time for me to tell my story

Sons4Us
Sons4Us Member Posts: 35
time for me to tell my story
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  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Hello ,

     I have been reading posts in this forum for over a month now.  I have seen through your posts how wonderful you women are.  You are my heroes..you truly are..I was hesitant to write on here because I thought it would make my diagnosis all too real, but I realized I HAVE to talk about it. It IS real and I need to let it out in order to start to feel better. This journey is a scarey one for me and I need all the support I can get..My anxieties have been through the roof..

    I am 40 years old..In August an area of concern showed up on my mammo..On Sept 4 I went for a biopsy and on Sept 5 my entire life changed.  I was diagnosed with IDC (0.4mm) -- ER+Pr+ Her-    At the time I didnt realize how fortunate I was that it was a small tumor-- the surgeon removed it and I went back into surgery on 10/7 to check margins and lymph nodes. Thank God everything was negetive.  Monday I will meet with the rad onc to discuss radiation and I will also be starting tamoxifen.

    It has been a month and a half since my diagnosis..  I have lost 11 pounds..I couldnt eat, I couldnt sleep, I couldnt focus..Im sure each one of you have felt the same way..My heart goes out to each and every one of you who have faced this..especially to those of you who have gone through chemo or are awaiting chemo..and also to those of you who have lost one or both breasts to this nasty disease. 

    Physically I am okay..My breast is sore and I have aches and pains all over due to stress..this I know will pass but mentally, I am a complete mess. My mind races throughout the day and I am so exhausted from all the thinking I do that I fall asleep quickly at night..I usually wake upo around 4:00 shaking..Actually the shaking has subsided since I got the results back from my surgery.  That was the worst time for me and for most of you as well (see how much of these threads I've read!)

     I have a wonderful husband who has not left my side since day 1..he is my rock and I am truly blessed --  I also have 3 beautiful boys--

    I just need to hear how you wonderful ladies stay strong --I My mother passed at 54 from lung cancer and she is the one I need in my life right now-- she should be the one to tell me that I will be okay and it will get better but she is not.. this is why I need the strength from all of you -- Im part of your club now !!!

    Im looking forward to hearing from you --  actually I cant wait to hear from you!

    Love,

    Dee

  • Marple
    Marple Member Posts: 19,143
    edited October 2008

    Hello Dee,

    I'm sorry you've had to join our group here but you have found a wonderful place for support and information.  I remember reading posts long before I ever signed in.........and actually I started in the chatroom.  It took me a while to figure out the boardsEmbarassed.  Maybe one thing to ask your Dr. for is  some medication for anxiety.  It just might help you get through the rougher times. 

    Thankfully you have a supportive family.  That is a big plus.

    Hang in there kiddo, the end of the tunnel is in sight.

    Hugs, Sharon.

  • Emily2008
    Emily2008 Member Posts: 605
    edited October 2008

    Hi Dee, and thank you for sharing your story with us.  It's so important to get it all out there.  I'm 36 (35 at dx) with a wonderful hubby and 3 boys, as well.  My journey has been different from yours, in that the lumpectomy I had at first revealed more areas of cancer, which resulted in my decision to have a mast with recon, and my onc's recommendation to have chemo.  I'm knee deep in it right now and it has been tough, but I will get through it. 

    I'm glad you posted and I can well identify with your anxieties.  4 am seems to be my time to wake up with a head full of rushing fears.  What if there's more? What if it spread?  What if it comes back in my bones, lungs, brain?  What if, what if, what if???  The only way I know to calm those dreaded what ifs is  through prayer.  I am a Christian and I draw my strength and peace from my relationship with Christ and support of wonderful friends.  When I can remember that I am in His hands and that He loves me, I am able to relax more.  Some use anti-anxiety meds for a period of time, too, and that has helped them.  I've not needed them but would not refuse them if I was at that point.  I'm so sorry that you don't have the support of your mom to tell you it's going to be alright.  But know this, it's going to be alright!  So many women, far more advanced than us in terms of diagnosis, have gone on and are leading happy, healthy, full lives 5, 10, 15 and even 20 years out.  We will join their ranks! We can do this!

  • prayrv
    prayrv Member Posts: 941
    edited October 2008

    Dee,

    I know what you're going through adn you will get through this time, I promise.  I also started out in the chat room like Sharon did.  You may find that to help you as well.  I sent you a pm.

    Gentle Hugs,

    Trish

  • koshka1
    koshka1 Member Posts: 678
    edited October 2008

    NY...

     Many hugs go out to you...

