survivorship (poll)

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  • Blinx
    Blinx Member Posts: 280
    edited February 2008

    I feel more like a patient than a survivor, still in the midst of it. Maybe years from now I will feel like a survivor (when I die of something else, like others have said).

    Truthfully, I never felt like I had cancer. Never felt a lump. I could see bits of things on the mammo, but all I've felt so far has been from treatment. Now that I've started Tamox, I feel like I'm battling the drug instead of cancer.

    I tried the pink ribbon stuff, but I guess it wasn't for me, since my pin broke and my pink rubber band broke too.

  • yellowrose
    yellowrose Member Posts: 886
    edited September 2010

    Pink has ALWAYS been my favorite color.  Wore different shades of it all the time but since the BC diagnosis all my friends and even some of my family assume it's to support cancer research.  Didn't want to quit wearing my fav color but I really disliked the automatic assumption that I'm pushing the research agenda.  People who have seen me wearing pink have given me gifts with BC logos.  Though sometimes it is not a totally bad thing as it has opened up a couple of good dialogues with people who needed to talk.  I finally decided that I am going to continue wearing a color that I enjoy.

    Yes, the pink ribbon stuff goes too far but at least it is a constant reminder to the general public that breast cancer does exist.  We BC ladies and men, unlike my grandmother and others of her generation, don't have to hide our battles against this disease and that's why I choose to acknowledge what the "pink ribbon campaign" has done for me.

  • tami48
    tami48 Member Posts: 533
    edited July 2008

    I had bilateral mastectomy on May 12, 2008----I've considered myself a Survivor since that date.  I even asked my Breast Surgeon about it and he said that I am a Survivor. 

    Tired--Goodnight!

    Tami 

  • pondfrogs
    pondfrogs Member Posts: 91
    edited July 2008
    I remember the first time I met my surgeon. it was about 1 week after I received the call that I had bc. she walked into the room, grabbed my hands and the first thing she said is "from this moment on you are a survivor". left quite an impact on me and now on even on my worst days I remember that and it keeps me plugging awaySmile
  • BethNY
    BethNY Member Posts: 2,710
    edited July 2008

    I just stumbled across this thread.  It was started when I was diagnosed in 2004.  As I scrolled through the names, some sisters are no longer with us, but reading their words brought warmth to my heart.

    I went to my first Making Strides for Breast Cancer walk 7 weeks after my diagnosis.  I walked over to the survivor tent with my team captain, who proudly exclaimed, FIVE YEARS!!! They hugged her and handed her a survivor shirt.  Then, the woman turned to me, and timidly I said Do I count? I was just diagnosed.

    Without hesitation, they handed me a shirt and hugged me.  It was that day that I realized, I too, was a survivor.

    In the last four years I have learned to wear survivor not only on a shirt.  I wear it in the scars on my abdomen and breasts.  I wear it in the patience with my forever changing body, and the grace behind my unbreakable smile.  I speak survivor through my courageous tales of triump and hope, and one look at the spark of life that lies in the twinkle of my eyes, is all it takes to show my devotion to being part of such an elite group.

    I think with every passing year, I'm not just surviving... I'm thriving.

  • greenfrog
    greenfrog Member Posts: 269
    edited October 2008

    I am scared of the word "survivor" - it seems presumptuous and somehow tempting fate.

    I don't want this disease to impact on me any more than it already has. If I call myself a "breast cancer survivor" then I am allowing it to define me.  My 43 years on this planet have seen me do much more than deal with this disease.

    I never want to hear the words "breast cancer" again. And I have always hated pink.

  • Brenda_R
    Brenda_R Member Posts: 509
    edited October 2008

    I considered myself a survivor about one year out, when I started feeling better.

    I figure I survived the initial treatment. Now on to the second year.  

  • HollyHopes
    HollyHopes Member Posts: 497
    edited November 2008

    I was dx in January 07; surgery February 07; 8  dose dense AC/T; 31 rads.  Finished up tx at end of August 07.  I count Labor Day  (07) as the first day of being a survivor.

    I feel more like a survivor every day.  

    Blessings sisters....

  • HollyHopes
    HollyHopes Member Posts: 497
    edited November 2008

    I was dx in January 07; surgery February 07; 8  dose dense AC/T; 31 rads.  Finished up tx at end of August 07.  I count Labor Day  (07) as the first day of being a survivor.

    I feel more like a survivor every day.  

    Blessings sisters....

  • hollyann
    hollyann Member Posts: 2,992
    edited November 2008

    I consider myself a survivor as of the day of my surgery...Feb., 2nd, 2007........Hugs and love to all my beautiful sisters!....Lucy

  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited November 2008
    I've been a survivor since the day BEFORE I was diagnosed in April this year. Sorry, but I just won't do the Cancer Girl thang. This disease is a stone on my path..nothing more...and I KICK it out of the way every day I wake up!Laughing XXXX to you all.
  • 1973vwbus
    1973vwbus Member Posts: 16
    edited January 2009

    I was diagnosed June 14th 2007, had 18 weeks of chemo surgery January 9th 2008 and rads after that for 6 weeks.

