Anyone starting chemo in Aug. 08?
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Hey ladies! Perfectly acceptable and understandable to be negative, angry, quiet, whatever!!! I think I got most of the crap out of my system when I was first diagnosed, but who knows how I'll react with further treatment, especially the taxotere. I have always thought Cancer sucked, now I know firsthand! On a better note...went and had my bloodwork done this aft, it was excellent according to the onc. My neutrophils (now that I know what they are!) were 5.3, they want 1.5 or over, he said he had a few patients that could use my extra 3.8! Funny dr. So, I'm good for tomorrow for my 2nd FEC. Guess I'll see how this one goes! The nurse didn't think I had lost any hair yet, she hadn't seen me before. I ran into a friend today and she said she loved my haircut! I guess I'm lucky it's been coming out pretty evenly, it was a little windy out today and I thought I was going to lose a big hunk. I have a do-rag and bandana in my bag just in case! Do you bald hotties put anything on your heads, like moisturizer?! I took exlax for a couple of days after the last chemo, to keep things moving, think that helps with the heartburn too. I think I also took a couple of famotidine (generic pepcid), and yogourt drinks, and acidophilous. I was given ice chips to suck on to prevent mouth sores, used biotene toothpaste and mouthwash and didn't get any (knock on wood!). Well, back to getting all my daughter's meds ready for a couple of days...Hope everyone has a good night!!!
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BALD HOTTIES~ I would'nt ever stop talking to any of you, without all of you I would have never got the courage to ask my doctor what stage of cancer I have or even ask him any questions. Every doc visit I had I would step out the roonm and have him tell my husband, I was like a scared frozen animal. When I first got on this site I would read everyones post and only wished that I could be couragous and brave like you bald hotties and thank God I'm getting there. That's why I post WHEN WE FACE WHAT WE FEAR.... WE BECOME FEARLESS!
That's my goal to become fearless! I also believe that out of something bad comes something good.
Hood1980 I would love that!
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Good Morning,
Congrats to Nurse Kim and Bette Lou for surviving another one! I also had TX3 yesterday. DFOnt-good luck today with yours and great news on your count. I got through it with no reactions. However, didn't sleep too wel last night with the steroid. Last day for them today, but I will take an Ambien tonight. I'll go today for the Neulasta. I scheduled my last treatment for 9/30. then I will just go every three weeks for Herceptin (not a chemo drug, but a targeted biological drug) and I will start Tamoxifen in November. Woo-hoo!!
Hope everyone has a great day, and here's to few SEs for any of us at that point.
~Misty
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MamaKaren I am so sorry that you felt invisible but don't feel alone because I have felt that way too. I am on here a couple times a day reading and learning from everyones posts. But...it seemed like when I posted it wasn't accepted the way some are. I too am very emotional these days. I read that you all have husbands and families and I sit here most of the time by myself. When I came on here I had hoped that this would be the place that I would not have to "fake the funk" and act like all is well. I have to do that in front of family and friends. I have lost some of my closest friends because of this cancer. I think it is hard for them to face their own mortality and if they don't see or talk to me then their lives aren't changed in any way. All is still well. Anyway, I knew I could not be the only one that gets sad, cries or just gets mad but noone on here ever talked about any of that. For a while I thought I was just being weak but now I realize other people feel that way but noone just talked about it. Nice to know I'm not crazy...LOL.
I read everyones posts and keep up with all that is going on with you. I am glad to be here and have learned alot. I, myself, will do better about posting my feelings. If anyone would like to talk you can always pm me. This is a large group of ladies and I know it is hard to keep up with everyone but I just want you all to know that I am here if I can ever be helpful to anyone even if its just an understanding ear.
Deirdre good luck on tx today. I hope everyone has a wonderful day.
God Bless,
Tonya
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Tonya... You sound so sweet. I can't imagine your friends would actually desert you at a time like this. Unfortunately, I think many people don't realize what a long haul bc treatment is. I know, in the beginning, I got tons of cards and calls and gifts, but then that drops off, and the only people (besides really close friends & family) who continue to keep in touch frequently are women who have had bc themselves and understand that it's not a quick recovery. And, if people don't see us all the time, I think some of them don't have a realistic image of our situations. My DH frequently tells me that people want to know if it's okay to call me, as if I'm probably too sick to talk on the phone. Oh, well... You just have to deal with what you have and cherish the people who are there for you. Is there a bc support group in your area? Most hospitals offer them. And I know the ACS has a program that matches bc survivors with women going through treatment to lend support. Reach out to them and you'll possibly make some new friends. Just some quick thoughts as I head out to my art class. Thinking about you and all the other wonderful women on this board... Deanna
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Hello Hotties (everyone)
Misty, We are riding this big wave side by side with our treatment. We will be starting Herceptin about the same time. I really don't know much about the drug, I just know that it's not chemo! It will be nice to go through this with someone at the same time. Keep riding smooth girl!
