Anyone starting chemo in June 08
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Hunnkydory, I took today off also as I didn't know how long it would take. I start radiation on Monday for 38 treatments. I lucked out my techs were women. I can now say I have a tattoo (2 to be exact) both are pretty small. I don't think I will be showing them off. HAHAHAHA!!!!!
My legs are a little heavy also. The bottom of my feet get tingly after I go for a walk, but I need to lose about 8 pounds. I have about two bottom eyelashes. My top eyelashes are pretty sparse but mascara seems to help some. I've gotten pretty good with the eye brow pencil.
Everyone keep thinking positive thoughts, there is a light at the end of the tunnel.
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Hey gals!
HunkyDorey - I had a friend who had a partial about 6 yeras ago - she has been helping me with this "journey" - she told me she now wears a slightly padded bra as her one boobie is smaller than the other - as is mine and mine also points east which makes it more wonky! So I was going to try one of those - I never consdered them as I am a "little" large in that area - padding is the last thing I thought of - but to obscure lobsidedness - will maybe give it a go!
My legs are still sore - it doesn't help that I am driving about 4 hours each day (2 hours there and back!) for my 3 minute treatment so I think they are not getting enough exercise - also since I haven't been getting much sleep as I am experiencing major noght sweats - I am not getting much sleep at night - so I get home and sit on the couch as I am too tired to think of doing anything else!
I have fuzz on my head! Can't quite tell what color but I will definitely not be blonde anymore! My youngest son likes to pet me!
Eyebrows - I tried - I just look like an alien so gave up!
Have had 6 rads yet - boy will take these over Chemo any day! Yup sore boob - who cares - I can eat ice cream!
Have a great week everyone!
Sue
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Sue Peet...are you taking tamoxifen now.... when you mentioned the night sweats...I am getting those as well. Also, hot flashes during the day.. what a treat. Hey, maybe the ice cream would get rid of the hot flashes??
Yes, I am still having really heavy legs, sometimes takes a lot of effort to get off the couch... but I think that is part of the problem. Need to get them moving.
Rad number 7 today, like Sue Peet says... tak it over Chemo any day.
Enjoy the day
Karen
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Karen and Sue Peet, I'm also having the hot flashes and night sweats. Keeping from sleeping so my rad onco prescribed me paxil, he said it has been effective in some women. He asked if I wanted to try it and I said *#^& YES!!!!!!!!!!!! I start the paxil this morning so don't yet if effective.
I have been walking for about 30 minutes, legs are heavy while walking but afterward they are fine. So keep trying.
If I were still doing chemo today would have been the day, it felt so good not having to go in.
I'd rather have a sunburn or chafed boob over feeling like crap and not tasting anything but salt.
Have a good one.
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hi gals!
sorry i've not been online lately. my hair is growing back too, but dark fuzz. i guess the blonde happens after it's been in the sun a while. i might go get some Garnier Nurtrisse to help out. I never got my bathroom painted yet - because all i've been doing is watching this AWESOME TV! someone should have told me how addictive it is to lay in bed all day and just flick around from channel to channel. i have to make myself get up to take the dog out for 1/2 each day. good job i have him! And it doesnt help with the 8 lbs to lose, as now i have more time to munch on snacks. Ach!
Anyway - wanted to tell you all that I went to Vancouver Oct 18-21 and saw Celine Dion on Monday night in concert. It was amazing!!!!! It has always been one of those things on my list to do and I am so happy that I did it. I wanted to see her in Vegas, but those 5 years are over already, so i'm very happy she's doing a tour. WOW! She can sing! And those legs! I think I'll start walking 45 minutes every day.
I was hoping rads would be better than chemo for you all as it was for me. I'm glad to see I was right. It's over in a flash. I am still not on any meds. Chemo stopped when I was in the hosp. and although med.onc wants to start a different kind, DH and I are looking at a cleansing/detoxing clinic in Tiujana run by a Dr. Castillo. I feel it has good vibes; and he came to our little town of High River (1 hr south of Calgary) to speak last week. There are several people who live here who have participated in his programs and they are doing quite well - all of them! So, I may be off to Mexico in November. Mmmm....coffee enemas, aren't I lucky?!
So there's lots going on for all of us but I still love to hear from you all!
many hugs xoxoxo
Love, Light, Laughter,
Choc.
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BTW, how do I add photos without changing me avatar? does anyone know?
LLL, Choc.
