Any Northern Virginia ladies on this discussion board?

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Hey All!

    I have sent a pm to each poster since page 1 that says:

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

    Hopefully we will have a crowd - we may need some name tags!!! 

    Have a wonderful weekend everyone!

    Dawn

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  • Monique
    Monique Member Posts: 121
    edited October 2008

    Lisa - glad you found us!  I live near Fair Oaks Mall so I am very close to Vienna.  I am halfway though chemo.  Who is your oncologist?

     Monique

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    Thanks Dawn,  hope we get a crowd.   i will try to remember name tags.   Got the pink table cloth and magic markers to doodle. 

    Welcome Lisa.  I have my tx at Georgetown Univ Hospital, Lombardi Cancer Center and I am very pleased with my team of doctors.   I use Metro Access, which is a curb to curb transportation service and cost is $ 2.50 each way.   Have to have Dr fill out application - online at Metro DC website.   I can drive myself there, but have had 3 mini reactions so driving home is not a good idea and then benydryl makes me sleepy at first, then steroids kick in and I am wired.

    I live in Alexandria, moved here  2 years ago from Pittsburgh since my one and only son lives here and I am a widow.  Sold my house after being there 36 years and rent an apartment.

    I put notices for our meeting on bulletin board at the chemo sign in area, so maybe a couple of others will join us.   Have a wonderful weekend.  HUGS,  Nancy 

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Let's try to keep our thread bumped up!

    Let's have a get to know you session and at the bottom put a mention of the meet up date, time and place.............................

    Name:  Dawn, 46 now, 43 at 1st diagnosis, married forever, daughter 26, son 22, son 18, two cats, hobbies:  decorating cakes, different crafts, camping, riding on the back of dh's harley, reading, gardening - none of which I get to do often enough!!  1st dx - had mastectomy, axillary dissection, reconstruction & tamoxifen; 2nd dx re-excision surgery, A/C, Taxol/Herceptin, radiation, finished herceptin 8/5/08 - negative bone scan in Aug, ct scan of lungs next week - find out results on 24th - if negative - out the port goes!!!!  Smile

    Me, in a nutshell!!  woo hoo!  Not of course, that the last couple of lines define me but they are what this site is about.................................

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

    Dawn

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    Nancy, 62, moved from Pittsburgh to Virginia 2 years ago to be closer to my one and only son, who was married 3 weeks after my dx of IDC in May.   Widow extraordinaire - 5 1/2 years.   Yesterday would have been 39 yrs of marriage.   

    Have done DD A/C, now on week # 10 of 12  taxol/herceptin - pre surgery.  Surgical consult will be in November and most likely a lumpectomy as the tumor is shrunk 75%.    

    Hobbies:   bridge, bingo, plastic canvas crafts (mostly water bottle covers).  Have travelled extensively - rode an elephant up a mountain many years ago in India.    

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there! 

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    {{{{{nancy}}}}}

    Hugs for you Nancy! 

    Lots of highs and lows these last years for you.

    Dawn

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  • Monique
    Monique Member Posts: 121
    edited October 2008

    Dawn - Hope you can have the port taken out - that would be great news!

    Nancy - I've never seen plastic canvas water bottle covers?  I used to do plastic canvas years ago.

    About me -

    Monique, 50, married 6 years.  I have four children - Danielle 25, Lara 22, Eric 20 and my surprise child Makenzie 6 :).   I also have two stepsons Ron 23 and Chris 21.

    Had mast. July 7th.  Reconstruction is in process with expander.  I am halfway through chemo.  October 21st will be tx # 4 of TAC.  Can't wait till this part is over.  I don't know how people can work through chemo?  At the same time I am incredibly bored and can' wait to get back to work.

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

    Monique

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  • yogachick
    yogachick Member Posts: 1
    edited October 2008

    Hi.

    I wanted to let all of you ladies know that there is a free workshop and class in the Ashburn Area - Yoga for Breast Cancer.  The teacher is a practicing yoga teacher, and a breast cancer survivor.  

    this is a free class and opportunity to meet others.  Yoga provides breathing techniques to assist in healing the body and mind as well as gentle to moderate stretches of the muscles affected by surgery.  I dont mean to advertise, but I thought some may find value in it.

    It is being held at  "bridge to learning family yoga" studio in ashburn on the 18th at 1.