    I count my survivorship as of June 14th as everyday i wake up after the cancer call is winning.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    I agree with those who are a survivor when they can stand and walk out after the diagnosis!

    I was dx 12/31/03, had a Mast, Tram, Lymph Node Dissection, Chemo, Tamoxifen, Hysterectomy, Arimidex, and have permanent nerve damage from the dissection. I consider this last New Year's my 5 Year Cancerversary.

    I also don't think survivor is my favorite word, but am DAMN GLAD I am here to say it!

  • Kimwith6
    Kimwith6 Member Posts: 9
    edited January 2009

    I am s/p bilateral mastectomy in June 2008, finished chemo and am half way through radiation.  I already feel "healed," but I think there are some events that I need to live through to truly feel like a survivor.

    1. I want to live to see my first grandchild be born.

    2. I want to be healthy enough to have reconstruction surgery.

    3. I want to see my youngest child, now 5, graduate from high school.

    These are just a few of the events, most of which pertain to seeing my children grow and being a good mother to them. 

    I am 42, and I often hear that song playing in my head, "Lord dont let that cold wind blow, till Im too old to die young,,,"  And I consider anything below age 70 young!  Ive got alot of living to do!

  • NewsInfusion
    NewsInfusion Member Posts: 1
    edited January 2009
    It's an interesting thread, to read how everyone sees survival differently. I wanted to share with you Lauren Miller's struggle. Hers is truly a moving story of perseverance and faith.

    While going through a divorce, Lauren was diagnosed with grade three, stage three, invasive ductal carcinoma..But through her every-growing faith, she made it through.

    You may have heard of her from the numerous radio interviews she's done lately. You can get more information about her inspring story here:

     http://www.laurenemiller.com/

  • katie-nc
    katie-nc Member Posts: 37
    edited January 2009

    4 year survivor Here!  ER+++  PR+++ and Her2Neu+++

    Just finished my reconstruction.  I wanted to let my body, mind and soul heal before beginning that process.  Now I have started Grad School for my MBA.  I always wanted to do it, so I figure no sense in waiting now!  I plan on running my first 5K race this year and swim a pier to Pier (1.7 miles!).  Oh, and I work full time.....no moss growing on me...too much to do!  Hang in there everyone....we can do it!

    Katie

  • Crystalady
    Crystalady Member Posts: 133
    edited February 2009

    I was first diagnosed in Dec 1998, thought I was free and clear, then had worst Christmas since then. Now have mets in back but have had radiation and am dealing with it. I've survived again and will continue to survive. It's damn hard but I'm not going anywhere yet, there are too many things I still want to do and I want to see my future Grandchildren.

  • Cather1ne
    Cather1ne Member Posts: 8
    edited February 2009

    It is now over a year since my diagnosis, treatment ended in July 2008, but since then there has been a battle of side effects that has drawn me down from my I will survive opinion at times.  I have radiation scarring to the lungs which caused a dreadful cough (now virtually subsided) and limitations to my breathing (improving daily now).  I have developed dreadful eczema, which started on the area of my radiation therapy but has now spread over my body.  Never in my life have I had anything like this.  So when people said to me by this time it would be becoming a distant memory I wonder what they mean.  Every day I seem to have a harsh reminder of what happened.  But I am a survivor for now.  I survived the diagnosis and all the horror that brought, I turned to a fight and I fought hard right through the treatment even though I wanted it all to stop.  However long Iive for, and whatever I die of, I am a survivor.  I think the thing that made me realise that was the belief that dying might not be the worst thing in the world, but that I should value and celebrate the time I have in my life.   A very good friend of mine died within 8 months of diagnosis, but if anyone was a survivor she was.  Throughout all her treatment she still thought of others, and smiled as best she could.  This awful thing may have taken her life, but she didn't let it take her spirit.

  • Sierra
    Sierra Member Posts: 1,638
    edited February 2009

    Hi Gals:

    I am 9 years out

    and like to say:

    thriver, and a LOVER OF LIFE

    my best to all posting here

    Namaste

    Sierra :)

    Note to Crystallady:

    in Australia

    are you OK out there

    with those fires

    terrible thing!

  • Crystalady
    Crystalady Member Posts: 133
    edited February 2009

    Hi Catherine,

    I developed Psoriasis after my Chemo 10yrs ago. It is a similar condition to eczema. I think it has something to do with stress and a poor immune system. These days we are all told to stay out of the sun and now there are a whole lot of problems with lack of Vitamin D. I try to get 10mins outside either early morning or late afternoon. It helps me.

    Sierra, Thank you for asking about the fire tragedy. Thankfully we don't live in Victoria. I live in Queensland much further north. It is in times like these when you see the good in people. So many people were killed. Over 200. We all cried every time we watched the TV. It is like a war zone down there.

    We all have our problems, but know that there are people worse off than us. We have to get on with our lives, you never know whats around the corner. Personally I'm hoping for a Cure For Cancer.