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Marking my spot. Only one more chemo to go. 6 days and counting... Fuzz on my head, half my toe nails are gone, finger nails are flat, total of 3 eyebrow hairs and 4 eyelashes. Legs feel like lead and i am trying to get up and walk around every so often. It is too cold and dark now to take my evening walks. I hate cold.
choc, I have a macintosh, and pictures do not work so good. Someone told me to click the icon next to the smily face above the "reply" box. I am sure someone else has details for you.
Have a great day and weekend. HUG, Nancy
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Wyoming..isn't it great when it comes to chemo day and you don't have to go... I love it.
Choc.. glad you are doing well. I wondered what was happening with you as you had not posted in awhile. Mexico in November sounds good. I don't know about the coffee enema though??
Nancy.. great news.. one more to go and what a relief. I don't think I have any eyelashes.. I am colouring in around the few brow hairs I have.
Hoping everyone else is enjoying the day
Karen
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Marking my spot and hoping for a good weekend for all. Hugs, Nancy
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The weekend went too fast...Wyoming, I start rads Tuesday so I'm right with ya. To all of you....have a wonderful evening....I will post more tomorrow. Too tired and already settled in watching the world series. Hang tough all....HunkyD
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Introducing Eli James 6lbs 7oz 20 inches long and perfect in every way! We are both doing well and are very happy to be home. The recovery from the c-section was much easier since I had the hysterectomy and ooph done at the same time. I'm not looking forward to the hot flashes, but am glad that the risk of ovarian cancer has been reduced!
If someone will tell me how to add a picture, I would love to show you my boys!
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Congratulations.... nice name. Sorry, I have no idea how to post pictures.
Enjoy your day
Karen
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Ellie, I don't know if I can help you very well for pics but try this
Go to:
http://register.photobucket.com/
Register....Its free. Then when you login there will be a prompt to Upload Images and you click on choose files. Browse to where your picture is on your computer. After your picture is uploaded to photobucket you will see the picture, and several options below the picture as follows:
Click on Direct Link and that copies the picture to the clipboard. Then when you come back to the post a reply window at Breast Cancer.org and you are ready to paste that picture in....click on the little green tree up by the smiley emoticons and where it says image url put your cursor in there and just hit [control c] and and it will automatically paste in the url in from photobucket. Give this a whirl.....it is not that hard but might take you some trial and error. Anyway...give that a try. I'm not very good at explaining.....would love to see the boys though! HunkyD
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Ellie.......Sorry if the above post confuses you....with chemobrain and the possibility you are on a smidge of pain medication...don't feel bad if you can't follow the instructions. I know you are as happy as a clam right now. I am so happy for you that everything went well....congratulations and good luck with the little ones. XXXOOO HunkyD
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Ok, so I am going to give this a try:
My 2 little men
And Eli James
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Congrats Elliemae. Thursday is my last chemo, but surgery looms in the near future. One step at a time. HUG, Nancy
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Congrats Elliemae!!!! Both boys too cute.
ChocolateLover glad you had the chance to see Celine Dion, I would like to see her in concert.
Nancy, I have no bottom eyelashes but about 10 on top. Eyebrows are light so I darken them up. Nails are doing fine. Good luck with your lasts chemo.
KKing, I'm so glad that I don't have to go to chemo. When 21 days had passed from my last chemo and I didn't have to go I was sooo excited.
Hunkydory, rad is so much easier then chemo. They marked me up with markers to use as guidelines but most of it washed off. It doesn't take very long which is nice. I have to have 38 rad treatments, one down and 37 to go.
Good luck to everyone and have a good day.
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I am confused about rads. Since I had dose dense chemo pre surgery ( last one is tomorrow ) and the tumor has shrunk drastically -- and surgery will be discussed Nov 6, I am wondering what additional benefits are with rads, as opposed to more chemo. There are many who have surgery, then chemo - some also rads and some not. Can anyone shed some light on this? Thanks for any info you have.
My finger nails are sooooo ugly - an sensitive --- brown stripes and dead parts where they appear to be lifting off the nail bed. Good thing I am retired and do not have to get out there every day. How long until they return to "normal", if there is such a thing. My toe nails lifted off the nail bed and onco said it was ok to snip them off to prevent any infections or problems. If only some of the belly fat would fall off .... !!!!!
Hugs, Nancy
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Nancy
I had a lumpectomy then chemo. They recommend the rad therapy if you had a lumpectomy in case there are still cancer cells within that breast. They radiate the whole breast and then the scar area just to make sure. The rad doc told me it would decrease my chance of recurrence in the breast by 15%. Got to go with it I figured.
As for the belly fat... another thing to deal with....
