I think I want this OVER

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My life SUCKS. 

I finished rads in April. I had an abscess caused by a Mammosite catheter and it got infected two more times. The remaining hole is only like 0.25 inch. . But I had my checkup with rad onc last week, and he says my skin is super - so partial breast irradiation has some advantages.

My "nervous breakdown" turned out to be real, diagnosed  PTSD, and I'm now in therapy. I'm slowly getting better. What sent me over the edge was the idea of taking pre-op sedation before I had a colonoscopy - Versed, I found out during lumpectomy, makes me feel drunk, and this recovering alcoholic couldn't bear even thinking about it again. The nightmares and the flashbacks and the obsessive thoughts are amazing. When I opened my monthly calendar and realized that I had an onc appointment this month, I burst into tears.  At my desk. This is a lot worse than the post-treatment yuckies. Currently on a tamoxifen vacation to keep the hormonal craziness from making things worse (yes, I have onc's permission).  I'm resisting drugs, well you know why.

Friday I got shingles - it's evidently a pretty common SE of cancer treatment (y'all get your vaccines, now, hear). I hurt A LOT, and I don't feel good, and my work project should finish up on Tuesday, and I want to go away with my husband to Toronto and have some quiet private time, and I'm sick to death of cancer and side effects and emotional fall out and everything else.

I know I should just stop hanging out here, but I kind of feel like you guys are the only ones who GET IT.

The only positive thing I can say for myself is that I actually haven't gained any weight back through this whole mess, which I guess is a positive achievement, but now I'm supposed to ease off exercise until I feel better/

Please tell me that you understand, and that I'll be fine, and all that nice stuff.  I'm a little desparate.

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Hi Sue

    Sounds like you really could use some TLC and a little get away! ((((HUGS))))), sorry things are so sucky for you right now, it will get better. BC is a ride no one wants so, when your down and feeling blue and like everythings a mess, take a breath, step back, get it out and be kind to yourself, even if you just need a day off, do something to change your focus for a short while then pick up your boots and say....I can do this.......just like your title. Seriously, whens the last time you gave yourself and real break, also with hubby???? Go for it, sometimes it's the best thing you can do for yourself.......everything else will fall into place.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Sue, by the way, I see you are in Ontario???? So am I.........another HUG for a Canadian sister! And take that weekend in T.O.......you need it and deserve it!

  • lolmarsha
    lolmarsha Member Posts: 107
    edited September 2008

    you HIT the nail on the HEAD!!!!!!!!!!!!! lol. B/C SUCKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Just take one day at a time.  with you. always marsha

  • wishiwere
    wishiwere Member Posts: 3,793
    edited September 2008

    Dear {{{{SUE}}}}  What do you mean when you say the ONLY positive thing you can say is you haven't gained weight?  Woman, look at all you've been through this past year!

    You were dx with Breast Cancer, you had surgery, Rads, infections, dealt with coming off the pre-op that caused you to go through withdrawals and on tamox to make your body fight it's own estrogen progestion, thus making you hormonal on top of all this?  Then add on a case of painful shingle and raising a daughter!  Then facing a colonoscopy! Dear women, you've through hell and back!  Please, I can't even begin to know what you went through, and I've been the route of dx, mast, chemo and now arimidex, and it dosen't come close!

    I must say, I need to THANK my PCP for suggestion I NOT get that colonoscopy b/c of all I'd been through when I turned 50 in april! Thank you Dr. B!  What a sweet man to think of it all!

    Now, you need to be kind to yourself dear lady!  Get some rest, recoup, do the therapy you need to get whole again.  What ever that takes, just do it!  Be/c you're going to beat this mess you've found yourself in and get past it.  I know you will.  Look at all you went through and the decisions you've made.  And all the while, teaching your own dd how a woman fights when she is backed into a corner to win and win big! 

    Get well dear friend....You can do this!  :D

    Many {{{hugs}}} and prayers to help you through it all too! 

  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited September 2008

    Dear IcanDoThis,

    I want to talk to you about alcoholism, not bc.

    My mother was an alcoholic from the time I was 9 years old until I was 40..then she died. She left behind my father (an unbelievably patient and loving man), me, my two brothers and five amzing grand-daughters. My youngest brother never knew his mother sober. Every minute of my life from aged 9 to age 40 I wished and prayed that my mother would stop drinking. She never stopped.

