I think I have a problem

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HeatherBLocklear
HeatherBLocklear Member Posts: 1,370

Hi all,

In the place where my grossly enlarged lymph node used to be before surgery, I now have a hard, round mass. It is tender. Could it be a recurrence? I guess it probably is.

Thanks,

Annie

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Comments

  • Methusala
    Methusala Member Posts: 285
    edited September 2008

    Do you really think so, so soon?  How about scar tissue?

  • beastybabe
    beastybabe Member Posts: 196
    edited September 2008

    Hi Annie

    Im not sure what to tell you here but I can tell you what my doc told me a couple of weeks ago.  I had found a lump under my arm and it was tender...I was freaking...I went to my normal doc and she said that she could feel the lump to which freaked my out even more.

    Anyway I got an emergency appointment with my onc and he said that it was ok it was just an inflamed lymph node and that as a rule most cancerous lumps are not sore and its usually by chance that we find them....

    But I guess the best thing to say is please go and get it checked out.....even if its only for your own peace of mind.....try not to let your imagination run wild....before you know for sure from your onc

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited September 2008

    Oh, Annie, that really sucks.  Not that it is a recurrence, but just that you have a hard, round mass that is tender.  Who can look at it for you?  Have you started rads yet?  Medical oncologist, radiation oncologist?  (I know your particular surgeon tends to be Dr. Buzzkill in the best of times, so I know he's probably your last choice, but he may be more familiar with the feel of things...)

    I know that in July of 2007, 3 months after my mastectomy, I was back at work under a great deal of stress, and I felt all puffy and felt what seemed to me like an enlarged node above my left collarbone -- well, I googled "left supraclavicular" and found it was called "Virchow's node" and was a prime site for metastasis -- of course, I totally flipped.  Saw 3 doctors in the next 2 weeks (surgeon's partner because "real" surgeon was away, med oncologist, then "real" surgeon) -- the first one was concerned but the next two weren't -- swelling, puffiness, pain and tenderness continued for months and months -- felt kind of hard to the touch to me, too -- but finally in March of 2008, my surgeon convinced me that it was a vein and not a node...

    All I'm saying is I understand how terrible it feels to have suspicions, and I urge you to ask your doctors about this, while at the same time saying there are a lot of things that can swell and be painful.

    So sorry -- it really sucks to have to recapitulate this dread -- I'm sure it can be many things other than a recurrence, but you can tell my vote is to ask a bunch of doctors too.

    Love,

    Ann

  • LynnInCalif
    LynnInCalif Member Posts: 61
    edited September 2008

    It is highly probable it is a seroma or, as mentioned, scar tissue.  I have both a year after lumpectomy.  Seroma (filled with serosanguinous material) usually is reabsorbed.  Be checked though just to be sure. 

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    It is probable nothing.(just like Lynnincalif noted-  a lot of us had these issues pop up) ...but I would check it out.  All of my tumors hurt, don't ever let a doctor tell cancer does not hurt.  Many of us had pain in tumor areas.  But I also have had pain in lymph system when they are in high use moving stuff out of the body. Maybe you have had some old dead cells in the body and your body is having problems flushing them out of this area?

    Praying it is nothing more than old scar tissue or a good flush happening.

    Flalady

  • chumfry
    chumfry Member Posts: 642
    edited September 2008

    My onc once told me that masses with smooth edges are less likely to be cancer. If your lump feels round to you, it's probably a cyst or an angry lymph node. I'd definitely have your onc give it a feel. An ultrasound might be a good idea, too.

    --CindyMN

  • cjh
    cjh Member Posts: 78
    edited September 2008

    Annie,

    I had surgery in August, including an AD and have had two hard lumps under my arm close to where they removed a walnut size limp node with ILC and extension. Luckily I saw my PT the next day and she pointed out that both lumps ran along a "cord" I had developed from surgery.  This is part of an ancillary web syndrome I am dealing with. The lumps were "congested" areas of fluid and other accumulated debries from surgery. They seemed to be aggrevated when I started chemo (E5103 Trial/AC/T avistan)  They are slightly responding to lymph drainage massage and increased physical therapy.  Just wanted to pass on another possibility and let you know I shared a similar fear last week... so sorry you have to go through this.