Elliemae... your boys are adorable.
Enjoy the day
Karen
Karen
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I am stage 4 and in June08 I developed a cough. I thought it was a cold from one of my kids. It's progressively gotten worse. I've had all sorts of tests and it does not appear to be a recurrence. However, it's escalated to the point that I'm on oxygen 24/7 because of the shortness of breath. I lose my breath just gettin up to go to the restroom. So, I've been seeing a pulmonologist and he has determined that my lungs and bronchoial airways are inflammed due to taking taxane's. He says the time to recover from this is variable from patient to patient and can take a few weeks to a few months. Has anyone seen/hear/experienced this. It's very hard to deal with having a 1 year old and 3 year old at home. I definitely need to be able to chase these little ones around.
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Elliemae - Congratulations! Your boys are both beautiful. I'm so glad that you had a relatively easy time with the c-section and that Eli is perfect!
Chocolate Lover - glad to hear things are going as well as they are for you. I hope that the treatment in Mexico works for you.
TinkC - when did you do chemo? I just finished in August and have had problems with coughs off and on before, so am wondering when I need to start really paying attention. I hope you are able to recover soon. I bet it is hard having two little ones to take care of. Wishing you all the best.
Haven't posted in awhile, but try to keep up with what's going on. I still have eyebrows and my top eyelashes, but all the bottom ones fell out - now I have short little stubby ones. I'm hoping that they will continue to grow and won't stay stubby. It's great being done with chemo. I'm actually starting to feel like my old self again.
Hope everyone is doing well this week.
Kathy
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Nancy -
I too am having neoadj. chemo, and surgery. There are several reasons why radiation can follow chemo & surgery. The first being if you have any lymph nodes involved - rads. are a given for lymph node involvement as well as, if you have a lumpectomy. There are also some benefits to radiating a mastectomy site to reduce recurrence. Did your doc. talk to you about rads. before you started treatment? My doc. did so I knew I was going to get the smorgasbord of cancer treatments. Still have 7 more weekly infusions left - oh boy!
Ellimae - Those babies are beautiful.
Chocolate Lover - Glad to hear from you. Was worried when you didn't post.
Rover
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hi y'all
TincC; I'm stage 4 too; I've had breathing issues for some time now and take a steroid type anti-inflammatory. It helps alot! perhaps your Doc can prescribe something along those lines to help you too.
Unfortunately, my tests do show tumors around my esophagus, but I'm happy that your tests are negative in that regard. I stopped chemo becoz the disease progressed even while taking taxol. so, one day at a time. goodluck.
EllieMae - all I can say is beautiful! Just beautiful! congrat's.
My first day of tx in Mexico is Nov.11. I'll be keeping in touch as rads progress for you all. Take care.
xo Choc -
Hey Junies.
Glad to see that everyone is still posting......I do love hearing how everyone is doing........Elliemae......congrats.......your boys are gorgeous.......hope everyone continues to do well with their treatments......Choc.......good luck in Mexico.......please let us know how you are doing through that.......Tinc......fingers crossed that your breathing issues resolve soon.....
I am feeling good.....almost great.......have been putting in lots of time on my eliptical and am feeling strong........lost 8 pounds so far.....fitting back into my size 6......would love to lose 8 more before surgery.......I have my date set.......December 15th........will have to be super organized and have all the christmas decorating.....shopping and wrapping done early this year.......will feel like a challenge.....I can do it.
Is anyone here on Herceptin only.......I am finding it very easy to tolerate.......but have broken out on my chin......I don't like it......I have read on another thread that this seems fairly common.....anyone else?........don't want to deal with this for a year........tamoxifen seems easy too.......but having some sleep issues......anybody else?........what's working for you......I just want to sllep like I did before BC.......
Cheers to all
Jax
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Jax, glad you are doing OK. Losing 8 lbs...wow!! Do you ever get off of the eliptical? Maybe thats why you can't sleep.....you are still pedaling when you go to bed. HaHa! I know...I made a real funny. I got a prescription for Ambien when this whole mess started. I don't take it that often or if I have had any wine or beer. I also have the Ativan (Lorazepam) prescription from chemo which I find makes me sleepy too. Ask your onc for something. You need some rest especially with xmas ahead and your surgery coming up. You will probably really be busy this month getting ready. I don't start tamoxifen until after rads are done.
Cute, cute babies Elliemae...need I say more?!!!!
Nancy....are you done yet? Wasn't today the final? Yippee!