    When you say so publicly on this site that you are 'a recovering alcoholic' I get a tidal wave of pride and love and strength for you because this daughter knows EXACTLY what you are about. At some stage you decided..yes, CHOSE! to make your family more important to you than anything else in the world. To take alcoholism on like that requires a power and a force that cannot be understood by those not in that dark world..and I'm counting families here. I am in awe of the gift you have given your daughter.

    My husband and I keep saying this breast cancer thing has to COUNT for something. It has to have MEANING. For you, the meaning can be found in the choice you have already made. You chose life. You chose to live it. You gave your daughter a mother/daughter bond. Cancer has tripped you on your face..yes..but after what you have already done....? I am in awe of you.  

  • lisa39
    lisa39 Member Posts: 255
    edited September 2008

    I got shingles too.  I was in such pain that I found it hard to do anything.   I sat around the house for about 2 weeks, exhausted and aching all over the chest, back and ribcage where it broke out.  That was in June and thinking back, next to the fear and sadness just after diagnosis, the shingles outbreak was the lowest point for me.  I got very depressed and felt completely worn out and fed up, kind of like you sound right now, Sue.  It's shocking what this lousy diseases forces us to endure.  Try to rest up and be good to yourself.  It will get better and your life will get back on track.

  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2008

    If these damn oncs don't start telling their people to get a Shingles vaccine before starting chemo, I am going to strangle them, one by one.  It is so stupid.  This is a thing you can get over and over, so if you have had it, you STILL need the vaccine.

    Sue, my dear sister, you have come so far, God bless you.  I admire you so much.  Addiction is such a bitch.  And what is really sad, you don't really need the Versed, anyway, the whole thing is not much, compared to what most of us have been through, childbirth, etc.

    Honey, and all our sisters, the best thing I have found with this whole sorry nightmare is all of you.  A huge sisterhood of women who would go to the wall for each other.

    I am 10 years post treatment and doing fine.  Over 80% of us will recover completely.

    Another gripe I have is not offering anti-depressives to women before this frickin' journey starts.  I don't know if Sue could have used this, though.

    Anyway, Sue, you are loved and cherished here.  Just know you will get well and life will get better.

    Start 1000mg of Vitamin C per day, your immune system is in the toilet, and a good B complex.  You will feel better and no more "opportunistic" infections.

    So hang in there, sister, gentle hugs, Shirlann 

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2008

    Thanks, guys. I'm better - maybe giving up and wailing actually helps.

    I'm working on the immune system, and am actually staying out of work for a few days. The pain's bad, but I find the "flu-like symptoms with no fever" to be more of an issue - I went to work Monday and looked like 5 miles of bad road.

    At my office, 4 of us were diagnosed since last October - I guess I was last, since I had mammo at the end of December. One of my co-workers died Sunday, he had metastatic melanoma. We have another guy who's stage 4, but he came back to work last week. We hugged when he came in - I didn't know I had shingles, I hope I didn't give him anything.

    I HATE CANCER.

    Oh, and Shirlann, maybe we should do a poll, and write a paper for ASCO Journal on the percentage of women who get shingles - that might be one way to get dr's to subscribe the vaccine. I was planning on getting it at my next physical, but I've been putting it off because I feel like I've been living at some doctor's office or another all year! 

  • LisaF
    LisaF Member Posts: 200
    edited September 2008

    Dear ICanDoThis!

    Glad that you are feeling better.  You poor thing with shingles.  I've known two people who have gotten it and they say it is horrible!!  You should be proud of yourself for dealing with everything.  

    I can't believe in all the reading I've done I've never heard about getting the vaccine.  Thanks for letting all of us know.  How long before you start chemo do you need to get it?  I'm sure there are many like me who knew nothing about it.

    Hang in there!!

  • lemonld
    lemonld Member Posts: 114
    edited September 2008

    Sue, Sorry to hear about the shingles, I had no idea that chemo caused them, I will be taking to my onc nurse tomorrow when I go to get my chemo tx.  You hang in there each of us have gone through what you are going through.  When your mind tells you you can't go on remember your heart is telling you you can and don't give up.  The heart is stronger, dig deeper.  This comes from the SU2C song Stand Up, I love this song because it is for cancer patients and it really reaches a persons soul if they listen to the words closely. 

    You go ahead and have your pity party you're entitled with all you have been through.  I too have wondered if I should stay away from the web site and the boards but I am drawn here like a moth to a flame.  I know I have a lot of people here who understand and we each care and JUST KNOW how the other is feeling.

    So hear's a hug to you and you feeling better, I will keep you in my prayers.

    Hugs,

    Linda

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