     I am 39 years old... I had my first mammo last october,,,found an area of concern..and lo and behold a tiny 4mm idc and a 1mm idc!!!  I am almost just like you.

    I had a lumpectomy, and radiation and I have been on Tamoxifin since May.

    Please hang in there...Try to eat and keep up your strength...you need it for the radiation treatment and you need it to beat this cancer thing.

    Trust me.....I was a total wreck when I was diagnosed, sometimes I still am.  But most importantly, there is life after breast cancer and you have to live it...and you have to live it as healthy as you can.

    This is a great place for support..both the Discussion Boards and the Chatroom...pretty much saved my life.

    Hugs to you!!

    Kosh

  • prayrv
    prayrv Member Posts: 941
    edited October 2008

    Dee,

    I know what you're going through and you will get through this time, I promise.  I also started out in the chat room like Sharon did.  You may find that to help you as well.  I sent you a pm.

    Gentle Hugs,

    Trish

  • pinoideae
    pinoideae Member Posts: 1,271
    edited October 2008

    Dee, I am sorry you have had to join not only the people affected by cancer club, but also the cancer club itself.  It is always sad to me when I hear a new person is diagnosed.  In Canada in 2008 it is estimated that 22,400 women will be diagnosed with breast cancer (1 in 9).  Think of being in a crowded shopping mall, chances are some of the women there have been diagnosed with breast cancer, so you are not alone.  When I was diagnosed with bc there was no history of it in my family, and no one I knew had breast cancer.  Since then, I met many breast cancer patients at the cancer hospital.  Also, I know three wonderful women who have been diagnosed with bc (one whose cancer came back once, and one whose cancer came back twice), and all are fine today.  Your prognosis is good Dee.  I know it is a tough thing to go through, but you will get through it.  I wish I had found this website a long time ago, it has been very helpful through my reconstruction journey.

  • FLtricia
    FLtricia Member Posts: 140
    edited October 2008

    Hi Dee,

    I agree that you should ask your doctor for help with your anxiety.  Ativan worked for me.  I took it at night and it was what let me sleep through instead of waking up to horrible thoughts.

    All you describe is normal.  The anxiety, fear, etc.  I am two years out from diagnosis, and every once in a while I still have an attack.  Those wonderful ladies further down the road say this happens less and less as time goes by.  I stop myself when the negative thoughts start and ask God to help me remember He is in control.

    The best advice I can offer is, for the time being, take one day at a time.  Try to focus on what you can do to be as healthy as possible.  You caught your cancer at an early stage, treated it right away, so you have every possibility of never dealing with it again.  Focus on that positive. 

    We are in a wonderful season of holidays, enjoy them with your wonderful husband and beautiful boys!

    Best wishes and blessings to you!

    Pat

  • Maryiz
    Maryiz Member Posts: 975
    edited October 2008

    Dee, I can give you some advice as I was an emotional wreck 2 years ago when I was diagnosed, no family history, athlete, felt great, playing my best tennis.  Anyway, fast forward two years, I do pray often, for me, it is reassuring and comforting. I also take Lexapro, it helps with my hot flashes and with my difficulty sleeping with no adverse effects.  What you can think of is this, you caught your cancer very early, you have great prognostic factors, ER positive, PR positive responds the BEST with hormonal therapy of all of the receptors.  Next wold be ER positive.  I think if you can imagine your future with your children and husband, summers at the beach and many holidays ahead of you, you will do better.  Focus on the carrot.  You are actually in a very good situation and have the ability to look forward.  Bear down and get throw this nasty period.  You will look back and value your family and friends that have walked the walk with you.  Stay well and PM me any time if you want.  Maryiz

  • VickiTN
    VickiTN Member Posts: 361
    edited October 2008

    Hi Dee,

    I rarely come to these boards any more (it's been almost 3 1/2 years since my diagnosis), but, I check in occasionally just to check on friends and offer a word of encouragment to the newly diagnosed. All of the fears and worries that you're experiencing right now are very normal. When I was first diagnosed and after completing my treatment, it seems that not a minute went by that I wasn't thinking or worrying about breast cancer. I never believed that there would ever come a day that my life would get back to some sort of "normal" again and that I wouldn't be living with the fear of a recurrence every day.....but, here I am...three and half years out and I can honestly tell you that weeks and months go by that I don't even think about breast cancer.....The mental part of it was the worst for me....trying to learn how to live with the fear of a recurrence....but, I promise you that, with time, the fear and the worry does get better....Just allow yourself permission to acknowledge your fear. I think I tried to hold my fear inside and it seemed that once I let myself honor my fear, then, the fear began to lessen.....Hang in there.....you WILL be okay and your life WILL be great again.....

    hugs,

    vicki

  • Ivylane
    Ivylane Member Posts: 544
    edited October 2008

    Dee:  Once your treatment plan is in place I think you will feel a little better.  I am a 2 time 17 year survivor and I know how scary getting this dx is. Hang in there, it gets better and the women on these boards are here to help or just listen anytime you need one of us.

