Anyone starting chemo in Aug. 08?

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  • mommy3abm
    mommy3abm Member Posts: 221
    edited September 2008

    Go Misty!!!  My last is Oct. 13.

  • Monique
    Monique Member Posts: 121
    edited September 2008

    Yaa hoo for Misty's last TC tomorrow!  I will be joining the party tomorrow with Misty and Mamashift, tx #3 for me of TAC (halfway done).   Vision4utoo and Mamashift - I've been having those eruptions of heat out of the top of my bald head too!  The hats don't help any either.

    Thanks everyone for all the support I get from your posts :)

    Monique

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2008

    Good luck tomorrow, Misty, Monique, and MamaShift!  I'll be thinking about you and praying for smooth sailing this time.  It's wonderful to see the tx's clicking off -- some halfway through, some finishing up!  Together, we're all getting through this!!!

    Misty... Gail and I have already gotten together, so it will be great to meet you, too!  Hopefully, by then, all of our tx stuff will be behind us, and we can talk about it in the past tense.  Maybe Jeannine would want to drive out while you're here.  And there's someone from San Diego (Rosemary) we haven't heard from recently.  Speaking of not hearing from... What in the world happened to Peaches?  And MamaKaren, how are you doing?  Several others who haven't checked in lately... Denise comes to mind, and I know there are others.  Please let us know how you're doing! 

    For those of you also needing to do rads, have you seen this?

    http://www.nytimes.com/2008/09/23/health/research/23canc.html?_r=1&scp=2&sq=radiation&st=cse&oref=slogin

    (If that link doesn't work, just Google New York Times and search Radiation.  The article appeared last Tuesday, 9/23.) 

    Deanna

  • alibug05
    alibug05 Member Posts: 182
    edited September 2008

    HOORAY FOR MISTY1 - good luck with your last treatment - I am right behind you on October 10th!!!!!!  Mamashift the countdown is on for you too - 1 more to go after today!!! Goodluck and Hood1980 you are getting your last one on my birthday!!!!!!!!!  I will have my last one 2 days after my 34th birthday and I couldn't ask for a better birthday present than being done with chemo!!!!!!!!!!!!   Good to all who go this week and I hope the nasty se's stay FAR FAR AWAY!!!!!  Loves to all!!!!!!!

  • SheRee
    SheRee Member Posts: 22
    edited September 2008

    I sooo wish I was finishing up!!  I've finished all four EC tx's, but still have 4 TC's to go (the first of which is next Monday)... then on to radiation.  Speaking of - Deanna thanks for that radiation link.  You know, some people say that I'm considered to have "early stage" breast cancer, but my sentinal node was involved...so, I'm not so sure.  I prefer to be as aggressive as possible with my treatment, so I really don't mind having the 7 weeks of radiation... I just hope it's alot easier than chemo has been thus far!  I'm only halfway finished with chemo, and already I worry, worry, worry about recurrence!  Anyway, just wanted to check in - it's been a while.  I'm off to walk now (gotta battle the 12-1/2 pounds recently put on from chemo and not smoking!!).  Hope you all have a wonderful day!!

  • Misty1
    Misty1 Member Posts: 272
    edited September 2008

    Okay Girls,

    Back from the final TCH!!  I was there all day and actually slept through the last 90 min. of the Herceptin.  Everyone was so excited that I was done with that part of the treatment there.  They loved the brownies I baked them.  the plate was empty when we left.  I feel okay now.  I have noticed that my eyes are getting puffy-hopefully that will go away overnight so I can get to work tomorrow.

    Thanks for everyone for your good wishes!!  Your day will come shortly, and we will continue to mark everyone's last day!!

    ~Misty

  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2008

    Woohoo, Misty!!!!!!!! SmileSmileSmileSmile 

    Thanks for the idea to bring some goodies along for the onc nurses.  Nice touch!

