BCP's? What makes YOU wonder?

Kleenex
Kleenex Member Posts: 764

Just out of curiosity - spiked by the thread regarding Premarin and ILC - I am just wondering if other pre-menopausal women with ILC have any similarities in history. I am 45, pre-menopausal, and took birth control pills for a loooooong time. I started with something fairly estrogen-heavy at about age 18, to help with acne, among other things Laughing, and have taken various types of pills whenever I was not trying to get pregnant, actually pregnant, or nursing. This equals something shocking like 22 years of BCP's. Three different gynecologists in three different states (I've moved twice in the last seven years) urged me to stay on the pill after age 35 to see if I could skip menopause. So much for that idea - I'm probably headed for menopause later this fall, all at once!

I'm slim, I don't eat a lot of red meat, I hardly drink, I got my period at 14, I nursed two children for a little less than one year each, I have only one 75 year old great-aunt that had breast cancer, I had no prior areas of suspicion or concern in my breasts. I did have my girls late - 31 and 33. Beyond that and being a woman with breasts, I don't SEEM to have a lot of risk factors...

Dr. Susan Love isn't a big fan of the idea of using BCP's in perimenopause - and now I'm not, either! Supposedly, they are not a risk factor, but it's admitted that BCP's are not "one" pill. It's the ones I took in my 20's that seem most ominous now. Obviously, this is all suspicion and I can't go back and do anything, but I'm just wondering. It's not nice to fool mother nature, I guess.

Anyone else take BCP's for a long time? Or anyone pre-menopausal with ILC who did NOT take BCP's?

Coleen 

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    I dont have ILC...I had IDC, but yes I took BCP's for alot of years begininng at 19 yrs...ended when I was dx'd with bc.

    I dont even have a bc history in my family, but do have at least one of each other type of cancer you can think of in my dad's side of the family.

    I was dx'd at 45 too....breast fed two kids as well...

    It amazes me at the similarities between breast cancers as well as the things we have done in the past that we were TOLD were entirely safe to our bodies....if it wasnt birth control, then how about ladies taking HRT?

    I guess it really doesnt matter since what it done, is done but how are we suppose to feel secure with our doctors recommendations if this is where it lands us!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Jule

  • wishiwere
    wishiwere Member Posts: 3,793
    edited September 2008

    Only took BCP's for about 10 years, but had pre-menopausal BC with both types, so who's to know. I think it's the luck of the draw, irish or something else, the lottery as some have said.  Either way, it's hindsight and nothing to help with the nows.  All the best with you surgery though!

  • nash
    nash Member Posts: 2,600
    edited September 2008

    I started taking the Pill at 21, only had breaks for my two pregnancies, then came off the Pill when diagnosed with ILC at age 38. So I was on for the better part of 15 years.The tumor was 2.7cm, so it had to be growing for a while. I, too, am thin, exercise a lot, eat well, nursed my babies, etc, etc.

    My onc blames my cancer on the Pill, but I'm not convinced b/c 1) I have a strong family history of cancer, including my mom who died of bc (although I'm BRCA negative), and 2) although my tumor was ER/PR positive, it was only moderately so. So, who knows. I had plenty of OB/GYN's tout the health benefits of bcp's, even with my family history of cancer.

  • wishiwere
    wishiwere Member Posts: 3,793
    edited September 2008

    Only took BCP's for about 10 years, but had pre-menopausal BC with both types, so who's to know. I think it's the luck of the draw, irish or something else, the lottery as some have said.  Either way, it's hindsight and nothing to help with the nows.  All the best with you surgery though!

  • Kleenex
    Kleenex Member Posts: 764
    edited September 2008

    Hi, wishiwere - Yes, it's hindsight, very nearsighted hindsight, but that's why I'm using the word "wonder." So many women seem to be blindsided by this diagnosis, and especially with this ILC variety that's less common. I'm just curious about what crosses our minds when we're thinking about where this came from.

  • wallycat
    wallycat Member Posts: 3,227
    edited September 2008

    I was on BCP for probably a total of 10 years.  Hadn't been on anything for years as DH had a vasectomy.  My twin sister JUST stopped taking BCP....no cancer for her.  I hope she never gets it, but again...crap shoot.

  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited September 2008

    Hi,

    I'm an ILC gal who was perimenopausal, age 49 who had been on BCP for 19 years.  I am slim, nursed 2 kids for a full year, had them at age 26 and 30, started my period at age 14, and was told by my OB/GYN to stay on BCP and sail through menopause.  We sound a lot alike.  I often think mine was caused by the pill also. 

  • Maire67
    Maire67 Member Posts: 768
    edited July 2010
  • bbmom
    bbmom Member Posts: 391
    edited September 2008

    I started taking the pill at 18 and took it until I was dx at 42. Two breaks for my pregnancies, one at 25 and one at 31. Nursed both kids too. Even took the depo-provera shots for a while instead of the pill until the insurance stopped paying for it. Only one great aunt with bc too.

    I know that they say bcp's are not linked to bc, but I find that hard to believe. With very few risk factors for me I still can't help thinking over 20 years of the pill had to contribute to a hormone receptive cancer.

  • azsunn
    azsunn Member Posts: 201
    edited September 2008

    I took the pill for only a couple of years, had my kids young (25 and 27), breastfed them both, kept my weight in a healthy range and I still got it.

    That being said I will encourage my daughter to avoid long term hormonal birth control just in case. 

  • