ALL MY TRIPLE NEG SISTERS!

i just wanted to say hello ladies and ask if anyone is having agressive treatment like me,  i have dose dense chemo every other week, act for for treatments followed by takatore????sp  i have had 2 treatments so far, and its been rough, but my cancer markers are going down.  when I am finished with chemo I will have 33 rad tx.  just curious about my course of treatment.

Hi Majjors/Traci!

I missed your posting.  I believe that each day is a gift and tomorrow will be what it will be.  And, I do my best to smile and spread joy and not doom and gloom.

I was officially diagnosed on 10/07

I am finished with treatment -- lumpectomy, 11/01/07, chemo - Taxotere/Cytoxan 4 rounds every 21 days beginning 12/26/07 (Merry Christmas ), then 33 radiation treatments - finished those 5/9/08. 

I cannot say that I am not concerned about my chances of re-occurence but I don't allow myself to worry.  This is October """""BREAST CANCER"""""" month so it is difficult to not let my thoughts drift to negativity.

In addition, my breast hurts everyday - some days worse than others.  And,  I have a mass growing around the incision area that they cannot say with certainty if it is a malignancy or just scar tissue.  I have had an ultrasound, mammorgram and am scheduled for an MRI next Wednesday.  My doctor also says there is a seroma present that she will try to treat after we find out if I have a malignancy or not.  I really think that this is where most of my pain is coming from.

In spite of these things, I love life, I love my family, I love my work and I am happy to be alive.  I am a Hospice Chaplain.  Everyday I visit people who have 6 months or less to live.  Most of them teach me how to live today better.  I am blessed. 

Kay

tammy  i had exactly the same treatment and its been 2 1/2 yrs NED for me  those drugs really do work  i had my chemo first and then my dbl mast and lymph nodes removed  and total response to chemo  there was no cancer to be found in all  the tissue removed

hang in there and stay positive  you will be fine   xoxox

julia

newalex

   Hope I can translate these Chinese herbs well: ( 北芪，党参，红枣，枸杞子，桂圆) Radix Codonopsitis, Astragali, Red Date, Medlar, Dried Longan.  You can make it as easy as making tea.  Little from each item, put in a small thermos (about 20 oz), fill up with boiling water, let it stay at lease an hour. One bottle a day or every other day.  It tastes a little sweet.  Chinese supermarket or herbal store should have them.  In Los Angeles area, $20 of above items, can last a month.  They are all nature grow stuff and no harm. 

Within couple days after the chemo, drink lots of fruit juice and vegetable soup, to clean out the body toxin.  After couple days, drink the herbal tea, to help circular and restore energy. 

Newalex,

I began to drink the tea 2 days after each chemo treatment.  Don't drink during menstruation, the amount might increase.  According to Chinese herb doctor, these herbs do not interfere with chemo affects.  We all know, chemo kill both "good cells" and "bad cells".  It can cause the white blood cells drop so low, that's why we feel weak and get sick easily.  During the chemo periods, with the herb tea, my WBC maintained at 4.5 to 6.  Without the herb tea, the WBC was 2.2. If the WBC was below 2, the chemo might be delay and another medicine might need before next chemo. 

I was overweight, had had fatty liver years before diagnosed the breast cancer.  Also, gallstone was found but I refused to remove the gallbladder.  After completed all the chemo and radiation treatments, I tried Lemonade Diet.  Surprised me, not only lose weight, but also, I couldn't believe the ultrasound technician asked, "Are you sure you have fatty liver and gallstone before?  for how long?  What have you done?  Your liver and gallbladder are very clear now."  I wanted to kiss the technician then. 

Hello TRI NEG SISTERS,

 I just spent the past hour and a half reading all the stories and comments. I was diagnosed June 23rd 2002, 10 days after the birth of my daughter. I am a 6 1/2 year survivor. My tumor was 1.7  and I had one positive node. To this day I don't know what stage I was/am/was? I was toooo scared. I didn't even know what a Tri Neg was till years later(Thank goodness I did not get the horror stroy some of you guys explained when you were told) . My Dr. knew I was so scared and that I didn' want to know any more than I needed to know. I use to sit in the office when waiting for test results with my head between my legs in crash position !  lol

 Ladies, in time your fear will fade! Just reading through the stories about survival rates etc on TRI Negs made me so happy! All the newbee's I remember the fear I felt my first year. Stay strong and keep your head up! I promise it gets better! Thank you Gina!   I am almost to 7 years. Your story is a great reinforcement! I am doing well and so are so many other TRI Negs! . We are tough "bi..otches" and we will kick this diseases ass!!!!! 