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  • Daffodil
    Daffodil Member Posts: 829
    edited October 2008

    I wanted to invite you to join me as my guest for this special class taught by my wonderful trainer and Pilates instructor. Please PM me for further information!

    Tuesday 10/21 at 6:30pm Mastectomy Stretch for Survivors
    Balance Studio http://www.balancestudio.com/locations/bethesda.html

    Parking is free.I am also entering the full list of Pilates for Pink classes.

    Pilates for Pink Classes

    During the month of October, we will be donating the proceeds of Pilates Mat/ All Level classes to Breast Cancer Research through Shape Magazine's Pilates for Pink. Please join us to support this wonderful cause! Suggested donations of $10 appreciated, cash and checks only. Please make checks out to The Breast Cancer Research Foundation. You can register at no charge for these classes the same as for all the other classes online. 

    Bethesda
    Thursday 10/16 at 7:30pm
    Tuesday 10/21 at 6:30pm Mastectomy Stretch for Survivors
    Thursday 10/31 at 7:00am

    Rockville
    Wednesday 10/29 at 10:00am

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited October 2008

    Hi Lisa,

    I'm being treated in Reston.  I spoke with the radiation oncology and they said though most people get the tattoos, there are options to not have them.  I've heard they are hardly noticeable, but for some reason, it has really troubled me.  All I have had so far is 3 rounds of AC.  My last one will be on Friday.  Then I start Taxol.  Surgery and Radiation are on the horizon, but no dates yet.

    My mom still doesn't know, but is coming for a visit this weekend.  I'm going to send her a letter, as I think that will be best for her.  Should be interesting!

    Colleen

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Hey Colleen!

    Will you be having radiation at Reston Hospital?  If yes, who did you meet with?

    Dawn

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

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  • oldlady
    oldlady Member Posts: 87
    edited October 2008

    I recently went to one of the Look Good Feel Better makeover seminars sponsored by ACS in the NoVA area.  It was really a lot of fun.  I highly recommend it if you haven't had a chance to attend.

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited October 2008

    Hi Dawn,

     I will probably go to Reston since it is minutes from my house, but I'm not sure exactly when.  I'm still in chemo, so sometime after that, but maybe even after my surgery.  I just asked about the tattoo thing, as I was going to the Look Good Feel Better class which is hosted in the Radiation Therapy dept of Reston.  I was glad to know there were options to doing tattoos.  The Look Good Feel Better class for me last night wasn't so good.  The makeup people were not ther (knew that before I went, she is trying to reschedule that part), but ACS was going to be there with wigs.  Guess what??  They only had one brown wig, and it was very sad.  They had a million gray, blond, red, black, etc, some curly, some straight, some long, some short.  But only that sad little one in brown.  For some reason, it really hurt my feelings that there just wasn't anything for me, so I started to cry.  Again, I'm not sure why it affected me so much.  Of course, everyone tried to get me to take a different color, etc, but I didn't want to take something that I knew was wrong for me, that may be the perfect wig for someone else.  I just left.  Oh well, maybe when the cosmetics folks come back, it will actually be better.  The other women had much more luck.  The ACS person said she should be getting more wigs sometime in November.  If you are going to be looking for brown in the Vienna ACS, just a heads up, that the pickings are not very good.

     Gearing up for my LAST AC on Friday!  I think I just may be able to get through it!

    Colleen

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Colleen - I had my radiation at Reston Hospital - my plastic surgeon, Wendy Gottlieb, is there as well.  The techs and doctors are awesome!  The doctor that did mine left right as mine was ending to head up a center in Delaware but comes back every month or so for follow-ups.  I did the Look Good, Feel Better class there too.  I was pro-active, did the class before I even started chemo.  It was a little shocking for me at the time - I was the only one who didn't pull off a wig and share my bald head!  It was a fun class and the participants shared so much with the "newbie"!  We weren't given wigs, just a bag full of products. I ended up only doing scarves and a turban or two instead.

    Good luck with your last AC - I was antsy with mine, DH had to practically hold me down cuz I knew how crappy I was going to feel but I behaved and didn't run out the door! Laughing

    Good luck with your mom this weekend as well.  If you are feeling up to it - please join us at Tysons!

    Dawn

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    I attended the Look Good program at Georgetown.  The make up people were great.   They asked me if I would be willing to participate in the new video being made.   On July 27 I was one of 8 women who were filmed before and after and during a cosmetic make over and wig/hat/scarf presentations.   The video has not been released yet, and the website will have our pictures - I am told.   The bag of cosmetics given are very high end and not just samples.  

