Anyone starting chemo in Aug. 08?

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  • Misty1
    Misty1 Member Posts: 272
    edited October 2008

    Girls,

    I heard that Robin Roberts will be on Nightline tonight.  I saw a clip she did on this morning's GMA show online.  Very touching and something that all of us can relate to.  She has added a new chapter to a book she wrote last year.  I have my DVR set to record it.  Thought you might be interested...

    ~Misty

  • alibug05
    alibug05 Member Posts: 182
    edited October 2008

    Well ladies tomorrow is the big day - LAST CHEMO - I am not sure I have ever been so excited for something!!!! LOL  Probably won't be on much after - I have a sports filled weekend ahead with volleyball tournaments and soccer tournaments!!!! Hopefully my body can keep up - if not my Mom will be there to help me (as usual!!!)  I don't know what I would do without her as the hubby works swing shift and can only help so much!!!!!  Hope everyone is feeling good and I will check in 1st thing Monday morning if not Sunday night!!!!!!!!  Loves to all!!!

  • mommy3abm
    mommy3abm Member Posts: 221
    edited October 2008

    Go Alibug!!!  I will be joining you on the caboose of this train on Monday!

    Stacy

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Hey, Alibug ~  I'll be routing for you!  I finished up mine yesterday, and I can't tell you what a relief it was.  I was hugging every chemo nurse and tech in the place, and honestly shed a few tears of immense relief when I got to my car.  I'd also brought a cake and thank you card, and the chemo nurses seemed really touched and appreciative, immediately cutting it and offering it to all the patients, too, which I thought was very typical of their caring spirits. 

    One funny (baffling) thing I overheard when I was there... A chemo nurse  was going over the usual 1st app't. post instructions with a very sweet, well-dressed, older black lady 2 chairs away.  Somewhere in the conversation, the woman (who was almost finished with her tx) actually responded to something the nurse said with, "Oh, is this chemo?"  Huh?????    

    Joyce...  How'd you do?  My main SE today (woke up early with it) is terrible acid (chemo)reflux. Haven't had that one before.  Always something interesting! 

    Stacy... Great news about your tumor shrinking so much!  I know you'll keep us posted on the app't. with your surgeon.      Deanna

  • Hood1980
    Hood1980 Member Posts: 537
    edited October 2008

    Congrats to all who finished chemo this week!  YIPPEE!  Yesterday was my last treatment and my only real side effect so far is the red face from the steroids.  I go for my neulasta injection this afternoon....that's usually when the SEs kick in for me anyway.  Hope all are well and enjoying the beautiful fall weather.  Get out and enjoy!  God bless you all!  Joyce

  • mommomjuju
    mommomjuju Member Posts: 12
    edited October 2008

    I also had my last chemo on Tuesday.  I still need to do the Herceptin.  The last two tx I have had problems breathing.  Has anyone experienced this?  I am glad it is over and I do not have to worry about SE anymore.  Now I am waiting for the hair to start growing but told it might take 8 weeks.

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Hi, mommomjuju... Congratulations on finishing up!  What chemo were you on?  Did you report your breathing problems to your onc?  If it's something that's continued for more than a couple of weeks, I would think he'd want to check it out.

    As far as the hair growing back, Sandra recently posted this link on the TC board.  It's a photo recap by another board member of a her hair regrowth.  The photos were taken 1 week apart.

    http://www.karinstack.com/images/hair/HS_grid.jpg

    Of course, everyone's different, but it made me realize not to expect too much too soon.

    Deanna

  • mommomjuju
    mommomjuju Member Posts: 12
    edited October 2008

    I have been on Taxotere and Cytoxin.  The first time it happened he did a chest x-ray and they thought I had pneumonia and put on 2 cycles of antibiotics, had a followup x-ray that showed everything ok.  This last treatment it happened as before - tightness, wheezing and coughing.  When I reported it this time he seemed to think it was from the taxotere.  It was scary and I am finished with it now.