Tonya~ I feel the same way, doesn't it feel so good when someone says "I feel the same way" I love to be honest about my feelings, I feel if we don't express how we really feel then we are'nt helping ourselves much. We live everyday for our loved ones and hide behind that ugly mask that says "I'm doing great" but deep down inside we are screaming "help i'm drowning" but nobody know, It's hell. That's why this is a place where we can cleanse our souls and minds. I think that everyone feels weak and that's ok. So if you think you're crazy then hell we all are! I never thought of it like that, maybe that's why family and friends make calls to me but very short. It's like if they did their deed for the day so they're content. I know that my brother feels that the more he doesn't see me the better he feels, not that he doesn't love me but he can't stand to see me hurt. I understand him but rather see him all the time. Have a great day!
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Hi All,
Mamakaren, I realy like what you wrote about facing our fears! I must have missed the part about feeing invisible. Just know that you are not alone in this!
Tonya, I felt like some of my friends had deserted me too but I now realize that most of them just don't know what to say or do so they are staying away for now. I think 'what kind of friend would stay away when I need them?' On the other hand this BC is probably just as hard for them as it is for me. I have to cope with it......they don't. I don't think it is desertion.......just staying away for now until they can figure out how to deal with it in their own way. It is just as scary for them as it is for us. Anyway, that is my take on it. I want to believe they are still friends. On the other hand there are those who are absolutley going out of their way by sending lots of notes, cards, and little gifts, phoning daily etc. All very much appreciated, of course. Through all of this, I am learning how to be a better friend myself !
Dierdre, Acidolphilis is excellent. I bought some on the advice of another BC sister and it helps immensely.
I haven't noticed any sores in my mouth but it hurts my mouth to eat anything that is hard like nuts or cereal grains like granola. Soft cooked foods are easier to manage right now.
4th A/C treatment next Friday. It will feel really good to be halfway through with this!
Will start Taxol in October. I will also begin radiation in January. Wishing us all a wonderful weekend.
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Hi everyone!
Peaches - Sending prayers your way in the wake of Hurricane Ike...Hope that you and your family are safe and out of harm's way. We have received about 6000 evacuees here in Tyler and more are on the way. All 3 of our hospitals have gone on disaster alert here due to the possibility of widespread power outages, high winds, flooding and tornado possibility. Not anything near what your area is expecting though. Please check in with us as soon as you can so that we know you have weatered the storm!
I too feel deserted by some of the people closest to me. My dearest friend of the past 24 years seems to have dropped off the earth. I know that we all have busy lives...oh well! Maybe it is just that she feels that she doesn't want to bother me or...who knows. Damn this CANCER!!
Anyone else having extremely dry eyes and skin? Lotioning and exfoliating help temporarily and I am using artificial tears like crazy. The hot flashes that creep up several times a night are making me crazy!!!
Ok, well I need to go charge the weather radio and gather the flashlights. It could be an interesting weekend!
Hugs to all!
Stacy
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Denise, Alibug, momomjuju and LaShon- How are you girls? We haven't heard from you in awhile...starting to worry!
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I've got a killer cold with a sore throat. It came on suddenly yesterday, but by morning was a bit better. I just want to sleep, but didn't have much going for my 2 yo today, except gymnastics.
I'm sick of hats. It's too hot. I've gone bald three times now. My 2 yo tells people I look like boy!
I hope everyone here feels heard. I don't have the wherewithal to respond to everyone.
Roya, is dd in garderie, creche or MS? Sounds like it wouldn't be school since you said daycare. My older dd didn't start until kindergarten.I'd love to pay 100 bucks/month for garderie again!
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Hi everyone, I am new to this and wanted to join in on the thread. I had my first round of Taxotere. Carboplatin and Herceptin on 8/25. My next one is this coming Mon. I have been reading all your posts and what a help they have been to me. I have 5 more to go and will finish on Dec. 8th. I did not have too many side effects with the first session but my WBC went down to .9. I did get neulasta after that happened and they went up and I am doing fine. My hair is thinning out alot and I am still having a hard time with all this. I am Her2+ which really scares me. Is it okay that I join in on this. Misty you have been quite an inspiration and I look forward to how you feel on your 4th round.