Wyoming....I have 3 rads down and 30 to go. That is a lot but something I just have to do with the all my positive lymphnodes. Hope yours are going OK.
Chocolate...good luck in Mexico..keep in touch if you can get wifi there.
Rover....hang in there. You will get done. BBLady and Tink...I hope you get rid of the coughs..and KKing, SuePeet and all the rest of you I missed, hope you are all well. I would like to sign off by saying....I NEED SOME DAMN EYEBROWS AND SOME DAMN HAIR GROWTH?
P.S. Didn't mean to offend anyone with the flavored language.....HunkyD
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HunkyDory - legs still sore - once I start waling on them it goes away but I spend like4 hours in a vehicle evey day going to rad treatments - when I get home I am too tired from sitting to do much! Nasty circle! Now I have some eyebrows starting to grow back which is great because I was not good at drawing them! It is funny though I never lost the har on my arms - mre hair there than on my head!
My rad onc told me not to take tomoxafin until after finished rads as there was research that indicated that if you do both at the same time it increases chance for lung cancer! Yikes - so will start after I am done rads - have done 9 out of 16 so far - by next Friday will be done all my treatments. Have a nice bit of fuzz on the head - yes it is dark - but was told will lighten up as it gets longer -as I was a blonde before all this started wuld like to be again!
I can't get an avitar to work - it won't let me! doesn't like my picture config or something - help?
Ice cream doesn't help lessen the night sweats or hot flashes but it makes me feel better! I have had a few nights where I slept better - I think you need to drink a lot of water?1 Will try that theory out and report back!
Beautiful babies Elliemae -
Chocolatelover - good luck in Mexico! - boy need to learn to type - no spell check sucks!
Everyone else hang in there - the light is starting to shine at the end of that tunnel!!!
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Chocolate...I just Googled Dr. Castillo. This is the site I hit....hope it is right. http://www.drcastillo.com/ Sounds very interesting. I read through some of it. How many days will you be there? Keep in touch with our group. HunkyD.
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Hi,
YES, HunkyD, that is the right site! There is a woman that lives in the same town as me; she had stage 4 BC with mets to bones and liver; her Doc only gave her 3-4 months but she did Dr.Castillo's program 4 yrs ago and she is in remission still. I am keeping my fingers crossed (even my eyes; if that will help) LOL. I totally believe in whole body health and this clinic treats body, mind, and spirit. I've spoken to 2 other people who also had positive results.
The regime is 21 days of tx but not on Sundays so it takes 24 days to complete. I stay in San Diego and there's ã shuttle across the border each day from the hotel. Hopefully, I'll feel good enough for some swimming and shopping while there. I'm sure the weather will be nicer than Canada in November. Brrrr...
I can't complain 2 much - its supposed to be 18C tomorrow in Calgary! that's about 67F for you US gals.
ok, ttyl8r,
stay warm all,
Choc. -
>>> Change clocks this weekend: http://aa.usno.navy.mil/faq/docs/daylight_time.php
I had last chemo yesterday after onco visit, konked out till 5 am and up and raring to go bite off heads or whatever it takes to get thru the day... lol... My son is leaving work early to take me for a late lunch, but I will not grump at him - he is too sweet.
I discussed rads w/oncologist yesterday and she thinks mammosite is better for me with my heart damage fears. Says is it more precise and to discuss w/surgeon and then rad oncologist. I am taking it one step at a time, but seems the ladder got a lot higher to get to the top or is it the bottom ?? ...
I will do a follow up MUGA and ekg before surgery and see how my heart is holding up. After dose dense A/C it remained the same, so I am hopeful and the numbers were excellent. Also, my blood counts are in excellent range, again good news now that chemo is done.
Anyone else feel we should get an "honorary" medical degree? I was teasing with the chemo nurse and she agreed.
BTW, the tumor is hardly palpable, onco had to feel around a lot and says it appears almost gone and was too small to measure.
Thanks for listening to me. Good luck to all for a great day and good weekend. HUGS and Blessings, Nancy
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Glad to hear everyone is doing well. Chocolate... best wishes when you go to Mexico, keep in touch.
Hunky D.. I concurr... with the hair growth.. ugh
Jax.. nice going on losing 8 lbs... now if I could only stop eating everything... hoping I get motivated real soon
Sue Peet.. I read what you said about Tamoxifen... my rad doc is okay with me takingit. I have been on it since Oct 1st. Hope he is right???
Just did number 13 rad, breast is swollen and a bit pink but no real discomfort. Much easier than chemo....for sure.
Happy Halloween...enjoy your weekend
Karen
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