    While I'm here celebrating with Misty, just a reminder to everyone to please PM me your full name & address (phone # & email optional) if you would like to be included in the list I'm putting together.  I will be sending it out at the end of the week to everyone who has sent me their info. Thanks!   Deanna

  • Roya
    Roya Member Posts: 346
    edited October 2008

     Wow, October is here already!!!!!!!! Time seems to be flying!  Just 4 more treatments of chemo!  Hurray! 

    Taxol starts Friday.

    Mammashift, Vsion4utoo, and Monique, I have also felt that flush of heat on my bald scalp and sometimes I sweat a bit too.    My fan sure has helped a lot, especially at night when I am trying to sleep.

    I like the idea of bringing goodies to the infusion nurses. Smile

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    October is indeed here, and it marks the month of my revisit to Johns Hopkins to see how my tumor is shrinking. I think I can see improvement again since Tx #3, but that is not an objective measure like my onc does, so I will have to wait til next week to see.

    I have an herb garden in my kitchen, and Tom and I planted holiday herbs: thyme, sage, rosemary, parsley for the stuffings and stews we hope to enjoy together during the holidays. I call it a garden of hope, while Tom calls it our "victory garden". Nothing has sprouted yet, but they should be ready by Thanksgiving.

    My last Tx is to be 12/3, so I am expecting some relief for the holidays. A chance to not be as bone tired as I am today. My gums are sore, and my bones ache, but I am holding forth at work.

    One more 10 hour day after today, and then I have Friday off. I am going to visit my 86-year-old mother at her nursing home, and take her out to lunch. Somehow, maybe Friday, I have to tell her about my BC. I have been putting it off, fearing that she will be worried. As much as possible, I want her to maintain the child-like happiness and innocence which she has in her mild state of dementia. I do not want to make Mom cry. Any suggestions as to go about this? It is one of the harder things I will ever share with her, perhaps as hard as the news that I was getting divorced.

    Of course, now that Tom is in the picture, I may someday soon be asking her to come to the wedding.

    Bette

  • Roya
    Roya Member Posts: 346
    edited October 2008

    Bette, when your mom sees you, she might ask you about your hair being gone.  Moms tend to notice notice these things.  If you decide to tell her, this might be a way to begin the conversation.

    I also had a difficult decision regarding this matter.  You just don't want your elderly parents to have to worry.  Sometimes we tend to want to protect them almost as much as they want to protect us.  In my case, my brother told them before I could give it much thought.Undecided

     

  • DesertRider
    DesertRider Member Posts: 178
    edited October 2008

    Hi Bette,

    My Mom is 92 - lives on her own on 2 acres in Texas and is in amazing health - but worries about me. I did tell her about the BC, stressing how much "they can do these days".  As she is so far away she doesn't see me or hear me on the bad days. My suggestion is call her or see her on your good days. Hearing your upbeat voice often is the best assurance and that's when I call my Mom. 

    Best of luck,

    Gail 

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Hi, Bette...  With your Mother, can you possibly avoid the word "cancer," which that generation immediately associates with the people they knew who didn't survive any type of cancer 20 years ago?  (I know b'cuz my MIL has been a basket case about me, and doesn't seem to hear anything positive I tell her.)  Maybe you could say you're being treated for a lesion in your breast.  Emphasize that it will help so much if she prays for you (if she's a religious woman), and also be sure to tell her that your doctors assure you they can cure you.  I have found that last phrase also takes the awkwardness out of conversations with friends and acquaintances -- "The good news is, my doctors assure me they can cure me."  It seems to help a lot for people who don't understand the complexity of bc and feel very uncomfortable because they don't know our  prognosis.  Just some thoughts...  Deanna

  • DesertRider
    DesertRider Member Posts: 178
    edited October 2008

    Hi Everyone!

    Misty, Would love to see you when you are in Palm Desert! There's a great little spa here - we can hang out by the tropical pools, get a massage and they even bring lunch.