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Mamashift, my littlest DD attends the Lennen Bilingual School. She absolutley loves it and I am sorry that I didn't put her there sooner. I appreciate the way the French government take an active role in seeing to it that education gets top priority for all students including the littlest ones.
I'm sorry that you are suffering from that cold and sore throat. Hope that you are feeling better soon!
Corinne6, Welcome, I'm glad that you have found us.
This is a wonderful group that really cares. Sharing info with my BC sisters has been a real lifeline! -
MamaKaren, I have already started taking the Herceptin with the tax. and cytox. I have had 3 so far, and will get the 4th on my last TCH round on 9/30. Then, I will take it every 3 weeks through next July. That is, if my heart echos continue normal. Make sure you ask to get one of these before you start Her. I will go for the echos about every 3-4 months. The Her. has been fine so far with the TC. I do get a runny nose for several days, but I don't know if this is due to the TC or the H.
Corinne, welcome. Thanks to Stacy, she got this strand up and running, and I joined in at the beginning. I am glad you have been been reading through the posts and getting inspired by all of the strong ladies here. My WBC went down low, too, after the 1st TX, so now I just take the shot the day after, and it has been fine. You will get through this. I am only 40, and this has really tested my strength. But, thanks to my wonderful husband, close friends and family, and all of the incredible ladies here, it has made this situation more tolerable. I am now at a point where I feel calm and just want to move on. The worst part was losing my lovely hair, but I sport my wig wherever I go. I never leave home without it!!
Stacy, your new pic is gorgeous! I bet you are getting excited for your big trip to NYC. When do you leave?!
To all, have a good weekend. I am hoping the SEs stay low for this third round of mine, as well as everyone else's!!
~Misty
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Hi Friends,
Missed all of you! I'm doing better. Still have that ugly taste in my mouth and can't tolerate water- (Crystal light it is) but the constipation, nausea and fatigue are gone. Yea!
Tonya: Glad to hear your WBC are up. Guess you're getting used to TX!
Dawn: Thanks for the Senekot tip. I was thinking about taking something before TX. I definitley will next time.
MamaKaren: Congrats on only having 1 more TX to go! Awesome. I take Protonix for gastro-reflux and it works wonders. Ask your Dr. I'm also glad to hear you're feeling better! I was on the emotional rollercoaster a few weeks ago. You just gotta let it out. We're hear for you!
Hood: You too! I hope you're feeling better. This does suck. We're all going to get through it. I know. Unlike many of you who'll soon be ending TX, I'll be here until January continuing this post..will anyone be left??
Roya: You're so right. We will be 10 x's the women we were before bc. No doubt. I like you get queasy just thinking of chemo, but it's killing those cancer cells.
Stacy: I just got my 2 new scarves from Anoki! I love them.
Thanks all for the warm sentiments. Wishing all of you a SE free weekend.
Prayers & Hugs,
Jeannine
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Eighteen days since first AC x, and I still have hair! I noticed a small bit in the shower drain today, but that's all. I almost feel guilty with all you losing your hair. Did I buy the wig for nothing? I wish I knew what is happening.
Day three since TX # two, tired and no appetite. Forcing myself to eat small meals, but weight is down 3 lbs.. That makes for a total loss of 7, about which my onc is not happy. On that note, I will try to eat a snack, but my heart's not in it.
On a good note, my IBC breast is shrinking! I even noticed that my bra is baggy on that side today. Go chemo go.
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I had my first TCH 22 days ago and my hair has been thinning. So today I got brave and wore my wig for the first time. I love it. I think it looks better than my own hair. One of my friends couldn't believe how good it looked and decided to get one for herself. She doesn't even have cancer!!! That made me feel super good. Anyhow, I go for my second TCH on Monday. The only thing I have been praying is that I do not get nausea. I can handle the hair thing but I am not good at feeling sick to my stomach. Has anyone here changed there diets to organic? After my chemo ends sometime in Dec, I need more surgery because the margins are not clean then I get 6 weeks of radiation. Ugh!!! Incase anyone may be helped I saw an naturopathic doctor who put me on glucomine for mouth sores. So far it has worked. I had that awful taste of metal but seems to have gotten much better. I am so happy to have found you and hope that I too can encourage others. I am 49 and have 8,10 25 and 26 yr old kids. My daughter who is 26 is getting married on the 27th. I will definitely be wearing my wig. It has been hard to plan a wedding through all this but I am trying to concentrate on that. I am so proud of all of you and my prayers are with each and everyone of you.
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HAPPY SATURDAY HOTTIES!
JEANNEIE~ THANKS FOR THE TIP! WILL DO.
