LCIS

BSGI Update:  I just wanted to let those of you who may be following this Breast-Specific Gamma Imaging know how that played out.  In short - the BSGI did find something that my mammograms did not - an "area of concern" that ended up being diagnosed, after a core biopsy, as "fibrocystic change" (formerly called fibrocystic disease).  

This new information from my left breast will be combined with the information from the right (LCIS & ADH).  Not sure what the next step is yet - meeting with the surgeon, then going to a "high risk clinic" -- but the point is.... the BSGI turned out to be very useful in my case, as it found something other things couldn't see.  I do have very dense breasts, and the BSGI located this small cyst or tumor - 1 inch across, half an inch wide.  It was very near my chest wall; that may be why it was hard to see in a mammogram.

Write me if you have more questions. Will keep you posted.

Shoe

To all - This is an interesting thread that I didn't see until Curlytop responded and brought it to the surface. Since so much time has passed, I expect that some that wrote earlier may have more information now. I too was dx'd w/ LCIS after years of bad mammos and three bx's. I too am sitting tight for now, but certainly keeping my BPM option open. My husband describes it as my emotions needed to catch up w/ my brain. At my age (54) my life is more important to me than my breasts. So far my surgeon has reassured me that we have time to monintor things closely before we go the BPM route. Thanks for writing and let me know what you all learn as time progresses.

Hello everyone~I have not been on the board for quite a while since I was trying to "move on" I guess I felt time away from all the discussion might help.  Of course, in between I've heard so many stories just through friends, work etc. of other ladies struggling with this beast! 

An update ~ I've got nipple reconstruction scheduled the first week of Nov.  I'm so excited about that.  The mastectomy was Dec 07, so it's been almost a year for this whole process.  I ended up having TAH w/removal of ovaries and tubes 4 wks ago.  There was thickening of endometrium, fibroids and distorted uterus that was the size of 4 mo pregnancy!! (No wonder sit ups weren't working!) I had an endometrial biopsy that was benign prior, but doc said with the bc history(highly estrogen/progesterone positive) and the monthly problems with the excessive bleeding, pain, and the thickening of uterine lining...He felt it was the best way to go.(I wonder how much worse it might have been if I was on Tamox??)  It turns out that there were multiple fibroids (5cm for largest), fluid filled cysts on ovaries, tubes and myometrium. Also, adhesions...(endometriosis).  All of that considered benign, but needed to come out and I'm looking forward to feeling much better going forward.  Also, no signs yet of that "instant surgical menopause" and doc says by now after 4 wks. it's possible that I won't have increasing symptoms....things usually start right away.  Anyway....sorry for such a long post, but wanted to let you know that all this started with LCIS and I'm one of those aggresive people who chose to do the PBM's and eventually the hysterectomy.  I haven't needed any rads, chemo or tamoxifen and that was my goal!!  I did have my most recent follow up with the oncologist yesterday, who wants an ultrasound of thyroid, since he felt something there.  I'm hoping it's just a bit of swelling or irritation because of recent surgery??  Then after that, the next follow up in February with a PET scan just to check whole body.  I know it seems like so much....but I think finding things early and attacking quickly makes me feel better. (Maybe I'm just a control freak??) Ha...I know everyone is different in their comfort level and I just want to send my best wishes to all who are making decisions and struggling with all the questions.  tt214 did you have the PBMs??  I'm curious to hear how you are doing??  I hope all is well!!

LCIS girl