    Sun lovers- Besides Deanna, maybe others will join us? Your comment has sparked an idea - part of my work is leading wilderness adventures. I know some wonderful desert walks through the Indian canyons - lots of shade and water. (google Indian Canyons in Palm Springs for a great look at the palm canyons here). Maybe others reading this will schedule a trip in April to the Palm Springs area for 2 days of walking & sunning and being together? More the merrier!  

    I'll mark your dates and please update me as we get closer to your visit, and anyone else who might be interested? 

    Gail 

  • DesertRider
    DesertRider Member Posts: 178
    edited October 2008

    Deanna,

    I really liked what you said to Bette - I'm going the start using that phrase, too - "my doctors assure me they can cure me". I know it's not full disclosure of each situation - but few people know about the complexity of BC or what to say to me. And that comment helps people. Thanks!

    Is the leg better?

    Gail 

  • g94u67
    g94u67 Member Posts: 436
    edited October 2008

    Hello Everyone,

    I've been off the boards for awile.  Fatigue set in. Thanks all for the encouraging "Family Help". The family is helping but I'm at fault trying be Superwomen too. I've just got to overlook things.

    Just had TX#3 yesterday and I'm starting to feel queasy. Thought I get lucky this time but oh well. Great news though...my onc. said my tumor and lymph gland are practically gone! Yahoo. She wants me to meet with the surgeon soon. Now I'm contimplating mastecomy or lumpectomy? If my BRCA test comes out positive (this after watching Oprah yesterday) I will opt for double mastecomy.Onc. said usually no radiation w/mastecomy. I need to discuss this w/my surgeon though. What are your takes galz?

    Deanna & Gail: I would LOVE to meet up w/you all in Palm Springs next year. (Whittier, CA here) That would be fabulous!  I'm so in need for a get-away and I love the desert. Please keep me posted!! I also met a lady going through this who needs the extra support.

    Bette:  I KNOW exactly what you're going through.  My mom has congestive heart failure and I didn't tell her for 3 weeks. It tore me apart. She cried and has taken it the hardest of anyone. Her faith though is getting her through it and she's been an anchor for me. Gail has a great suggestion to talk to her on your "good days" .  -- BTW your herb garden sounds terrific!

    Prayers & Hugs & Congratulations to all for 1 more TX!

    Jeannine

  • DFOnt
    DFOnt Member Posts: 145
    edited October 2008

    Jeannine, good to hear from you again!  I had a mastectomy (one breast) and will have radiation.  I think I was told it would decrease my chances of recurrence by 5-10%, so the radiology oncologist left it up to me.  I think it is because I did have a lymph node involved.  I just wanted to do whatever I can to reduce the chances. I had surgery before chemo though. I am going to ask about having the BRCA test done.

    I also had a hard time telling my mom.  She worries about any little thing to begin with.  I think I told her the day before my surgery and I minimized everything, just said I was having a lump removed.  Now it really seems to help for her to see me doing well.  I am going to take her to the hospital with me tomorrow so she can see what the cancer centre looks like, and the chemo area, because she's probably imagining something horrible.  She seemed happy that I am going to take her.

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    Kim... Hope tx #4 went well today!  Let us know.

    Tonya... How did your first Taxol tx go?

    Vision4utoo... Is tomorrow your last tx?  Good luck if it is!

    Bette... I love your herb garden project, especially the healing or victory connection!  

    Gail... Love the idea of trying to get a group together this Spring.  I'd be happy to help you with any planning.

    Just another reminder to all... I plan to send out the first list of names & addresses tomorrow.  If you want to be included and receive a copy of the list, please PM me your info'.  Phone numbers & email addresses are optional.  Feel free to PM me with any questions.

    Deanna

  • Roya
    Roya Member Posts: 346
    edited October 2008

    There is eveidence that temporary fasting may improve the efffectiveness of chemo.  I copied and pasted some of it but there are lots of articles on the subject online.  