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008
    mommonjuju... I know the symptoms you described are some of those they watch for when you are getting any chemo infusion, including Taxotere, and there are multiple references to it on the web as it being a SE of Taxotere.  I'm not a doctor, but since you didn't get it while in the chair, I could theorize that the Decodran and Benedryl prevent it coming on until after they wear off.  But it sounds logical that it could be the Taxotere, and I'd definitely call your onc if it happens again and maybe ask about an EKG or appropriate heart-related evaluation.    Deanna
  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Congratulations to all who have finished chemo!

    I am officially halfway through. AND today I put in a full day plus overtime without getting sick. I took myself out to dinner and now will relax with my feet up and some good music. Hopefully I will be able to work tomorrow. I have not made it through a post chemo Friday yet, but after today, I am hopeful. I have tons of people praying, and am confident that that has made a difference.

    This week I got letters and cards from my Chemo Angels! What a nice thing to find in the mailbox along with the bills!

    Bette 

  • DFOnt
    DFOnt Member Posts: 145
    edited October 2008

    Hey Ladies

    I just posted this in another forum but thought I'd post it here too...

    http://www.cleaningforareason.org/index.html

    free house cleaning for cancer patients, in some US states and parts of Canada

  • MamaShift
    MamaShift Member Posts: 70
    edited October 2008

    My mom is 9 weeks post chemo and barely has a hair on her head.

    Roya, I'm doing Adriamycin, Cytoxin and Taxotere all mixed into one lovely cocktail so I could get out of here as quickly as possible.  My new onc said I should have been doing it every 3 weeks.

    This week kinda sucked.  After I posted, I ended up with a low-grade fever for five days.  I was so weak I could barely stand for more than about 20 seconds at a time.  I wanted a wheelchair sometimes!

    Of course, now I'm getting strong again, just in time for my last tx on Tuesday.

    I bought my ticket home!  Going on the 29th!

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited October 2008

    Hello Ladies. I started mine in Aug.  I had a baby July.23rd and a week later was diagnosed with advanced stage 3. The chemo and prayer has helped. One tumor is gone, amnd the other is shrinking. Was over 6 c.m,,,now is 5. My lymphnode under my arm is barely able to be felt thankyou Jesus :)

    Anyways,,I'm due for surgery soon and then radiation,,,then I think implants for reconstruction.

    I am FREAKING about this surgery. If I didn't have a 9 week old baby I would be great (considering). My faith is strng,,,I know this is all for a purpose. Not being able to nurse was soooo hard,,,now not being able to pick her up.???? This is the hard part.

    I know that going thru Chemo,,loosing our hair,,,and having a masectomy is hard. I just don't know how I am going to go thru being away from my baby.

    I have held together this far,,,,and am sooooo grateful for chemo. It's ALL do able. It really is. 

    Stacy- your awesome. I lovvvve how you have a pic of your bald head on here. GOOD FOR YOU. :) Way to take charge of this.  I got a lonnnng  hair wig,and some hats :)  The wig is my dream hair LOL  figured mise well have some fun with this LOL.

    Thanks for listening. YES  started chemo in Aug :)@-}---

  • mommy3abm
    mommy3abm Member Posts: 221
    edited October 2008

    Welcome Lisa...sorry you had to join us here, but it is a great group.  Wow!  You are amazing doing this with a newborn.  Hugs to you both!

    OK girls who is up this week...

    Stacy  Monday #4  (last one)

    Mamashift   Tuesday

    YEA  alibug, Hood and momomjuju for finishing up!  Way to go!!  What is the next step for you all?

    Have a great weekend ladies!!

    Stacy

  • Misty1
    Misty1 Member Posts: 272
    edited October 2008

    Okay Girls,

    This is getting exciting!!  Many girls are finished or are finishing soon-Alibug, Mamashift, Hood, Stacy.  Those who have more to go, we'll be right here for you to the end!!!  Gail, you're getting there!!   Everyone's  time will come soon and we'll be ready to celebrate.  Isn't it funny that we all started coming together at the end of July. 