  • nosurrender
    nosurrender Member Posts: 2,019
    edited September 2008

    It sounds like it could be a seroma. That is exactly how mine presented.

    I had to get it drained every couple of days until it resolved.

    I pray that is what it is for you.

    Hugs,

    g

  • jdash
    jdash Member Posts: 754
    edited September 2008

    sounds like a seroma to me too! of course you will feel alot better when a doctor tells you that  dont panic  we all tend to - myself included - but i can think of a few times i was certain it was back when it wasnt   good luck BIG HUG 

    julia

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited September 2008

    Thanks, everyone! Thanks Ann, Methusala, Cj, Julia, Gina, Cindy, Lynn, Beastie, FlaLady, and all. I just got home from campus, and ran to the computer to see what my sisters have to say. I didn't sleep much last night, needless to say, and have been a bit of a wreck all day. It is astonishing how having this condition changes one's perspective of things. One year ago, I would not have given this bump/lump much thought at all (at least not in the beginning); now, it's cause for major panic and drama.

    The upshot is that I have an appointment Monday at noon with my BS. As Ann points out he's not the most sanguine of individuals, but since he's always the Top Pessimist on my medical team, I do trust him to look into this thoroughly.

     Again, thanks so much. I'll be back on Monday to give an update.

    Love,

    Annie Armpit Lump

  • KPolasek
    KPolasek Member Posts: 184
    edited September 2008

    11/1 will be one year since I had my lumpectomy and I have a lumpy area around my incision.  I had an ultrasound and then a mammogram .... all said that they could not be sure if this could be a mass or just scar tissue ... I went with my onc, onc radiologist, and surgeon's opinion -- scar tissue (a cyst was found -- probably fluid that has not absorbed).  Today, about 4 - 5 inches above my wrist on the same side of my bc, I found a painful lump, it seems to be round ... and a heavy car door sprang back and hit my boob in the incision area.  Some days I think that I should just stay in bed ... Ha!  Anyway, it is probably nothing but I totally agree that you should have your area checked out.  It is always best to be assertive when it comes to your health.  Please let us know what you find out!

    Blessings,

    Kay

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited September 2008

    I am so scared tonight. I tried to prevent myself from posting, but just couldn't. I wonder how common it is to have a huge lump only six weeks after axillary dissection, and how likely it is to be cancer. Doesn't the surgeon take all the nodes during dissection? Could he leave one behind by mistake? If the other nodes were all sterile, how likely is it that one that was not taken could be full of aggressive cancer? And my forehead has been hurting for three weeks, especially when I cough or bend over -- I keep wondering if I have mets to the brain. Oh, this is awful! Please forgive the ranting. Tomorrow, after I see the surgeon, I should have a clearer picture of what's going on.

    Hugs,

    Annie

  • KPolasek
    KPolasek Member Posts: 184
    edited September 2008

    Annie,

     I am so sorry to hear that you are suffering so.  Oh, how I know how that feels.  Hang on to hope that this is something that can easily be taken care of.  I wish I could hug you .... since I can't ... feel my hug coming your way!

     Blessings,

    Kay

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited September 2008

    Kay, thank you. I DO feel that hug, believe it or not!

    Annie

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited September 2008

    Just saw your post Annie.

     Suture granuloma, infected seromatous fluid, neuroma all come to mind, and all benign.

     Wishing you some sleep tonight. We'll all be thinking of you. Wishes for the best.

    Tender 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited September 2008

    Try not to worry too much.  How long ago did you have the drains removed.  Might be an accumulation of that fluid.  I had something similar happen to me.  Took a few weeks to resolve itself.  You're gonna be ok.

