive a telephone call from Dr. Perez who is equally convincing, he will talk with you for around an hour or so and, to be fair, he will advise you that he is unable to cure cancer but in the next breath will also offer you remission rates of 90% for 5 years and 85% for 10 years!! Yeah right, as we found out this is absolute rubbish; 5-10 days would be a more accurate prognosis.
I agree that their ‘functional oncology’ approach is indeed how cancer will be treated in the future i.e. to firstly build the immune system and then teach it how to attack cancer cells but the thing is they can’t actually do this!! They just say that they can!!
Please do not go anywhere near this place, the only treatments that work are the conventional ones – chemotherapy, radiotherapy and surgery. If your local hospital has advised that these treatments can no longer be administered then seek a second opinion at a private hospital, the chances are they will be able to help with further conventional treatment.
-
"the only treatments that work are the conventional ones".
Um, no. To insinuate that anyone who has had a good experience there is a "stooge" (or pardon me, you wouldn't go that far) really bugs me. I've been chemo chair neighbours with a few women and men who had nothing but good things to say, and I can 100% assure you that they weren't in there getting chemo just for fun and to drum up business for a clinic in Mexico. These were very sick people looking for alternatives or complimentary treatment that is not offered in North America. Some get better, some don't....sort of like chemo.
-
I know someone who 30 years after surgery is ned on the gerson therapy (self administered & so with variations) the surgery came about after the lung cancer began to hemmhorage
-
he told me he was sick in 1980. I trained & bussed to visit him, he was raking enzymes, carrott juice, coffee enemas, restricted diet mostly salads. he told me about the bleeding & surgery in not earlier than 1983 & could have been as many as several years later than that.
-
Thanks for the Great information!
-
I am very sorry to report that, as best I can tell, Oasis of Hope is a scam and their "cure" statistics are fake. I know someone who went there and died a few months later, doing no better than if the person had gotten nothing but placebo. Here is a story of trying to verify their cure statistics:
http://kentbrandenburg.blogspot.com/2016/05/oasis-...
but totally failing. Please be very, very careful before even considering going there!
-
KJB, may I very respectfully suggest that there is no cancer tx that is 100% effective for everyone? Many many people die of cancer and the only difference is that when people die of cancer after conventional tx, or even b/c of it, no one blames the tx as ineffective. My aunt did everything she was "supposed" to and got burned from the inside out from the chemo and died from side effects of the chemo, but not one person blamed the tx. However, I guarantee that if I die from cancer after doing all holistic, that's all you'll hear at the funeral is how I could've been saved, though I actually had a poor prognosis.
Also, I followed up on your link and it's a blog, on a mainly Christian oriented page. I'm a Christian too but this bothered me: "While, by the grace of God and through the practice of scientific medicine in accordance with the Dominion Mandate of Genesis 1, rates of death from cancer are gradually declining, it is still a horrible disease. (By the way, you can invest in Eventide's Healthcare and Life Sciences Mutual Fund if you want to own companies that are developing cures for horrible diseases like cancer and also, probably, earn a great rate of return!"
And by your initials on here and the name of the writer of the blog, I get the impression that you are one and the same. What you say may very well be true but I'm less inclined to believe it after checking out your blog post.
-
And this KJB? Really? They had surgery, chemo, and radiation in Bible time?
"Sadly, I spent the time looking into the (falsely named) Oasis of Hope because of someone who I knew who had cancer and was going to go there. This person had been a True Believer in unconventional medicine for some time--despite the evidence that it is unbiblical and unscientific--and so, in the time of extreme trial, the person went with what had already been believed in for lesser difficulties."
You spent all that time working to discredit a clinic b/c you know one person who died while receiving tx there? That should put Siteman Cancer Center/Washington University out of business then b/c I know they lose people every day.
-
THank you for posting this. A lot of these treatments have been in use in Europe for many years with good success. Germany in particular. I do not know anything about the clinics, however the Moss Report sorts the wheat from the chaff in terms of clinics that are ethical and those that are money makers.
Coffee enemas work as they trigger the liver to dump toxins in to the waste system and you need a healthy liver for a healthy immune system. A toxic laden liver means that your body is a more cáncer friendly environment...........drinking coffee does not have the same effect on the liver.
-
I read that blog awhile back and thought it was a bit strange. How can God or the bible be against natural treatments?
-
there is one in china now & also hyperthermia in the philippines. Haven't checked the costs yet.
-
there is one in china now & also hyperthermia in the philippines. Haven't checked the costs yet.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team