    Hugs,

    Maureen 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Hi Dee:  Everything you're feeling is normal - it's OK. We all deal with this diagnosis differently emotionally - I'm glad that you've decided to post. Sharing your story really does help.  I'm glad your cancer was found early ...  mine was too - though mine was 9mm and had similar characteristics to yours.  I was 44 when I was diagnosed a little over 3.5 years ago. I'm doing well ...

    Have your doctors ordered the oncotype DX test ?? It's a valuable tool in that it is a genomic test which which would help to understand your risk of recurrance over a 10 year time period. The test is useful to help decide if you will benefit from chemotheraphy or not.  

    I'm really sorry you had to join our club - but glad that you've found us here.  Let us know how we can help! 

    Hugs,

    Doreen  

  • KPolasek
    KPolasek Member Posts: 184
    edited October 2008

    Dee,

    Walking in cancer shoes is no fun!  And, your life will never be the same.  But, if you can find some positive things to concentrate on -- like it was found BEFORE a 6 month or less to live diagnosis.  It's hard, I know.  I have used the anti-anxiety meds and sleep meds when needed.  My doctor told me that it is very important to get my rest, so I gave in.  Right now, all the commercials on TV are talking about Oct being breast cancer month .... so that makes me think more about it.  But, I no longer feel sheer panic. Hang in there .... I believe that your mother is with you, rest in that knowledge .... maybe not physically but she is in your heart and mind.  And, if she was here, she would give you a hug and tell you it's going to be okay.  HUG!

    Hang in there .....

    I am facing a potential re-occurence ... I was diagnosed 10/22/07, lumpectomy 11/1, chemo 12/26 and then rads, 33.  They will be doing an MRI soon.  But, I am not freaked out about it ... I am concerned.  Why?  Because I am living each day as if it is my last, telling my kids that I love them .... and my grandkids ... and my husband .... and other relatives.  Things that used to bother me don't anymore ... I pick my battles and relax more.  I am glad that I have had a heads up ... it has given me a whole new perspective.

    Blessings,

    Kay 

  • nixieschaos
    nixieschaos Member Posts: 130
    edited October 2008

    Hi Dee,

    Oh my gosh I know how you feel. I felt like I was going out of my mind waiting for the lumpectomy then the results. Then the follow up scans, and my news just kept getting worse and worse. So here's what saved me. My anxiety was from the lack of control I felt. I have known how critical a truly healthy diet was, but made a choice to ignore what I knew to be true. Until the day of my lumpectomy. I decided that I was going to change my diet. So I searched sites that told me what to eat to kill my cancer, and sites that told me what to avoid. I searched alernative treatments and found the motherlode. I took control. I wasn't dependent on doctors to save me. I knew I could save myself (with a little help from the chemo). From the moment I began taking matters into my own hands, I have not felt any anxiety. about a month ago, I thought my cancer was back in my breast. Even then, I didn't feel like I was out of control. I just said, "If it's back, I'll deal with it!". By the way...I was diagnosed a year ago Stage IV IDC mets to the bone. I am clear...Just found out from two dics. Am getting confirmation from the third Mon or tues. Do what you need to do to get control of your life. This is a challenge, but you will get through it. I will share anything about my last year and my successes that you want to know. I hope to hear from you!

    Steph  

  • Onehalf
    Onehalf Member Posts: 171
    edited October 2008

    Dee-

    I was just diagnosed in September, actually one day before my 48th birthday. The first day I cried, then something came over me....I said to myself I will not let this ruin my life. This will not control my life.

    So I just take each day at a time. I keep in mind that, having breast cancer does not mean death. It only means I need to do things differently....now I will have more doctor appointments then I have in the last 10 years, Tongue out but oh well!

    I keep in mind that at least I have a chance.

    I do read post on the board, but I will tell you that if I come upon a post that is in the negative, then I will skip over it (for another time....sorry to those women) but right now I need to keep my mind positive. And if I do read something that scares me, then I remind myself that we all will experience things differently, even if we have the same treatments.

    I'm a believer in positive thoughts.....healing begins with the mind.

    As the others have said your fears and feelings are very normal. But don't focus on the negative...remind yourself how truly lucky you are.