     Stacy-what's next for you?  when  are you scheduling the surgery?

    I went to the PS the other day.  So funny to feel all of the different foobies!!  Can't wait to have the expander out and the foobies put in on 11/29!!  Saw my onc at the store today.  He was glad to see and hear that I am just about back to normal.  The taste buds are at about 80%  So psyched!!

    Have a good Sunday, everyone!!

    ~Misty

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Lisa...  I also wanted to say, "Hi," and welcome you to the group - although we always say that with mixed emotions, since no one ever wants to welcome anyone to this "club."  But, there's a kind of support here you won't find anywhere else, and I know we're all grateful for it. 

    MamaShift...  Glad you got a new onc, although ACT sounds terribly rough.  Good luck on Tuesday!  I'll be thinking about you.  And it's wonderful to know that you have a travel date set to return home.

    I finished up chemo this past Wednesday.  Meeting w/my PS at UCLA on 10/16 to discuss 2nd stage Diep flap surgery (scheduled for 11/24), which is for asymmetry and scar revision.  After that surgery + healing time, I have to do rads.   But, I feel like the worst is behind me.

    Thinking of you all ~   Deanna

  • Keryl
    Keryl Member Posts: 230
    edited October 2008

    2 down, 3 more A/C to go; then 12 taxol.

    Hair is coming out in handfuls. Feeling ok though. I am having Neulasta now and it does make me a little achy. I need to get on with the hat, scarf and wig thing. I cried today because my 50 birthday is this week and losing my hair just in time.I cried more because I am tired; this takes a lot to deal, follow up, schedule; people volunteer to come over and I just want to be alone w/ my family. I dont mean to be unappreciative.  what do do? 

    I think I am doing ok. How bad does it get after 2 sessions; do you find it gets worse? Is taxol better or worse? My WBC is ok, but my RBC was low - they didnt seem to care too much? what does that mean?

  • mommy3abm
    mommy3abm Member Posts: 221
    edited October 2008

    RBC low means anemia.  They can give you a Procrit shot to help out.  Mine started dropping after the 2nd Tx and onco thought it would keep going, but it was back up after the 3rd.  If you start feel really lethargic or very cold call your onco.  those are signs of low RBC.

    Mamashift - YEA for the new onco.  I too am doing ACT and it stinks, but I am so happy I can do it all at once too!

    Don't have a surgery date yet...find out on the 20th!

    Misty- turned in my substitute application yesterday and hope to work rads around it!  I am going crazy not working...or is it just missing a paycheck?

    Happy Sunday!

    Stacy

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited October 2008

    Hi ladies,thankyou for the welcome.

    I didin't mean to go off topic, just was freaking out the other day. I have more peace now. God's not let me down up to now, and I have faith He won't when its time for surgery.

    I have been thru 3 "sessions" of taxotere,adriamycin,and cytoxin,,,every three weeks. The "chemo brain" is unbelievable.  My husband works weekends, and I would have swore on my life he had taken a shower last night when he got home,,, he had not yet.  I had a small cry.

    I never in my life thought I'd be bald LOL. I actually have a light layer of hair making me look like a chia pet :)Prayed to not loose it all, and God let me keep some LOL.

    I was told by everyone to shave my head, I shaved my eyebrows instead,which I was kicking myself for later :(  I may have been able to keep those, but they never grew back.

    Lots of love to you all. I thought becoming a mother was hard. This is a blessing in disguise I know.

    For me I have been focusing on how this is changing me. I love spiritual growth. I know that the hair loss is helping me with my unneeded pride,and now I get how precious life really is (which is getting better every day).

    I pray you all have peace. @-}----

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    I spent Tom's birthday on the couch with chills and sweats and diarrhea. He took care of me all day and cooked us a lovely dinner. I was able to present him with his cake and a present after dinner, thanks to baking last Sunday. The cake turned out well after its week hiding in the freezer.

    We cuddled on the couch and talked about wedding plans. I am so blessed to have this man in my life. 

