san diego area

That is very cool----I was half dressed and almost out the door when I got a call that a pt had called my office and cancelled an appt in Cardiff with me----so---I put my bathrobe back on!!!!!!  Have to head to Oceanside for a dentist appt at 1:30----so that just might be the extent of my day!!!!

Sylvia - great news, but you want to kill the newbie don't you.

I was out in the rain. The one day I need to drive had to be voting day - there were no spaces where I vote so I had to wait for someone to pull out. Guess I shouldn't complain that people were out voting though. 

Hello-Liz--glad to hear about your gyn appt ---but the liver thing is a struggle? Brenda---how did you know that was one of my favorite movies!!! And Susan------it is such a pain dealing with newbies---but maybe she did see something...??? Today I say ---Who gives a !@#$%^&*!!! Not really---but i'm so tired of being upset...I hate it!!

thanks to you all...s

So is the friends of the MRI thread? My bs told me today she wants me to have another breast MRI. She found a new lump. She thinks it is probably fat necorsis again but wants to be sure. She had previously charted all the areas where I had it and this is not one of them. I have so had enough of this.

Oh Brenda!

Where on earth is that lump? FWIW, I had fat necrosis and it felt just like a tumor or node. What a relief to have that confirmed by biopsy! So is she ordering an MRI or a biopsy?
I am soooooo sorry that you have to deal with this. I'm certain it's nothing, but until then you will drive yourself crazy.

I recommend wine. I had a glass this evening and now I think I'll just get in bed.

Lisa

There is an empty glass on my desk right now Lisa. I may just go fill it again. The lump is about 3 inches under my arm pit or at about 9:00 as the bs said. It is on the side rather than right in the breast.  I had felt it before but it was smaller and I just figured it was more fat necrosis. I already had 1 biopsy done on the other tram breast and that is what it was. After I healed up good from my surgery she charted all the areas we felt lumps in. This is not one of them. She wants an MRI to get a another big picture of things. She has to get it approved by the insurance so she had to write it up like she had a strong belief it was a recurrence. She told me not to think about the language it was just for the insurance company. Whatever. My onc told me to quit getting radiated so she will probably not be happy about this. The bs is very aggressive and as I have told you all before, if she wasn't I never would have been diagnosed when I was. I do trust her completely.

Sylvia-Yes it was Dr. Rajgopal.

Hi everyone -

Like Liz said, you don't check in for a few days and the s^&*%*t hits the fan.

Brenda - here's good {{{vibes}}} going out to you.

Sylvia - glad your event was a mishap and nothing serious!

This whole cancer thing gets old quick.  I just keep waiting for the other shoe to drop, so to speak....  I just want it to go away! 

On a happier note, I think I've found a doctor (Dr. Festjekjian) up at UCLA to do my DIEP reconstruction who is actually a preferred provider on my insurance - YEAH!  I'm going to schedule a consult and hope to have surgery the end of February.  Keep your fingers crossed.  I'm also considering doing a prophylatic mast and reconstruction on the right side at the same time?!

My sister-in-law was diagnosed with a benign brain tumor over the summer and because of her age, the size of the tumor, and the effects it was having on her physically, they needed to remove it.  The tumor was in a bad (hard to reach) location.  She had a 22 hour surgery on 10/28 and they did not get it all so she went back in this past Tuesday for another 7 hour surgery and will still have to be treated via Gamma Knife in the next 4-6 weeks.  And, her daughter (my niece) had her first baby this past Monday.  So, I've been travelling back and forth up to Orange County to be supportive her and my brother and family.  The baby is sooo darn cute and our family really needed a happy and joyful occasion. 

I do hope to catch up with everyone soon.

Love to all,

Lisa #3

YAYon finding the DIEP surgeon on your plan, Lisa#3! One step closer! And congratulations on your new grand-niece - I'll hope the strength of newborn-baby-smell gives a real boost to your sil's recovery.

Brenda, it won't take any radiation to do an MRI - zip, nada, zilch - so there's one concern off your mind. I wish I could say the same thing for your lump. The axillary area is most frequently the area for a deposit of fat necrosis - it's furthest away from blood supply. Let's just count on her being extra-cautious, but WRONG in her prognostications!

Yesterday I had such an increase in symptoms that I called my onc to get a message to him begging could I please move up my MRI. His onc nurse called back (in less than 30 min) to say that I needed to go to the Emergency Room, there's where I could get both an MRI and a neurological eval. Well - I didn't have the money and I had two pups at home who were looking for dinner - thus I had my glass of wine and went to bed. Early. I guess I am alright if I don't speak or write and my headaches don't come until early-mid-afternoon.

I can do the 15th, it will be a Saturday so I'll bet Melianne can join us!

Lisa

Just wanted to pop in and say that I'm holding a good thought for everyone who has issues going on right now. Lots of prayers coming everyone's way for happy, benign results. Glad your stuff turned out well, Sylvia. Lisa and Brenda--I'm praying up a storm for you girls. And Lisa #3, prayers going out to your SIL--she sure has a lot on her plate! Congrats on the new little niece--babies are wonderful, especially in the midst of medical crap.

Oh my God, Lisa. I'm stunned. Prayers coming your way.

I have faith that you will have a plan of action to gamma knife these mets--there is a very good gamma knife center in San Diego. Christine Druther and her husband from the HER2support.org board can help you out with info on that--she's lived for 10 years with brain mets and is still going strong.

Oh Lisa...I am sooooooo sorry to hear this news...

I hope you can find some answers ....If there

is anything I can do please let me know...

My arms are wrapping around you and your daughter...

Lisa-I love you girl. Sending you hugs, prayers and love through cyber space. I just don't know what else to say.

I thank you all again, for the good wishes and encouragement.

The hated decadron is having some postive effect on my edema and thus my aphasia. My onc. feels it is a necessary evil for the forseeable future. I still have to apologize on the phone for my seeming dim-witted and slow. My SSDI won't be too much of a problem though, I think I proved that. I still have to go there, though - what a pain.    I'll be seeing him later in the week. The referrals have to get in the system. I'll be scheduled for more 'staging scans' - ie Let's see if there's anything in the liver, lungs or bones now that the horses have left the barn. 

My radiology report was initially read by some "Teleradiologist" offshore. Now it turns out that I have one (larger) lesion. While I'm glad for the singleton, how on earth does one make the mistake of evaluating an MRI - coming up with two lesions? One a 2cm and one a 1cm. Anyway, I have a referral in the system for the hospital up in LA where they do the Gamma-Knife procedure. I'll be waiting for their call - yeh, for about a day - it's Kaiser and you gotta call them!

Lisa

That tele radiologist should be shot..

I hope that the referral comes right through..isn't there somewhere in San Diego?? or maybe LA is better for you..

Talk about a full plate!!!

LisaSDCA-I must agree with Sylvia. You are an inspiration.