    ---------------------------------------------------------------------

    Fasting May Improve Cancer Chemotherapy

    Temporary Fast Shields Healthy Cells, While Chemo Drugs Target Cancerous Cells, Study Shows By Jennifer Warner
    WebMD Health News Reviewed by Louise Chang, MD

    March 31, 2008 -- Fasting prior to cancer chemotherapy treatment may significantly enhance the cancer-killing effects of the drugswhile protecting healthy cells from damage.

    A new study suggests starvation induces a protective shield around healthy cells, allowing them to tolerate a much higher dose of chemotherapy.

    © 2008 WebMD, LLC. All rights reserved.

    -------------------------------------------------

    Aother articcle suggested fasting for a day or two before chemo.  Here I am thinking, well, I might as well fast before chemo since I am practically fasting afterward ..........thanks to all the N/V.

    But one article mentioned that fasting helps reduce the S/E's.

  • Roya
    Roya Member Posts: 346
    edited October 2008

    I also read on another thread that it is a good idea to keep Monostat on hand in case of certain vaginal S/E's. 

    Also, did anyone notice the thread ' Vitamin C & Chemo a Bad Mix? 

    Vitamin C and Chemotherapy: Bad Combo?
    Supplementing With Vitamin C May Reduce Effectiveness of Chemotherapy Drugs, Study Shows
    By Kathleen Doheny
    WebMD Health News
    Reviewed by Louise Chang, MD

    -----------------------------------------

    I had no idea!!!!!!

    Thank goodness for these threads!!!!!All the knowledge gathered from our BC sisters and brothers has been a Godsend!!!!!!!!

  • nursekim
    nursekim Member Posts: 41
    edited October 2008

    Fourth one down two more to go.  So far so good!  My oncologist said I am going to have 6 weeks of radiation.  I thought he had told me 4 to 5, so that was a bummer.  I don't want to have to pay another deductable to for my insurance if it goes into January!  I also discussed with him regarding side effects and whether the chemo is working.  I thought I had read where someone said if you didn't have side effects your chemo wasn't working.  He said that is ABSOLUTELY false!  I don't want anyone worrying about anything more than what we already have to deal with.  Hope everyone is having minimal side effects.  God Bless.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    I am going to tell Mom about my BC tomorrow. The social services director at the nursing home is a BC survivor, and she is going to sit down with us and help guide the conversation. It is time, because everyone else in the family knows, and I want her to hear it from me.

    Work went well today, and now I have a 3 day weekend! Next week is Tx # 4, the last AC Tx. After this I will learn what effect Taxol has on me, 4 of those to go.

    One of my herbs is sprouting. I think it is the parsley.

    Bette 

  • Tonya36
    Tonya36 Member Posts: 66
    edited October 2008

    Hello everyone.  My first Taxol was yesterday.  I was a little nervous but it went very well and quicker than I thought it would.  Spoke to my onc and he was pleased that I had no more se's than I did on EC.  I sat down in the chair and they doped me up with the benadryl, tylenol, decadron, tagamet, and aloxi.  By the time I got to the Taxol I wasn't nervous anymore.  They told me to tell them if I felt any different at all and I just sat and read and talked on my phone and to a sweet elderly lady that was beside me.  They kept checking on me and before I knew it they were setting me free.  I was sleepy but fine.  I came home and slept for about 2 hours and was good to go.  My friend and I went and bought some L-glutamine which the onc said was fine to take.  He said he couldn't promise me it would work but it sure couldn't hurt so take it.  I ate soup last night just in case but wasn't nauseas at all.  I felt pretty good actually.  Had some sleeping problems but all in all it was completely different than EC.  I even worked today.  The nurse told me that if someone is going to have a reaction to it then it normally happens the second tx.  But I am hoping they all go as good as yesterday. 

    Jeanine...so good to hear from you.  CONGRATULATIONS on your shrinkage.  That is wonderful news.  I am sorry you are having to decide about a mastectomy.  Its a hard decision but I didn't have time to wait for my BRCA to come back to decide.  Since they originally took my tumor out thinking it was benign then I had to decide right there so I could go on with chemo.  I chose the bi-lateral in hopes that I would never have to deal with this again.  My surgeon would not say one way or the other until my mind was made up and then she told me she thought I made the right decision. 