    Today I am still shaky, resting and hoping to make it to work tomorrow.

    Don' t know what my first Taxol will bring in the way of SE's. Trusting God to make it through 4 more treatments.

    Bette 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    HI ladies. well i go to my onco to see if i can start my chemo back this week after my stay in the hospital say for a cyst under my arm.. the area has not heald all the way but it is healing.. i am so not looking forward to chemo but i am so ready to get it over with.. looking for the end of november to be done. then i will need to start thinking about whats next as far as taking out my ovaries and having the breast removed...  i just want to say congradulations to all that are done with chemo.. cant wait till i am done also.

    Lashon

  • lisahugs1
    lisahugs1 Member Posts: 126
    edited October 2008

    Wondering if anyone is getting frequent headaches? I don't want to go thru another MRI until end of chemo,,,so maybe hearing this is part of it ????

  • Hood1980
    Hood1980 Member Posts: 537
    edited October 2008

    Hello Everyone!  Just wanted you to know that I survived my last chemo treatment!  I've been tired but my son came home from college this weekend so that motivated me to do more than lay around all weekend!  Bad old neulasta pain is "scheduled" to begin today & my legs are feeling like logs already.  It's suppose to be a gorgeous day again today so I'm hoping I can get out and enjoy it it. 

     Is anyone else an emotional wreck/depressed?  I'm having a horrible time and of course no one seems to understand!  "you're finished with chemo!  Aren't you happy?"  No, I'm not!  I feel awful!I'm not worth of my loving husband.  He and my family deserve someone whole and who doesn't suffer from the effects of cancer including the sadness, fear and anger that bursts out of me at any given moment.  I guess what I'm saying Aug Hot Baldies, even though you finish chemo, things are still awful at least for me & everyone else thinks you should be ready to resume life as normal, but it won't be at least for me....

    Lisa hugs1 - I had frequent headaches, but I had them before chemo too.  The steroids made mine worse, so the onc halved my dose which helped a lot.  Other than that the best help for me is getting outside with fresh air and nature.

    Good luck to all & sorry I'm such a downer.  I really didn't want to post such a negative, but just in case others are experiencing the same thing, I didn't want them to be alone in their feelings of sadness.

  • Misty1
    Misty1 Member Posts: 272
    edited October 2008

    Good Morning,

    Stacy-Good luck on the last day today!!  You are almost there.  Glad to hear you are ready to sub.  that will get your mind on something else.

    Lisa-welcome!

    Bettelou-sorry to hear about the headaches-didn't experience them so I have no advice but others may.

    Lashon-the end of Nov. will be here before you know it!!

    Hood-So sorry to hear that you are down.  My onc told me that women go through a down period at the end of this TX.  he said it is because you feel like you are no longer fighting with something.  Are you on an anti-depressant?  Ask your onc about this.  I am on Zoloft (since DX in June)  I wanted to go off of it this month, and he told me to wait a few months to get over the "after" period.I hope you start feeling better soon. 

    Everyone else-have a great day!!  It is the middle of Oct. already, so hopefully time will keep flying for you.

    ~Misty

  • alibug05
    alibug05 Member Posts: 182
    edited October 2008

    Well ladies I am ALL FINISHED!!!!!! WHAYAHOOO!!!!!!  Time is flying by and I hope everyone is feeling ok.  I am tired and was tired all weekend but still GLAD it is over.  I start radaition on October 21st.  They said since I handled the chemo so well that I could start the rads that early.  At this point I just want it to all be over with so I am ok with starting!!!!!!!!!!!  Good luck to everyone who goes this week and HOORAY for all of us who have finished!!!! Loves to all!!!!

  • DFOnt
    DFOnt Member Posts: 145
    edited October 2008

    Wow, it's so great to read about a lot of you being done with chemo!  I can't wait!  I think it's pretty normal to be depressed at the end, even Robin Roberts talked about that on Nightline the other day.

    I had a headache for a couple of days with the first treatment.