MISTY~ I ACTUALLY HAD A MUGA SCAN BEFORE I STARTED MY TOXATERE AND EVERYTHING LOOK GREAT DOC SAID.
CORRINE6~ WELCOME! YOU HAVE FOUND THE RIGHT PLACE, THIS IS A HEALING BALD HOTTIES PLACE. WE ARE HERE FOR YOU!
MAMASHIFT~ SORRY YOU ARE SICK
I WOULD DRINK DANACTIVE IMMUNITY, IT'S A DRINK YOU CAN FIND IN THE DAIRY SECTION. MY GREATGRAMA WOULD MAKE ME A HOMEMADE SOUP, CAN YOU BELIEVE IT SHE IS 97YRS OLD AND SHE'S TRYING TO MAKE ME FEEL BETTER! SHE IS SO CUTE AND VERY STRONG. YOU KNOW THAT SHE NO SICKNESS, SHE IS PERFECT JUST HER LEG HURTS ONCE IN AWHILE.ROYA~ I CAN'T WAIT TILL THE DAY THAT I BECOME FEARLESS!!!
BETTELOU68~ THAT'S WHY I ALWAYS BELIEVE THAT OUT OF SOMETHING BAD COMES OUT SOMETHING GOOD. YOUR SICK BUT ON THE OTHER HAND CONGRATS ON THE SHRINKAGE!!!! AMEN TO THAT. HAVE A WONDERFUL DAY.
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Hope everyone is well in Ike's path. Please let us know. Good luck to all scheduled for chemooo this week! I'm scheduled for Wed. Tx #3....only 1 more to go! Still don't feel like eating but some how have gained 5 pounds since starting chemo! How did that happen?!!! This is my good weekend, but I still don't fell like doing anything! The house is a mess, the cupboards are close to bear, my daughter wants to go look at a place to have her weeding reception! I don't feel like doing any of ot. It's suppose to be in the upper 90s today and may set a record! I'm already hot flashing with out that! Here's to the August "extremely" Hot Baldies! Hope all enjoy their day!
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Having a quiet Sunday. Lots of rests and fluids. Had a bit of a scare at church; felt really weak and dizzy and had to sit down for the rest of the service, but better now.
Hair is coming out bit by bit. Will tomorrow be "wig day"? I don't know how thin to let it get before I commit to the wig.
Tom is talking about the future. He wants me to look ahead to Thanksgiving and Christmas, AND a spring wedding. I have to pinch myself sometimes that this man loves me with thin hair and the coming departure of one or both breasts. Love must be blind! Anyway we had a good talk today, and he make me feel so encouraged. I can face this cancer with a man like this at my side.
I talked with my DD today. She and her husband are moving into a house in a few weeks . I would so like to have the energy to go and help her, but I can barely get to work and back. I know she understands, but it is hard for me when I see their excitement with buying a home and can't help right now.
It is HOT in PA today. Hope you are all keeping cool and no SE's. I lost two more pounds today. Must try to eat tonight.
But maybe a nap first.
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Congrats Bettelou! How wonderful your man proposed today! This cancer gig will be behind you before you know it & amazing to have the man you love to give you such great support. Get your rest but you need to eat too! Take care!
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Bette... So nice to see your happy news about Tom! I'm so glad you have his support and commitment. He sounds like an amazing man! And keep us posted on your hair. I think among this group you've held onto yours the longest!
Joyce... I could have written your post myself -- similar weight gain, very little energy this time around, house starting to look pretty bad. And, even though we'll soon be on the downhill side of chemo, I'm almost dreading tx #3, which is the same day as yours. I have read elsewhere that for some women #2 is the worst, so let's just hope that we're in that boat!
Peaches, Stacy, and you other Texas gals... I'm assuming some of you are without power. I know we're all anxious to hear from you as soon as you're back on-line, and pray that you and your families are all safe.
Roya... I loved your Phoenix rising from the ashes analogy. It's a very powerful and motivating image to embrace!
Nico... Haven't heard a peep from you since the news that they were switching your chemo regimen. Please let us know how you're doing. I'm concerned.
Hope everyone else is enjoying a relaxing Sunday with as few SE's as possible. Thinking of you all ~ Deanna
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MommaKaren, that has been the toughest thing for to accept: that I won't be that 97 year-old who's never been sick a day and is in perfect health. But I guess I can be her, minus a breast.
The sore throat turned into a cough. Overall, I seem to be kicking this virus' butt.
Good that everyone is doing relatively well. Some have good news, congratulations for that, and some are feeling good in their wigs. It's just too hot for me to wear a wig.
Tx #4 coming up on Tue. I get nauseated, too, just thinking about it.
