anyone starting chemo in Nov 2005

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  • Margerie
    Margerie Member Posts: 526
    edited September 2008

    I am sorry about your foot Nancy!! 

    I think I may have to volunteer to be one of Dr. Conick's patients.....

    Mom is doing better.  Her doctor is great.  She may be able to do a clinical trial and may even be able to get the same vaccine I did up in Seattle.  SHe is up and moving around and feeling much better.Laughing

    I almost forgot...I had a PET/CT scan today and my doc already called me and told me it was all normal.  The radiologist even wrote a little note and said it was the best scan they have seen all week.  I am happy, but it comes on the heels of my mom's news and we just can't seem to win this war....

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    I have the detectives on the missing Anna case....No leads yet.

    Hope we will have a break in the case soon.

    I will keep you posted

    Photobucket

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    Marg~ Doing the happy dance for you!

    I know this is a hard time for your mom. But she will do fine , look at her daughter, you're a fighter from HELL , you had to get that from somewhere right.

    I'm a lot like my mom, and we hit head on at times. But she is a tough lady, and I'm glad that I learned that toughness from her.

    As far as warm and fuzzy she's not. That is where we differ and that is the part that is so hard to handle. I know she loves me, just wish she would say the words.

    Never going to happen .....

    Nancy, sorry about the foot too.

    Photobucket

    What part broke?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    oooooh.....Harry Connick..........

    drool.....

    I LOVE him.  So much, it used to make my dh jealous. 

  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited September 2008

    Can't wait for our workshop.  BTW, San Diego is a great place for a reunion and I would love to host all of you.  Just have to keep the dream of our getting together alive.

    Margerie, how's Mom?

    I choose to think of Anna traveling throughout Europe, eating great food, sipping beautiful wines, and taking long walks with her husband.   But, would love confirmation.

    Nancy

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    Heres for you Deb!

  • Nancy-SanDiego
    Nancy-SanDiego Member Posts: 127
    edited September 2008

    Mary Lou, you are so funny.  Where did you get that foot?  The answer is left distal fifth metatarsal.

    Your mom sounds like mine--tough.  As she got older, she was more available and vulnerable and at times I was angry as I saw her independent sprit and confidence give way to the frailty of old age and my ineptness at the role reversal.  She died the year before I was diagnosed and though I wanted my "mommy" at the real scary times, I was also glad that she did not have to go through this with me--it would have broken her heart.  She rarely said "I love you" but I knew.  I only hope she also knew.  I am much more vocal about saying "I love you" with my kids and grandkids.  And that extends to my sisters--I love you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    WHEW!  That is a perfect indication of why I LOVE Harry Connick.  He is just plain beautiful.  He's a kind soul, too.  We went to see him in concert when we were first dating (Greg and I, not H Connick, btw!).  I was mesmerized, and we were in the cheapy-cheap seats, no less! 

    Nancy, you are very poetic with your words, I wanted you to know that! 

     Marg-first, how's mom doing?  Second, I got my t-shirts today, and I wondered about the difference in shirts.  One is just right, and the other is teeny in comparison.  I thought I got the same kind of tee for both prints?  What do I do?  

  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    Hello dear friends.  Sorry I've been MIA for the last few days.  Too much stuff going on and extremely busy at work.  By the time I get home I am exhausted.  For some reason this last Zoladex has really wiped me out. 

    I'm also grieving as my Dad was just placed on Aracept for early Alzheimer's.  He started to exhibit early signs of the disease so he had an MRI done and it showed some deterioration and much older than his current age.  His mental state has gone down hill since mom passed away.  He is very forgetful, angry and withdrawn at times.  Some nights he doesn't sleep.  We thought it was just depression but maybe early signs of the disease too.  Oh my, my heart can't take it as I lived through grandma (his mom) Alzheimer's disease and it is awful.  I don't wish that on him. 

    Anyway, as you can see I am not very perky lately so is best if I just stay quiet for a while.  I hate being a downer.

    Margerie - glad to hear your mom is doing better and your test results where good. 

    MaryLou - love that crazy bikini picture.  You can take a dip in our pool any time. 

    Geeze, I forgot what else I was going to say.  Sorry, I'll just send everyone a big hug,

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Oh Ody. 

    I'm sorry.  I'm just so sorry.  I've never lived through Alz. with a family member, but I can certainly understand the grieving process.  That must be hard, scary, depressing, and frustrating. 

    I understand your need to be quiet for a while, but please know you can lean on any of us when you need to. 