    Bette...your herb garden sounds great.  Your Tom seems to be a good man.  I wish you both well and I am glad he is there for you.  Good luck telling your Mom this weekend.  I know that it will be hard on both of you but I am sure she would want to know.  My Mom is sick also and I didn't want to worry her.  I waited a couple of weeks until all tests were done and my surgery was scheduled.  I told her on Tue and had surgery on Monday.  It was difficult but she kept busy calling family and friends.  She was actually hurt that I had waited to tell her but she understood why.  Now she constantly thinks I am hiding something from her though.  We do what we can to shield them but in the end they are still our Moms and they would want to know. 

    Kim...its great you only have one more tx.  Yay for you!!!  I have also wondered if the chemo was working since I wasn't as sick as some people.  I know its killing hair cells, wbc and rbc but I have had it easier than some.  Its nice to know what your doc said.  Thanks for sharing that.

     Roya...I thought I had read somewhere else about vitamin C not being good while on chemotherapy.  I worried about even drinking juice because it has it in it.  Its so hard to know what to do and what not to do.  How much is good and how much is bad. I too am thankful for this site. 

     I hope everyone is doing well and gearing up for a good weekend. 

    God Bless,

    Tonya

  • Roya
    Roya Member Posts: 346
    edited October 2008

    Tonya, thank you for the Taxol info and for sharing your experience.  I get my first dose tomorrow so your info was timely for me.

    I am very concerned because I heard that Taxol causes eyelashes to fall out. Frown Oh well, it's not like they won't grow back later.

    Bette, my thoughts and prayers are with you as you go to tell your mom about your BC. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Roya, you will be in my prayers as you begin your Taxol Tx. When you feel up to it, please report back. I have no idea what to expect. Must get one more AC behind me. I'm hoping it will be better than last week was. I was in bed for two days.

    Tonight my gums and the inside of my nose are really sore. They hurt! I took pain meds, and made a slushy to sip for my mouth. It helped, but I can't put it up my nose, so that is still sore. This may be a long night .

    Bette 

  • God-is-good
    God-is-good Member Posts: 46
    edited October 2008

    Hi Roya

    I had my 6th Taxol/Avastin tx today. Just got home from dinner with friends. The se's are minimal. I am 3 weeks on 1 week off. Being super sensitive to getting nauseated I get Aloxi as the nausea premed and have never had any nausea at all (it stays in your system for about 5 days) I use Biotene toothpaste and mouthwash to ward off mouth problems and have'nt had any sores. I do get the constipation for several days then the opposite for a couple which is the worse part. I use Miralax for constip and Immodium for the other. The first week i had some random shooting pains but not really any since. I think it may have been the chemopause process....  I have a runny nose some. The hair fell out but I have my eyebrows and eyelashes .I work full time with no problem, go to kids soccer games and cross country meets every weekend. I'm in charge of a monthly dinner club and i play neighborhood bunko once a month. Im also in the middle of contracting some renovations to my house which is keeping me super busy (painting and carpet). Hope this gives you an idea of how easy Taxol is and i must say that I am grateful everyday that this chemo has been so managable. :))

  • DFOnt
    DFOnt Member Posts: 145
    edited October 2008

    Hi ladies

    Well I'm off to chemo #3 this aft - that will be the last FEC and halfway through chemo!!  I am a little nervous about moving on to Taxotere, a lot of the women in my support group have had problems with side effects.  I don't know if the dr sensed my nervousness but he said the in general people that do ok with FEC do ok with Taxotere.  Guess I'll just have to wait and see!

    As for fasting before chemo - interesting, however I've been doing the opposite!  Having an enjoyable few meals before treatment in case I lose my appetite and don't feel like eating afterwards.  Today I'm going for Indian food before treatment!  Maybe next time I'll try fasting, although I think I would be pretty miserable.