    Take care.

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited September 2008

    Annie I hope you'll be able to sleep now...........I'll be thinking of you tomorrow..............here's a hug and a prayer that your onc will give you good news!

    Hug

  • cjh
    cjh Member Posts: 78
    edited September 2008

    Oh Annie, I so understand the fear and the fight not to have the fear...tonight I have dx myself with mets to my jaw as it has been sore for the last few days, but then it may be from a sore throat...I am not even touching my limp nodes up there until a doctor has a peak at my throat.  Silly worries, but sane reasons...sleep always helps.

    Night night

  • otter
    otter Member Posts: 6,099
    edited September 2008

    Annie, Annie, Annie...

    This whole lifestyle really sux, doesn't it?  Worrying about every lump and bump, trembling at the thought of our next onco exam...

    I vote with Tender.  Your surgery was just 6 weeks ago, and you haven't had your drains out all that long.  I had a seroma the size of a shooter marble under my arm, and it traded fluid with a tract along my mast incision for quite awhile after my drains were pulled.  The shooter marble was not "hard" because it was open to the tract under the mast scar.  If not for that, it would have been "hard", especially when it was resolving.  I also have a "knot" under my arm at the end of the mast/SNB incision, and there is a strong likelihood it really is a knot--or at least, scar tissue.  I've had my onco and my surgeon feel there (a lot), and they're not impressed.

    Keep in mind that, even though you had an ALND (right?) and your nodes should be gone, that lymphatic fluid from your arm and breast and chest wall has to go somewhere.  As it is roaming around in your armpit, searching fruitlessly for a lymph node, it can accumulate into a seroma.  Also, it wouldn't be unusual for you to develop some "cording" (axillary web syndrome--Google it) right about now.  Cording will feel "hard" and sometimes lumpy.  The lumps are apparently fibrosis (fibrous connective tissue) that develops along the defunct lymphatic vessels.

    [I'm putting the word "hard" in quotation marks because my psyche is still wounded from an encounter I had 27 years ago, when a surgeon/faculty member scolded me for using the word "hard" to describe fibrotic tissue.  After basically calling me "stupid" in front of 5 of my classmates and 3 other surgeons, she pointed out, "A rock is 'hard'.  Tissue is 'firm'.  I hated her, and I celebrated quietly when she was denied tenure.] 

    OK, so today is Monday and you'll be finding out what that lump is in a couple of hours.   Maybe your surgeon will "stick a needle in it" to find out.

    Big hugs from rural Alabama...

    otter 

    P.S.:  I really like your avatar pic.  Is it a recent photo?  You don't actually have that much hair already, do you (otter asks with thinly veiled envy)? 

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited September 2008

    Hi Otter and all,

    Well, I just got a call from the BS's office that he's had to go out of town for a personal emergency. The earliest he can see me is Thursday morning. I'm wondering now if I should try to see my oncologist before then; I'm really very worried.

    Otherwise, no that's not my hair although the picture was taken about ten days ago. Still toting around the good ol' sheepskin, as I semi-affectionately refer to it. Theoretically, I guess, I could go without, but my hair is coming back unevenly, thicker on top than on the back. Actually, my head looks a bit like a six-month old baby's head with the hair worn off the back. My eyelashes are coming back too, but growing erratically in every possible direction -- some point up, some to the side, and others hang down over my eyeballs. Very attractive.

    Back to the blasted lump -- it's BIG, I estimate about 2 cm, so I don't know if it can be cording or a seroma. Otter, I swear I'd have slapped the witch (feel free to substitute letters, if you wish) who humiliated me that way. Firm, my butt. I know hard when I feel it, and I'm assuming you do too.

    Good grief -- should I call the oncologist?

    Annie

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited September 2008

    Annie, why not ask your oncologist to get you in to see a radiologist who can do an ultrasound? This technology should be able to give a good idea as to it's origin, and it's quick.
     