(((((((((xoxoxoxoxoxoxoxoxoxoxooxTRI NEGSxoxoxoxoxoxoxoxoxoxo)))))))))

I have been NED for 19 years.  I was diagnosed at age 38 and had a mastectomy on Halloween.  I was stage I (1 cm IDC).  At the time I was told that I had an 80% chance of making it to the 5 year mark.  At this time standard procedure would have been the mastectomy and nothing else.  However, I was treated at UCLA and they were participating in the landmark study that was in it's 7th year that was showing that early stage ER/PR- cancers benefit from preventative chemo to close the 20% gap. 

I had chemo for 6 months with Cytoxin and two other drugs (CMF).  There was no standard schedule of chemo treatment between doctors, at that time. My particular doctor was the only one I knew that administered the chemo every week for the first month and then every other week for the next five months.  Other women, I knew, got their chemo every three weeks for the whole time, so I actually had more.  I hope that I have been able to help some of you feel more hopeful.

Wishing All of You the Best,

~elaine~

I'm just made my 6 year mark this passed November!!!

 So happy to hear the successful stories!!

It is an inspiration reading these posts and seeing triple negative sisters who are 10yrs, 12 yrs. 19 yrs NED. I have just completed my treatments of DD AC x4 and rads x 15. Now it is just healthy eating and exercising and praying to God to keep me so that in 20 years I will be able to post NED.

Keep the faith sisters will be beat the odds.

Love and Hugs to all you sisters

Let's keep this positive thread going..I'm one year out..well almost....I feel awesome..but sometimes I[m afraid to say that I feel awesome..but I do...sometimes I'm afraid the other shoe will fall..but if it does..well whatever.....I think this is for TN's and everyone..we still all have/had cancer....whatever the label.

someone posted on another thread about how fast triple neg. grows..well yes..but however, chemo works the best on fast growing...I don't know...I guess I refuse to freak out about the TN diagnosis....there really are worse things that things...I think that most of us have a chance to be really old bitchy ladies...at least I hope so..

Hugs to you all

carolinachick, I know how you feel.  November will be my one year since receiving my NED and I'm not feeling too well right now.  So of course I'm dreading going to the doctor, but I'll see her on Monday and no matter what ... everything's going to be alright.

Take care!

Just saw your post hope to get caught up on the posts tomorrow. Man, I sure needed this right now. Thank-you.

What a great thread! So glad I found this!! I was so encouraged by the truly positive comments here. I was diagnosed with triple neg metaplastic (double whammy) in the spring and for the longest while opted for au natural until I was given all the facts about this type of cancer. I've now had 5 chemo treatments every 2 weeks with 3 more to go and then radiation. I've had few side effects, hike up the mountain for 1 1/2 hours every day and after treatment no 4 did a bikeathon fundraiser and rode 50 km. I'm slowing down a bit with Taxol but have kept walking and after day 5 bounced back. I'm hoping and praying the last 3 treatments are as smooth. I'm grateful for the minimal SE and hope to keep hiking as I really find it not only gives me energy but keeps the nausea away not to mention weight gain. Thrilled to read of the 5, 7, 10, 19 year winners in this thread. Thank you for keeping us newbies posted and giving us such tremendous hope! So encouraging!! 

hi Dandelion...what is the lemonade diet?  i, too, have fatty liver....

Hi Everyone,

I am new on here and was hoping for some help.

I am 38 diagosed on 11/3/10 with TN IDC. I had a partial mast on the right side...the tumor was 2.5 cm, all nodes and margins clean. the DR. told me it is stage II grade 0 . I just had a pet scan which came back clean. I am now recovering from the surgery, which they also did a bilaterial breast reduction , since so much margin tissue was removed. I need to make a descision on treatments now. The side affects of Chemo scare me more then the Cancer. Has anyone done just RAD treatrment after surgery and NOT chemo? Please give me some advise ...as I am scared.