    With that I will tell you that going through this right now (Month of October) has been hard as it being Breast Cancer awareness month. Every place I go, viewing television, shopping, Everything is Pink Ribbons.....So when I am asked to donate at a store....I politely ask the women at the cash register..."have you had your mammogram lately?".

    I am now spending my time on my new hobby....that is to spread the word of the new education I have been forced to gain....I have three co-workers, that have not done mammograms in many years, that have just gotten them done. My own sister....because of lack of medical coverage has not had a mammogram in years. She was just seen at a City Clinic and had her mammogram done ( she's older then me).

    I feel better sharing my information and hoping to help others. The key is early detection, as we are ALL proof of this.

    Dee- Go ahead and work through your fears...but don't let them rule your life. You will find your path through this. Hang in there and take care.

    Denise

  • farila_1966
    farila_1966 Member Posts: 224
    edited October 2008

    Hi Dee,

               I am 12 year survivor now. I still clearly remember those days when I was freaked out with my DX. I was much worried about my two kids who were very close to me because their father worked away in a different country and they saw them only on holidays. Actually my 11 month daughter had yet to meet him. I was worried about many things but foremost was what would happen to my kids? I went through radical masectomy, chemo etc which left me in a physical and emotional mess. Finally one day I decided I needed to smile more and enjoy life so went out and sought counseling help from a center called Helping Hand. In India the doctors do not much pay attention to the emotional part of treatment. The counseling helped me lot and I changed much after that. I ended taking a course and becoming a counselor myself.

    Now 12 years later I relate well with other bc survivors and think of them as my sisters. But then there are days when I totally forget cancer.. and at times I could kick myself for not using the cancer card just because I did not remember. 

    I am glad that you have such a supportive family and your better half is your rock. My HD was a rock too but in a different way. He was like a rock ...not moving, not feeling etc LOL.

    I am not much religious person but I do pray often and that helps to cope with worries.

    I hope you will find peace and live long to be survivor to help others who will come to this board..

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    WOW-- what a great bunch of women you all are to respond to me so quickly..

    Sharon,Emily,Prayr,Koshka,Smmer,Pat,Maryiz,Vicki,Kay,Steph,MAureen,Denise,Farila- THANK YOU SOO MUCH !!   Ive seen most of your posts during my visits and I cant believe you are talking to ME -- and making ME feel better.  These words of strength mean so much to me and I am trying my hardest to stay positive and to keep those negetive thoughts away.

    I do take Xanax when needed..At first I was taking them during the day, but the days have gotten a little easier, its during the night is when I need it the most. 

    Im not a very religious person..I do pray a lot..a lot more now !  But my shock has blocked any and all faith I did have.. Its coming back slowly.. 

    I have heard that having a small tumor and my er/pr status are all very good signs-  I am so thankful for that-- that is what gets me through most of the day.  Ijust cant wait for it to get easier.

    Warm regards-- and a million thank you's again..

    D

  • donnatom
    donnatom Member Posts: 12
    edited October 2008

    Myheart goes out to you, Dee. I remember so well the fear and anxiety all the way from the mammogram to surgery and radiaiton. I am 7 mos. out now and feeling fine - taking tamoxifen. You can do it. But--- for me the anxiety is back again. My husband was diagnosed with breast cancer last month. He had surgery and his lymph nodes were clean. He finds out what his treatment will be Thursday.I wonder what the statistics are for both husand and wife having breast cancer (both in the right breast and on the same side). My husband has a wonderful sense of humor and was telling every one he met that he had breast cancer and he "caught it from his wife...." Needless to say, it brought on a few laughs and giggles. A sense of humor has helped us so far to look on the light side of things. My prayers are with you,

    Donna

  • irishdreama
    irishdreama Member Posts: 938
    edited October 2008

    Dee, you certainly came to the right place, but so sorry you have to be here. My thoughts and prayers are with you. I think it's probably normal for a lot of people to question their faith when they get diagnosed with any potentially life-threatening illness. I had several conversations with my priest, which did help, and I know for sure that talking to him helped my daughter, who was 8 at my diagnosis. I was very concerned about her, because I had taken care of both my parents at home, and both passed away there (different years) but both died from cancer. I knew that my daughter, Aislin, would have a very difficult time with my diagnosis, but she really was a little trooper, especially during treatment. Let people help you in whatever ways they want during the hard times, and take care of yourself! Jeri