    Fluid under pressure can feel "hard" imo. And if it came up that quickly, it sounds like fluid.
     
    Don't you just love the way Otter writes? Bad surgeon years ago, Otter, I agree.
     
     
  • OneBadBoob
    OneBadBoob Member Posts: 1,386
    edited September 2008

    Annie, I would definitely call the oncologist--why fret for several more days?

    This could be so many other things, I think you will feel much better after seeing the oncologist.  He may want to you to have it ultra-sounded right away (that's what my guy wanted on one of my LE "HARD" spots.)

  • AnnNYC
    AnnNYC Member Posts: 4,484
    edited September 2008

    Me three, I'm with Tender and Jane/OneBadBoob -- try to see your oncologist now, and your breast surgeon when he returns.

  • wishiwere
    wishiwere Member Posts: 3,793
    edited September 2008

    Just wanted to add Annie, if you had headaches when bending over, it sounds like you have a sinus infection.  Perhaps you have an infection that has gone into the lymph nodes or something?  It's happened before, I know.

    And yes, they can miss lymph nodes.  They take out tissue, but not everyone has the same number of them and when they take out tissue, they are never sure what it contains in so far as # of lymph nodes.  But it's a likelier bet that this is something the ladies are describing as seroma or such.  Prayers and {hugs}

  • cjh
    cjh Member Posts: 78
    edited September 2008

    Limbo land is the worse stress for me.  I also would try to get someone to see the lump asap to preserve the quality of your next few days.  It sure can't hurt anything!!

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    why is it...very time we have a big scare the doctor has some kind of a emergency.  I know they have to have a life. (many or 50 to 60 hours a week) but have you notice the time thing...always out at the worst time.

    Anne, Lefting you up in prayer that you don't have to wait to see anyone and this is B9.

    Flalady

  • jeanne46
    jeanne46 Member Posts: 1,941
    edited September 2008

    I also cast a vote for the oncologist.  Mine found a lump a few months back and sent me directly for an U/S guided biopsy.  Found out the next day.

    I also agree with many above who've described many OTHER things your lump could be.  Best of luck, Annie.  Hope your lump question gets resolved soon and turns out B9 as well.

    Jeanne 

  • otter
    otter Member Posts: 6,099
    edited September 2008

    Annie, it's me again.  Call the onco's office and tell them how worried you are, and how painful that lump is, and what a wonderful thing it would be if they could take a look (or do an US) ASAP.

    That is a terrific "cranial prosthesis" you have.  You should see my mouse-colored crew cut.

    otter 

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited September 2008

    Hi all,

    My BS's nurse called me as I was driving to campus, and said the BS would cancel a meeting on Wednesday afternoon to see me early. I guess he was really planning on being back in town on that day, but wanted the afternoon off -- can't say I blame him. He apparently instructed his nurse to tell me not to worry, that it's probably only a seroma. However, he does want to make sure, and also aspirate it before it gets infected (I suspect it already is, if this is indeed a seroma).

    I feel apprehensive and relieved at the same time. At least I'll know what this thing is within a day, and then steps will be taken to deal with it. I sure hope it's not a recurrence, but also realize that with BC, especially triple negative, anything is possible.

    As far as the sheepskin is concerned, I bought it from HSN because all the local offering were either in brown or black, and very expensive. I'm not too displeased with it -- it has served me well, and I don't think most people realize it's a wig. Of course, I might be completely delusional on that one!

    Thanks, dear friends, for once again rallying around when I wasn't sleeping out of fear. It's not nice, this BC, is it.

    Love,

    Annie

  • otter
    otter Member Posts: 6,099
    edited September 2008

    Annie, if it is indeed an infected seroma, there should be other signs and symptoms.  You would probably have a fever, and the area around the lump would be red and swollen and ugly and painful.  Plain ol' uninfected seromas can hang around for a long time.

    Oh, and around here, Wednesday afternoon meetings = golf.

    otter 

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