  • Sierra
    Sierra Member Posts: 1,638
    edited March 2009

    Hi Crystallady:

    O/T

    oh, I see, the pictures looked devastating

    I am allergic to sun myself

    lived in warm climates

    sat out all the time, and now

    steer clear

    Best to you

    NO, never know what rounds

    our corners, take care :)

    PS  I drink Wolf Blass wine :)

  • Lena
    Lena Member Posts: 1,036
    edited April 2009
    At my first meeting with my chemo nurse, SHE told me that anyone diagnosed with cancer is a "survivor" from the moment of diagnosis until the day they actually die -- even if they haven't been treated yet. At that time, I had just been diagnosed (received biopsy results and informed by both the surgeon who did the biopsy and the oncologist that I had IBC) -- but was still in process of having a bunch of scans for staging so my specific treatment plan could be DECIDED.

    So, since I wasn't actually dead, and I'm still not dead (just had first chemo on Thursday -- not nearly as bad as I expected, although today the fatigue finally hit and I slept most of the day in spite of getting a good 8 hours of sleep last night), according to my chemo nurse, I'm a "survivor." I don't know what that's supposed to feel like though, because I am NOT brave and I am NOT hopeful or positive, and I see a lot of this "mystique" being built up not just here at this forum but in the media about "survivors" being brave "fighters" on the warpath against cancer -- which I'm also not. All I am is simply not dead yet. Which is, quite frankly, not far from where I was before my diagnosis!

    ~Lena.
  • survivorx7
    survivorx7 Member Posts: 6
    edited June 2009

    well said karla, i am a survivor of 7 years 2 attacks what has it taugt me that life is very fragile and precious. And that would shouldnt waste it worrying about words and what others think.

    Each one of our journies is different and personal to us, I am just grateful that someone had the foresight to build a website like this.

    I have had a pink and purple for the last 7 years on the back of my car, the best statement I ever got was whilst stuck in traffic, blistering heat bobbing along to music and a man ulled up beside me asked me how long I said 5 years he cried there and then and said may I tell my wife.

    She thinks shes not going to make it,  job well done if no on else asks me for the next 49 years (DAMN RIGHT LOL) then that one experience will be enough.

    I become  a warrior when they told me, I become a survivor about 10 minutes later, when my partner was asking for a second opionon on my breast cancer (they really do think they are theirs LOL.

    As for the pink ribbion suff, dont let the idiots that sell the cheap stuff get to you, why well karma is karma and to get on the band wagon for money will surely bring them no good!!  

  • Believer0711
    Believer0711 Member Posts: 351
    edited July 2009

    The day I was diagnosed was the day I started surviving. It's like a war, and I fought each day after doctor confirmed that it is bc. I survived the surgeries, chemo, and so far tamox. It will be 2 years in November, and I'm still here...Thank You Lord!

  • juanita63
    juanita63 Member Posts: 171
    edited July 2009

    i think i'm going to use the date i found my lump which would also have been my grandmother's birthday. so august 25 i will be a 5 yr survivor.

  • havehope
    havehope Member Posts: 503
    edited November 2009

    I consider myself a survivor since the date I decided to fight this disease which is the dx date. But I have been NED the surgery date so I count based on that - Halloween Day -  just made 1 year.

  • Chaparrita
    Chaparrita Member Posts: 35
    edited November 2009

    I consider myself a survivor when I was diagnosed to die but did not.  I am so completely blessed its unimagineable. I had a breast with no skin covering it, open and draining.  Now, I have a breast that is somewhat scarred and a wee bit smaller than my other one.  I had no surgery, no part removed, nothing.  I am a Survivor!

  • katie-nc
    katie-nc Member Posts: 37
    edited December 2009

    December 23 will be my 5 year anniversary from diagnosis.  It is hard to believe.  In some respects it feel like last year.  In other respects it feels like it happened to someone else, and I am on the outside looking in.  I think you are a survivor the day you find out and you decide to fight!

  • wrsmith2x
    wrsmith2x Member Posts: 410
    edited March 2010

    I had tonsilitis as a child and survived it.......I had pre-cancer in my uterus and survived it.......I've been in numerous car accidents and survived them.......I had endometriosis as an adult and had a hysterectomy and survived it.......I have headaches and colds and the flu and have survived them all.......and I have had breast cancer and survived it, so far.  I don't consider myself a survivor of anything but life.  I'm a survivor until I die.  And we all should stop taking life so seriously.....nobody gets out alive anyway.

  • Wonder444
    Wonder444 Member Posts: 12
    edited December 2010

    I consider myself a survivor every morning as I open my eyes.  But most of all, I am a fighter.  Not just when it comes to cancer but in every aspect of my life.   For once that "I'll show you attitude." became a very positive tool. 

    Happily, January sixteenth iwill be my twenty-first  anniversary of my first cancer surgery.   I was told by several doctors, at that time, not to expect to live more than five years.  It was then the "I'll show you" came into play.  I thank God every day that I am still here.  So emotional tonight. 

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