FlaLady

Hi ladies,

You find me at a low point tonight...I hurt so bad and I can't sleep.  I'm taking stuff for both problems but nothing seems to help.  I had nightmares for the first time since my dx of my disease every where at once.  I skin is progressing at a unbelievable rate. Scary part is it moving up my neck. Vicki thank you for the note about Aldara.  I will have him look into it. I may be sent to a wound clinic because of a open wound over my scar about the size of a half dollar.  I just started on Ixempra with Avastin last Friday and my hands are killing me already.  I just tried to hold a book to read and found it too painful. My oncologist told me my tumor has made my chest wall "hard as a rock" and that the chemo will have a hard time getting into this area.  Just lovely.... There has to be a way to make the tumor softer to get inside it?? This is the job of Avastin but it does not seem to be working. I asked about hyperthermia and he said no even after I found a trial that said it did help.  I may have to do my own home work again.  I still feel like I'm doctoring myself. If no one else will look for options I guess it's my job....

Girls...I'm in need of some powerful prayers. I am working on a book about my cancer journey.  This horrible time helps me to remember what it felt like when I was original dx TN (basal), IBC, Stage IIIc, 25/27 nodes positive, I remember thinking that I hit every bad catagory that I could but, I would not let this disease take over my life.  I have been very blessed with so little side effects from chemos and treatments.  I hope to be able to continue writing if my hands do not make me set aside this goal.

Vicki- I'm sorry you are having progression also...How is this new chemo? I'm glad you made it to Florida and got to do the parks.  I hope to get there within the next week or so before my feet get worse.

I will find hope in the middle of this d*%* disease! (as you can see I may be down but I'm not out of this fight yet!)

Flalady

Most Precious Mighty Loving God

I lift up to you your daughters who are suffering from a terrible beast.  Father, give them peace that passes all understanding.  No matter what the answer is to each of our prayers, may we always remember that You are there for us.  May Your Holy Spirit encircle each one of us throughout the days and the lonely nights.  May we feel the wonderful hugs each of these women have for each other - even over the internet.  As we see our friends gaining and losing ground may we not waver in our prayers.  May we continue to trust You no matter the result of this nasty disease.  Father, I also lift up the families that are living through this with their loved ones.   Give them the peace and comfort that they need.  And, mighty God, may those of us who have and are experiencing callous, uncaring, terrible, terrible, doctors and those who work for them ... remember to pray for them .... then shake off the dust and find someone whom they feel comfortable with.  Thank you Lord for the gift of life itself.  May we never forget that we all are dying - even those who do not have cancer - may we remember to tell our families how much we love them and find the goodness in those who surround.

Amen

Thank You KPolasek for your wonderful prayer.

VickiG - Thanks... I don't know if my doctor will let me use it but I would love to try it on my arms. I have a place right where my lymphedema sleeve needs to sit.

Flalady

Oh, gosh. 
I've been away for a few days, but Flalady, you know how I love you.  Sending you a huge WHOPPING dose of support from IN. 

Same goes for everybody else here!!!!  

Hi Flalady-

I keep you in my prayers and hope that the Ixempra will help and the side effects will get easier. One suggestion for your journaling - if writing at the moment is too painful, try recording your thoughts.  Later you can transcribe them or have someone do it for you.  

I also have a lot of tumor in chest wall - but not heard that it can become hard as a rock.  Yuck.

Geez, Flalady, sorry I didn't see this post before I say anything on the Ixempra thread.

Just like everyone here, we'll be praying and holding our breaths.  I certainly hope for a huge response!!!

Vicki, thanks for posting.  I'm also glad that you & family were able to snibble in some much needed getaway.  I wish you the best results with Navelbine as well.