    Daniel is up, so I have to go.  Love and prayers, Deb

  • Margerie
    Margerie Member Posts: 526
    edited September 2008

    My husband's grandfather had Alz.  It was very sad.  I think they have many more ways to slow down the progression of this disease.  Big Hugs to you and your pop.

    Deb,

    Cafepress has a great exchange/return policy. Just email them!

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

     Nancy, I got the foot on photobucket.com glad you liked it. 

    Ody, sorry to here this news. I have worked with many Alz patients in my life. It is very hard to deal with. The personalty of the person becomes so unrecognizable. If you need us we are here as always.

    That is what true sisters do, hold one another when we can't seem to hold ourselves.

    Deb~ I have been meaning to get a shirt too. Which one is a better fit? (PM me )

    Nancy, sweet words.....

    Marg, prayers to you and yours.

    Anna?  Are you still at the beach?

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008
    I forgot to tell you all, my EX BIL found out he has cancer. His sister said it was a fast growing kind. Not really sure what type yet. It just seems to be everywhere Cry
  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    Thank you sisters.  Happy Friday to everyone.

    I love you all.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008
  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    Hey how about having our own "Beachstock" in Miami.  It would be so nice to see everyone.  I also invited some of the Pinkstock ladies.  I was thinking my brother's girldfriend could help me plan something real nice for you at one of the hotels.  If not, we could evern haave campers lined up on the side of the house.  We live in a corner lot with a huge park accross the street.  The possibilities are endless.  What do you say???  Beachstock anyone????

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    I say yes, I can drive that far, and if Deb and Anna want to meet me this far,  we can get there from here in my car. It is all on the east coast. I think it would be a great road trip....

    I have really been in a funk after the lay off. Things are just getting on track again, but I'm still mad about not getting to get together this year.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    Flying over the beach...

    Photobucket

  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    Mary Lou - the road trip sounds like a great idea.  I just noticed Nov 5th is when this thread got started.  We will be celebrating our 3rd year anniversay this year.  There is a long weekend in November (Veterance day) .  How about It?

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    ooooohhh!!!  I don't want to get too excited until I know it is for real, but count me in!!!!! 

  • Margerie
    Margerie Member Posts: 526
    edited September 2008

    You gals may have to call me and drink a maragrita for me. I am going up to my mom's every other weekend.  She will be starting chemo in a couple of weeks.  I am very worried as she is still nauseous from the surgery.  I feel like I need to case manage her care.  You know how it goes..... the coordination of the surgeon, oncologist, etc is a nightmare.  She seems to have found good docs, but it is overwhelming to get all the records, ask the right questions and get all the procedures lined up.  She found out she is Stage IV and it is heartbreaking :(

    On a good note: I have lost 23 pounds in 6 weeks on Medifast.  I wouldn't recomend it for everyone- it is a form of guided starvation.  But I was in desperate times.  I knew I needed to lose weight, tried, failed, actually was gaining weight instead, you know the story.  I plan on sticking to it for another 2 months or so. The first week was hell.  It felt like I was on chemo~ sorta tired, weird tast in your mouth, sorta headachy.  But after that it has been easy.

  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    (((Margerie))) - so sorry it's stage IV.  This must be so hard on her, you and the entire family.  I wish you lived closer so I could help somehow.  Even if just sitting with the kids to give you some time with your mom.  My achy heart will tell you to spend as much time with her as possible.  If you need to make sure you make peace with her.  Mother and daughter relationships are always so hard.  Anyway, I'm here for you sister. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Oh, Margerie.  I can't believe that news.  I agree with every word Odalys said.  I will add to be sure to talk to your Mom about the stories that only she knows, so that you know them whenever that time comes.  As we all know far to well, none of us know if the cancer beast will separate us from our loved ones.  AlaskaDeb's thread about leaving a legacy behind spurred a conversation about how some of us don't know our Mom's favorite color, or like I had said, why we only bought Ruffles potato chips.  Nobody can tell me the answers, because my Dad was taken from me, too. 

    At the risk of sounding like Susie Sunshine, we don't know if this is the type of Stage IV that the doctors can keep stable for years and years and years.  Have faith, dear friend. 

    I, too, am here for you.  We all are.  Love and prayers, Deb

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008
    MyHotComments.com
     We will be here to hold you always Marg
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    I understand wanting to know things, I wish my mom would open up more about things that have happened in the past. She is so cold at times. She is not warm and fuzzy at all. But will do things that make you feel loved.

    I wear my heart on my sleeve, and it is so hard to hide my true feelings.

    As all of you well know.