    Also there's a Run for the Cure here this Sunday.  My sister and niece are doing it and my SIL is volunteering.  I really want to go but suspect I won't be up to it and my husband doesn't want me around all those people. Guess I'll see how I feel Sunday morning.  I think it's supposed to rain and be pretty cool though.  My sister and niece (8 yrs old) got pink extensions put in their hair for Breast Cancer awareness month.

    I did take my mom with me yesterday and she seemed a little better after seeing how nice the cancer centre was and exactly what the treatment area looked like.

    Everybody try and have a great day and good luck with treatments!!

  • g94u67
    g94u67 Member Posts: 436
    edited October 2008

    Hello everyone,

    Still feeling queasy here but it could be worse. The Miralax has really helped w/the constiplation though. 

    Nice to meet you God-Is-Good (love that)  The Biotene mouthwash is great.

    I know lumpectomy/mastecomy is such a personal decision. Half of me wants the bi-lateral mastecomy and the other wants to salvage my breasts.  Let's see what surgeon advises....

    Good luck Bette w/mom tomorrow.  I'm sure it will go okay.

    Roya: Many on here advise no Vitamin C during chemo. My mom really wanted me to engage in high dose antioxidants but logically we don't want to stimulate those cancer cells.  Oncology nurse stated it's okay after 4 days but I've shied away from it.

     Take care everybody,

    Jeannine

  • Misty1
    Misty1 Member Posts: 272
    edited October 2008

    Hi All,

    YEAH for NurseKim, Roya, Deirdre, and anyone I missed who had a "lovely cocktail" this week!  It sounds like all of us are getting through this leg of the journey. 

    Alibug, Hood, and Stacy-I know the next one is right around the corner.

    Jeannine-hope you are feeling better.  That would be fun to meet you and the others when I come out to Palm Desert in the spring.

    Feeling pretty good today-made it through work all week and now I have the weekend to RELAX!!  It is suppose to be nice weather around here.  The tastes have gone downhill, but I will look forward to their return, hopefully sooner rather than later.  I get my counts checked on Tuesday. I have a consultation with my PS on Thursday to talk about the type of implants I will get on 11/19.  I can't believe that will be coming up in less than 7 weeks!!  I just hope I can quickly recover from this last round, so I am ready for that date.  I have my Herceptin-only TXs scheduled coming up on 10/23 and then on 11/13.  I have decided to have my port removed with the implant exchange surgery, so I will go IV for the rest of the Herceptin.  That is just one more reminder that I don't want to see anymore.

    Girls, have a nice weekend!!  Do something fun!!

    ~Misty 

  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2008

    The address list just went out (PM'd) to everyone who had sent me their info'.  If you sent me your address and didn't get a copy, let me know.  If you didn't send me your address, I will do an addendum if any more come in.

    My #4 (last) tx is next Wednesday.  I can't believe the weeks have gone by this fast. Can't wait to be done with it, although I was reading elsewhere on the boards that some SE's (like losing eyebows & lashes) can actually happen several weeks after your last tx, which is annoying to think about.

    Roya... Thanks for posting that info' about Vitamin C.  I'd read comments elsewhere on these boards from women who had been advised by their nutritionist (I think at JH) not to take Vitamin C while on chemo, but I hadn't seen any research on it before your post.  Funny, but I've been craving orange juice lately (and drinking it without reservation).  Maybe it's my body trying to protect itself from the  chemo?  Obviously after reading your post, I'll be cutting back.

    Have a great weekend, everyone!   Deanna

  • Misty1
    Misty1 Member Posts: 272
    edited October 2008

    GOOOOO  Deanna!!  I love seeing you get done!!  If we keep raising a glass to everyone here who gets done a TX or finishes, we should all be mighty happy!!  By next weekend, I definitely plan on having some "cocktails" of my choice in honor of all you lovely ladies!!  Deanna, let's have good thoughts that our brows and lashes will stay put.

    ~Misty

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