  • msphil
    msphil Member Posts: 1,536
    edited October 2008

    Hello sweetie, i,m so sorry U had to join this kind of group,but here we all have been through and are going through,so we can be here for each other. I had a L mast., with reconstruction, that my body rejected, so I now wear prothesis, which I wish I had done in the first place, I also had chemo, radiation and Tamoxifen for 5 yrs. I too have a wonderful husband who also stood by me, my rock, and I want to tell U and ALL going through it now, I am NOW a 15 yr SURVIVOR this december(Praise the Lord), so hang in there ladies, it does get better, I,m an example. I pray for us always, and include U all as family. God Bless Us . msphil

  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited October 2008

    just wanted to pass out a few prayers and hugs.  when I was dx'ed with stage 4 in January is i forbid myself to think about cancer in my bed.  If I started to think about it about the future I either had to stop RIGHT then, or get out of bed until I could get things under control.  Once I had that down, I expended it to the whole bedroom, then to the whole upstairs.  It took a few weeks, but it felt SO good to be in control of my brain.  It was hard work, but very worth it.

    Find some books on tape that are not on your "read me NOW" list.  Something with a good story, but no big attraction.

    Deb C

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Donna, I cant believe your husband has been diagnosed..it seems so unreal..but he has that humor that will get the BOTH of you through this crazy time..

    MsPhil--15 years !!  YES!!  Way to go!!  God has blessed you !!  I love hearing all these positive stories..  I know it will get better for me, I'm just an "in control" kind of person and this just knocked me off my fee-

    Thanks Jeri and Deb for your hugs !  It means a lot that you ladies are taking the time out to

    talk to me..

  • Marple
    Marple Member Posts: 19,143
    edited October 2008

    Deb C.  That is an amazing idea, not allowing yourself to think of cancer in bed, then in the bedroom and so on.  It could be applied to so many things in life. Thankyou for the great idea.  I'm going to try it.

    Dee, this is what's so great about these boards! 

    Hugs all.

    Sharon.

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Yes, Sharon, these boards are wonderful..

    I will try that as well, I just hope my mind agrees to it ! Im not as strong as you all are yet..but

    I will surely try !

  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited October 2008

    Hi there Dee and welcome!!

    You will do just fine, and have the support and hugs of all of us!

    In another thread, we were talking about how when an elephant falls down, she is at great risk from predators--sooooo--when the other elephants see one of their sisters getting weak, they all gather together around her and "lean" on her to keep her upright until she feels better.

    Think of yourself as being surrounded by a herd of "elephant sisters" ready to stand beside you and hold you up whenever you feel like you might fall. . .

    Thanks for sharing your story--we all know how you feel, been there, done that, and as you see, as time goes by, we go on to live happy, wonderful lives!!

    Bigs hugs to you!

  • Westie
    Westie Member Posts: 89
    edited October 2008

    Dee, I just read your post.  Please make sure you are getting enough anti-anxiety meds.  You don't need panic attacks on top of this.  Your tumour is very small, you have no positive nodes, and will be able to take Tamox, if recommended.  It'll be O.K.

    Remember, your mom is always with you.  You are part of her and she is in your heart.  I 'talk' to my deceased mom frequently.  I know what she would say and so do you with your mom.

    Please keep us posted.

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited October 2008

    Dee,

    Welcome to the sisterhood!  While it sucks to be here, the people are wonderful and have helped me through some difficult days. I can really relate to your missing your mom when you needed her most. 

    It took me more than a month to realize that my very best and oldest friend would be the perfect shoulder to have that "mom-reserved" cry with.  Just this past Sunday, we got together, just the two of us, and I bawled like a baby and the release was just what I needed. So what I'm saying is find that person who you feel closest to and share your sense of loss about your mom and how much you miss her right now and you'll find the best shoulder in the world to have your "mom-cry". 

    Hugs from afar from another motherless daughter,

    Jo Ann in Maryland

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2008

    I so know how you feel.  I just found out I have IDC last Thursday-October 16.  They found the node hidden behind a fidroadenoma. Of course, I don't know if lymph nodes are involved.  I am considering going for a week of radiation instead of the six weeks.  They recommed it because of the distance I will have to drive to the hospital. Have any of you heard this.

  • Sons4Us
    Sons4Us Member Posts: 35
    edited October 2008

    Jrg-   I was where you are a week ago, before I knew the results of my nodes..  You will find out soon enough and move foward to the next step.

    Yes, I have heard of the one week radiation. I believe its called mammosite.. try looking it up online to get more info. 

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited October 2008

    Yes, I agree.  Very important to take this one step at a time.  Before I talked to the doctor, I figured I would get a bilateral masectomy, now after talking to her, I am considering the rads.  One step at a time.( Such is my mantra to keep me sane)

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