    MyHotComments.com
     

  • AnnaM
    AnnaM Member Posts: 1,387
    edited September 2008

    Oh my dear sisters!

    I am so sorry I have been MIA. We had so much to do before leaving Brittany, and then when we got back our internet service wasn't working at all. Now it's back in service and I feel like my lifeline is back, too. I have missed you sooooooo much! I couldn't even get to the library or anywhere with all my dr's appointments, taking my parents around (now that I'm back it only seems right my brother should be off the hook for a bit) and then a 6-day visit from, can you believe it, daughter, son-in-law, and that little prince of a grandson. I just got back from taking them to the airport for their return flight and found our internet reestablished, so it makes their departure a little more bearable to have my contact with my sisters returned to me.

    So much news! Margerie, I am so sorry to hear about your mom. I do still have some wigs, please let me know if I can send them your way. I'm blonde, so they're blonde, would that work? One's very short, one longer, it could be cut and styled nicely, I think. Anyway, I'm thinking of you and of your mom, with love and hugs.

    Ody, I am so sorry to hear about your dad. You have been through so much this year. And then your family in Cuba and all the fears for your own home as well. But what a pool, and may I dare say, who is that adorable pooch in the pool pictures? I did see the beautiful lady who thinks she's a hag, the one hanging out in your pool in that absurd bathingsuit, the one with all the beauty radiating from the inside. But that little white pooch, he (she?) doesn't look like the one you adopted recently (recently?), or am I wrong?

    Deb, how awful that your house flooded like that. Flooding is my absolute nightmare. our basement flooded just before we moved in to this house (a mistake made by the plumbers) and since then I am always so anxious about water. I made my hubs replace the hot water tank way before its time and always cut the water main when we go away. You can't cut the storm water, though. So sorry for all you had to go through.

    And Nancy, how terible to have broken your foot! Omygosh, how long will you be handicapped by that?

    Mary Lou, I love your hugging cats. Thank goodness Michael has been called back to work, and I pray it is for a good job. Gosh, we have come back to a broken country. All this economy-falling-apart stuff is so frightening, and my hubs teaches that stuff and talks about it all the time, so that's not so good for the equanimity, you know what I mean?

    LAT56, I hope all is well with you.

    Jeeps, that Harry Connick sure is a beauty. I had never seen a picture of him before. What does he do? Music? Some sort of wind instrument?

    Love to you all, each and every one. I have missed you!!!!!!!!!!! 

  • Odalys
    Odalys Member Posts: 2,103
    edited September 2008

    Welcome back dear Anna!!!!!.  We were getting ready to send out a posse for you.  Glad all is well with you. Pooch in the pictures is Marcy (maltese mix).  I rescued her from the pound last year.  She is the sweetest doggie and has become my shadow.  The beagle (Maggie) is also with us.  I'll be back this weekend to catch up with you but now I must get to bed.  Tomorrow is another work day. 

    Good night sisters.

  • LAT56
    LAT56 Member Posts: 79
    edited September 2008

    One minute I'm in tears, reading about the hurts & sorrows of my Nov. 2005 sisters & their loved ones, and UP pops the picture of Harry Connick, Jr.!!    OOOOOOO - how I laughed!!   

    Thanks for being here!!

    Hugs & prayers for all,

    LAT56

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2008

    Anna ! It is so good to see you are HOME! Michael is back to work and doing just what he did before. Everything is the same but the overtime. But it is better than no time. I believe Cory will be called back on Oct 6TH , so I'm supper glad for them.

    They have had to rely on Michael and I , so it is a good thing Cory woke up to the fact that he better not push his mom out of his life. He has been letting me watch the children for months now, LOL what a handful. Surprised

    Glad I have pretty much watched Hayden from the beginning. I believe it will be different with her. Closer in a way. Chris is having a time with my oldest granddaughter....teen years are here. He is counting the days till she is 18....LOL, I remember doing that with him at 14. Not an easy time for either parent or child.

    Anna, I will be coming up that way in Oct, not sure what date. PM me your numbers please.

    Ody, have you been watching DWTS, It has been a hoot this year with Cloris. I bet all the senior citizens are voting for her.

    Marg, good to hear about the weight loss. I need to do something and soon. Deb, what do you think? I know you wanted a partner. Seems I have been on a diet for 3 years and still weigh the same. Cry

    Lat, it is always so good to see you here when I chime in to see what everyone is up to. Please pop in a little more often, even if you just post the word "HI"

    Well , I guess that is all in my neck of the woods. It is raining like cats and dogs out tonight.

     We sure did need it.

    Love and Hugs to you all.

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