the hair!!! and scalp cooling?

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michelle112
michelle112 Member Posts: 12

hi all,

did you all get your hair back? did any body try scalp cooling with tc chemo??

thanks for your help!!

michelle 

Comments

  • lisettemac
    lisettemac Member Posts: 213
    edited October 2008
    Hi Michelle:

    I don't know what you mean by "scalp cooling"?  The wig place I went to gave me some kind of cream that had a cooling feeling and helped relieve the pain and itch when my hair fell out.  FWIW, the pain goes away within a week or so.  And, yes, my hair did eventually come back.  Of course, I was also taking Herceptin and Tamox and one of them also slows hair growth, so it seemed like an *eternity* before it was back.  So let's see, I finished my chemo on June 1, 2007 and I think I ditched the wig around the beginning of Dec.  It wasn't the *most* attractive 'do, but I was ready.
  • nash
    nash Member Posts: 2,600
    edited October 2008

    I've heard about the scalp cooling, but didn't try it. The theory is that if you reduce the blood supply to the scalp by cooling the area, the effect of the chemo on your hair will be diminished. 

    Here's a link to some info on it (sorry I can't post live links with my browser):

    http://www.cancerbackup.org.uk/Resourcessupport/Symptomssideeffects/Hairloss/Scalpcooling

    I started growing hair a month after my last chemo infusion last December, and now have about 3 1/2 inches of hair. I think it's very unusual for it not to grow back. 

  • michelle112
    michelle112 Member Posts: 12
    edited October 2008

    thank you so much for th info! and i'm happy to hear that you have a full head of hair! i know from my first chemo, that the hair is a constant reminder of the hilliness. i've heard of the scalp cooling, but i don't know any one that actually used it. in the uk, they have the scalp cooling machines in every hospital.

  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited November 2008

    I asked my chemo nurses about it and they said that for it to work, you would have to keep you head cool until the chemo is out of the system.

  • michelle112
    michelle112 Member Posts: 12
    edited November 2008

    hi all, i started my first treatment last week. so far its been really hard! the nusia, bone aches and more...i did do the scalp cooling but im not sure of the results yet. i hope that it will work!! one less trauma to deal with...

  • nash
    nash Member Posts: 2,600
    edited November 2008

    Hang in there, Michelle. You can do it. Keep us posted on the hair situation--fingers crossed for good results.

  • BethNY
    BethNY Member Posts: 2,710
    edited November 2008

    I think you should'nt get too let down if the scalp cooling doesn't work.

    You can rock being bald---and YES- your hair will come back. Of course, not fast enough- but it will come back.

    My hair is longer now then it was when I was diagnosed-- I finished chemo 2-05, and then finished herceptin 7-06. Once the herceptin was done my hair growth took off- I swear it doubled in length at the two year mark. Now it's half way down my back and very healthy...

    I always say that G-d gave me a second chance to not mess up my hair with harsh dyes, blowdrying, and other styling tools. Before cancer I had long locks, that were every shade of the rainbow-- I'm not kidding- I changed my hair color every three months.

    Now, I'm so happy that its new, and shiny, and strong, and healthy... being bald, and then going through the UGH SHORT HAIR PHASE--- was totally worth it for the hair that I have now.

    Hang in there sweetie--even if it does come out-- you can totally still be fierce!

  • suecco
    suecco Member Posts: 317
    edited November 2008

    Hi

     Im in the UK and yes we do have scalp cooling in our clinic,  Ive used it with 5 different lots of chemo now and never needed a wig!  It takes around 17 days for your hair to start to fall out, you'll notice your body hair will start to thin (saves a packet on waxing!!)

    I was dx at 30 and am 37 now and keeping my hairs helped me stay positive, but I know im one of the lucky ones infact Im the only person who the scalp cooling has worked well for in our hospital, Im the only person who uses the cooling machines. 

    Michelle its worth a try, got my fingers, toes and eyes crossed that it works as well for you.

    Dont wash your hair unless you've got to, use lots of conditioner and try not to use a hot hairdryer and get a soft hairbrush, remember your hairs been frozen to around -5 so look after it!!!   Dry shampoo between washes is great.  And lots of spray leave in conditioner just before you put to cap on and if you can stand it wet your hair at the roots especially on the top just before you strap yourself in!!

    Take care

    Sue xxx

  • michelle112
    michelle112 Member Posts: 12
    edited November 2008

    hi all, thank you so much for sharing and for the encouragement!! i'll keep you posted!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2008

    Hi...

         I'm sure it's possible, but why would you do that?? Don't you know your pubic hair and head hair are totally different? Different size, texture, and so on. You'd look like an idiot with pubic hair on your head. Plus, unless you got like a huge crotch or balls, I'm pretty sure you won't be able to get near enough pubic hair to cover your entire head.

  • Chris71
    Chris71 Member Posts: 5
    edited November 2008

    I have heard that its not good for you to do. It constricts the blood vessels....this is where the chemo travels to kill the cancer. I thought of it too but decided against it, just in case the chemo misses some cancer cells because of constricted blood vessels.

    Just my 2 sense....

  • nicole0714
    nicole0714 Member Posts: 48
    edited November 2008

    beth,

    i am new here, but will probably be getting chemo since my DCIS had a small area of IDC and i am triple +. you make the hair loss thing so encouraging. from the last chemo till now, how long until you had shoulder-length hair?

  • BethNY
    BethNY Member Posts: 2,710
    edited December 2008

    Nicole- my best advice, is not even to think about how long it takes.  Because the truth is, even after the first year, your hair is still WAY above your shoulders... more of a crop boy cut, paige boy style. I  see you're triple positive like me, so seeing as how you'll prob do herceptin, the hair growth will take a little longer. But once the herceptin is done, that's when the growth doubles.

    The thing is, its more annoying now that you have long hair, then it is going from being bald... how do explain that??? Okay, so when I got cancer, my hair was down my back, and my FAVORITE feature, so of course, I was SOOOOO pissed that f*cking cancer stole my long locks. But, once you're bald, you are totally over the long hair, b/c you forget what it was like almost. You have your wigs, and your bad ass funky scarves and big earrings, and you can totally rock being bald.

    When your hair starts to grow back you're so freaking excited to just see the peach fuzz, that again, the dream of long hair isn't on the front burner in your mind.  When it's short, you wear it funky and spiky, and use gels and glue, and have fun.  Every day your stupid friends will tell you you have the face for short hair, and you should keep it this way. And you waill want to smack them, but instead you will smile and shake your head. then come here, and dish, and we'll all laugh about it.

    Then it goes through that shitty awkward short phase-- if you've ever grown out bangs you know what I mean. But you get past it, and before you know it, your hair is back.  And SOOOOO healthy to boot!!!!

    It's G-ds way of giving me a second chance to not screw up my hair this time around. No harsh dyes or chemicals or heat styling... (okay, I love products, and heat, but I'm really careful with my hair now).

    The important thing is that you will live to see another bad hair day-- I PROMISE!!!!

    Nicole- you're doing the best thing you can for yourself by being aggressive with your treatment... the first time is you best shot to teach cancer a lesson.

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