    M E E T     U P:        Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there! 

      

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  • flyrzfan
    flyrzfan Member Posts: 557
    edited October 2008

    hi everyone! I hope at least some of you are going to be able to make it Saturday...I look forward to meeting as many of you as possible.

    I was given this link to get directions (tks Dawn!) and I figured some others could use it also...

    www.shoptysons.com/directions.asp

    Hope to see you all there...

    Bonnie

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  • shari1232
    shari1232 Member Posts: 161
    edited October 2008

    Surgery for Mammosite balloon insertion tomorrow, 1 week of rads to follow... Won't be joining but wanted to say I'll miss meeting you all.... again.... !

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Good luck tomorrow and for the next week shari1232!  Check in if you can to let us know how it's going.

    Dawn

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there!

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    Thanks Bonnie for the link.  Good luck for a pain less procedure, sheri.   

    Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!Informal, meet and greet time.  Parking is closest in Terrace C or E.    

    Hope to see you there! 

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  • MelanieRose
    MelanieRose Member Posts: 20
    edited October 2008

    Hi, all,

    Looking forward to meeting everyone on Saturday--Tyson's is a fun place!

    Melanie (Chevy Chase, Md.)

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    I am looking forward to meeting all of you.   And checking out eyebrow stencils at Sephora.   I may claim I am not all that "vain", but no eyebrows is still scary for me when Iook in the mirror.

    ☛☛      Saturday, October 18, noon at Tysons Corner Center in the food court. Look for PINK table cloth!

    Informal, meet and greet time.  Parking is closest in Terrace C or E.    Hope to see you there!     Nancy
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  • BrandonMom
    BrandonMom Member Posts: 412
    edited October 2008

    OK, my doctor says we may do surgery next instead of starting Taxol right away.  For those of you that had surgery first, can you tell me who you used and if you do/do not recommend them?

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    I have my surgery consult on Nov 6 with Cosilovo at Georgetown Univ Hospital.   She seemed quite good when I saw her before I began chemo.  Told me the chemo before works much better than surgery first and it has shrunk the tumor drastically.   

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited October 2008

    Lefty - what chemo have you had so far? I've only had AC, and thought it will be AC and Taxol first, but now I see that it depends on how much AC has shrunk the tumor. I can't feel the tumor anymore, so I think I'm going to be head to surgery.

    Sorry I wasn't able to meet, but my AC yesterday has me glued to the bed. I wish I had the no sleep side effect, but all I get is sleep beyond belief!  I hope you all had a great time!

    Colleen

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    I had 4 AC, every 2 weeks.  then 2 weeks off and this week is # 11 of 12 weekly taxol and herceptin.  but I am diff pos/neg than you.

    My tumor is down 75%.  We had a good meet up.  Rest is good.  body and mind heal when sleeping.     

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    Hey Hey, all you ladies in the area - you missed a great meet up with Melanie, Bonnie, Dawn, Monique and myself.   It was great to meet you all and to get to know you a bit.   Let's plan another one and get more of you there.

    Hugs,  Nancy 

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  • GramE
    GramE Member Posts: 5,056
    edited October 2008

    Hey Hey, all you ladies in the area - you missed a great meet up with Melanie, Bonnie, Dawn, Monique and myself.   It was great to meet you all and to get to know you a bit.   Let's plan another one and get more of you there.

    Hugs,  Nancy 

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  • MelanieRose
    MelanieRose Member Posts: 20
    edited October 2008

    Hey, Nancy,

    Thanks so much for planning our first get-together--it was very rewarding to get a chance to say hello to you all and hear your stories. Looking forward to the next gathering and meeting some new gals in our area.

    Melanie

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Hey all!!

    Thank you Nancy, Bonnie, Melanie and Monique for making the meet up yesterday.  It was so nice to put a name with a face!

    Nancy - did you find what you were looking for at Sephora?

    Hope everyone got home okay!  Any suggestions for the next one?

    Dawn

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited October 2008

    Hey all!!

    Thank you Nancy, Bonnie, Melanie and Monique for making the meet up yesterday.  It was so nice to put a name with a face!

    Nancy - did you find what you were looking for at Sephora?

    Hope everyone got home okay!  Any suggestions for the next one?

    Dawn

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