8+ years receiving weekly

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poemturner
poemturner Member Posts: 5
edited June 2014 in HER2+ (Positive) Breast Cancer
8+ years receiving weekly
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  • poemturner
    poemturner Member Posts: 5
    edited October 2008

    Six years of weekly Herceptin - cancer somewhat contained. Then last year bone scan and tumor markers indicated the cancer was spreading again.  I continued Herceptin and added Navelbine. For an entire year I was sick and I'm sure it was the Navelbine.  Stopped it in May and in June cancer shows up again so I began oral chemo - Xeloda and Tykerb.  I only took this for one month.  Hospitalized with dehydration and high blood pressure which turned out to be kidney failure.  Oncologist gave me about 6 months - got a 2nd opinion at Duke - they gave me hope and worked with my local onco to put me back on Herceptin and add Taxol. 

    Anyone currently or in past on Herceptin and Taxol?  How's it working?

    Any other new "cocktails" available? 

    Any other "long timers" receiving Herceptin for years? 

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited October 2008

    Feel free to join us on the mestastic site.  Many of us have tried different chemo regimes.

    I am on Herceptin and Taxotere. I have only been on it a few months. Just dx with mets. I did Herceptin 3 years ago.

    I think it is encouraging that you have gone so long with Herceptin. Wow. I am really inspired that it worked for so long.

    Janis

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  • AlaskaDeb
    AlaskaDeb Member Posts: 2,601
    edited October 2008

    Hey there - I am a trip-negative, so Have never had the Herceptin, but have had Taxol 3 different times.  It worked for me, but I got bad hand-foot problems and headaches.  About 3 months ago I asked to we switched from Taxol the Abraxane.  Abraxane is a newer version of the same drug they put in Taxol, but mixed with a different carrier.  It is more expensive, but my insurance never complained.  I have had way fewer side effects.  Good luck!  I love your second opinion!

    Hugs

    Deb C

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    I am almost 5 years doing herceptin.  I switched to every three weeks after the first year and 1/2 of weekly tx.

    I have a my echos regularly and so far so good! 

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