     Lisa, I have an 11 year old "baby" girl.  She has severe cp and still needs to be carried around, cuddled.  I had a left side mastectomy at the end of June, my husband had to do all the lifting and cuddling for a month, I have gradually been doing it, it's a little difficult now because I also have a Picc line in my right arm and can't lift above that shoulder.  Some days I can hold her no problem, sometimes I have a bit of pain in the shoulder or incision area and have to take it easy.  I also had lymph nodes taken out.

    Still thinking about Taxotere coming up, has anyone not had neulasta?!  If I need it I think it will cost me $2700 per shot, so I'm hoping I don't!

    My sister and family are now in Florida.  We were supposed to go with them.  I decided to take my sister back to Disney world for a few days after I'm all done radiation so I'm looking forward to that now.  She's gone to all my chemo's with me and went with me when I had the mastectomy.

     We had a nice quiet Thanksgiving weekend here, avoided the big family get together because I don't want to get sick, but we had our own turkey feast.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    I was called into a conference room today and informed that I may be terminated in a month if I don't double my speed at work. I didn't have a problem before BC, but with stress and side effects of chemo, I have been slipping. I knew this was coming, just hoped they'd wait til I was done with treatment.

    I am sitting at my desk fighting back the tears and trying to figure out a way to keep my job. I need my benefits, and I need to pay the rent. I have always been a good worker. This stinks.

    Tom says not to take it personally; I can always get another job.

    Bette

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    H, Bette ... First, try not to panic.  Have a good cry if you need to, to release some of the stress.  Then, if you haven't already, be sure that you document every conversation -- as specifically and detailed as you can.  Go back and write down any other comments that may have been made prior to this.  Next, speak to an attorney who specializes in employment issues.  In many states, it is illegal to fire an employee due to health reasons, and you need to know PA law and what rights you have.  My next thought is, since chemo is temporary, are you possibly eligible for a paid medical leave until you're feeling better?  You could use the time to check out other job possibilities.  Mostly, as upsetting as today's encounter was, you need to gather a lot more information about any legal rights you have and not let them take advantage of the situation.  Is picking up your production at all realistic within the next month?  Could you possibly work from home so that you wouldn't be limited to a 9 to 5 routine, and able to work at whatever hours you felt most up to it?   Please let me know if I can help you in any way.  I feel so bad for you.  

    Joyce ...  I PM'd you after seeing you post this a.m., but had an additional thought.  Although I haven't had a one-on-one app't. with a clinical psychologist, UCLA works mini-consults into followup appointments there, and each time, I've been so relieved to be able to share a concern --and sometimes they just flood out w/tears when you're sitting there with a counselor who truly understands what you're going through.  Anyway, their counselors have been great at giving me actual coping skills to head off negative thinking -- so much so, that I always look forward to seeing them and know I will learn something helpful.  Anyway, just thought you might want to look into this.  Just be sure that you find someone who deals specifically with breast cancer because they know and understand what you're going through, which is very different from other life experiences for which people seek counseling.

    (((Hugs to you both)))   Deanna

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Deanna,

    Whether or not I can pick up my production depends a lot on what SE's I experience from Taxol. Improving may be doable if I really pour it on on my good days, since the quota is based on a monthly average.

    I had to write down suggestions for improvement on a performance management form and sign it. It was awful. I will see if I can talk to a labor lawyer. For now, I have a legal plan at work.

    Bette 

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Boy, if that (making you sign something about improvement) doesn't sound like harrassment when you're as sick as you are, I don't know what does!!!  It's not like your work suddenly slacked off and you don't want to keep up. I hope that PA has laws to protect you.  You don't need any employer putting more stress on you when you're already stressed and should be able to have the space to get well without worrying about your job.  Grrrrrrrrrrr!!!!!     

    P.S.  Bette, here's a list I'd come across recently that's been put together by another boardie.  It's full of resources for women with bc.  Maybe there's an agency here that can help you with your situation.

    http://bb67.wikispaces.com/

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