I talked to my husband about my feelings about doing this alone. I'm not feeling good about it, especially since I had daughter #2 alone too. Sometimes I wonder what that's all about -- what kind of cosmic lesson am I supposed to be learning here?
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Hey girls! All is well here in East Texas. We lost power for several hours on Saturday, but we made the best of it. The kids even went out in the rain and wind to ride their bikes up and down the street while dh and I hung out in the garage. It was much cooler than in the house. Dh and I are busy planning our NYC trip for the end of this week. Just wanted to check in and see how everyone is doing..Sending hugs to all and wishes for an se free week! Will write more later!
Stacy
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leaving in a half hour for my #2 TCH. last time I was there from 9-4/ It was my first one so I had lots of questions.ect.
Bette Lou how wonderful. I am so happy for you Hang on to that guy they are hard to come by!! i have been married for 30 years to the most wonderful man on earth, in my opinion anyways!!
At ;east half of my hair fell out yesterday. What a shock!!! I did not think it would make a difference to me seeing it will grow back but it did. i am now sporting a wig on day 24 because I have to. It looks great and I feel good for now.
If anyone here is having treatment today besides me I wish you the best/
Mommy3abm/ I live in Connecticut just 2 hours from NYC. It is a totally different world. I like it there cuz I get to walk and walk and walk!!
Mama shift/ Prayers will be with you tomorrow. i really wish you the best.
Well gotta run girls, I will try to post a pic if I feel okay sporting my wig and see what you think. it is really nice and long. Of course my insurance would not pay for it!!
Corinne
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Sorry guys I haven't posted!!!! I am feeling really good - of course!!! I go Friday for my 3rd treatment. Only 1 more to go after that!!! YAHOOOOO!!!!!! Hope all the Texas girls are ok and hanging in there - I was up late Friday night watching as the weather channel keep showing the updates - I was just sitting there worried about all you girls!!!!! Hope everyone is feeling good!!!!! Loves to all!!!
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Bettelou how wonderful for you. He sounds like a wonderful man.
Stacy its good to hear from you. Glad you weathered the storm well with no damage.
Corinne I hope today goes well for you. My second tx only lasted about half the time as my first one. I hope it is that way for you also. Wishing you as few se's as possible.
MamaShift good luck to you tomorrow. I also have tx tomorrow. It will be #4 (my last EC) I could jump up and down if I had the energy....LOL.
Well its off to work for me for now. I hope everyone has a wonderful se free day. Happy Monday!
God Bless,
Tonya
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Hey ladies
I'm still hanging on to my hair. It's looking thin on top though so I'm going out with a hat for the first time today. I never wear hats so this feels pretty strange. It's to a breast cancer support group meeting though so I guess that's a good place to start! I still have hair sticking out the bottom. My husband offered to shave it, I think he's getting sick of my shedding everywhere! Otherwise, I had my 2nd FEC on Friday. It went well, I feel better than the last one, just a bit of an icky feel in my mouth mostly. I'll read more when I get back.
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Today tons of hair came out in the shower, so I wore my wig. I am getting compliments on it, but I feel like I am wearing a disguise. Just who is this woman in the mirror? When I put on sunglasses to go out at lunch, the effect was even more mysterious. Just the same, this thing is coming off as soon as I get home.
Having a pretty good day at work, as long as I suck on hard candies to get rid of the taste in my mouth. I am actually getting things accomplished. Plus there is that incredible shrinking IBC breast. Go chemo go!
Tom called me at lunch. He is so sweet. He says I can wear the wig around him if it makes me more comfortable, but he is not going to run off because of thinning hair.
Bette
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Bette, I feel strange wearing my wig too! I feel like I have an animal on my head. I'm not sure I'll ever get used to it. I prefer scarves and do-rags, but I think other people are more comfortable if I wear one of my wigs. I wish I had a cute head like you Stacy! I'd go "topless" but mine is quite funny looking!
Glad to hear Ike wasn't too bad for you!MamaKaren - It was GREAT talking to you yesterday. Please stay in touch!
Good Luck to all having chemo this week.
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Hi all
On Sunday which was Day 19 of my TC chemo my hair started falling out. I had my son do a buzz cut so now I look like GI Jane also lost my nasal hairs and losing pubic and arm hair. This is such a fun journey. I do my next chemo in 2 days. I have developed neuropathy in my feet so now I am on Neurontin 300 mg at bedtime and 100 mg Vitamin B 6 daily. It seems to be helping my feet are just tingling now before they were uncomfortable burning and it hurt to walk. I walked 1.2 miles today without problems.
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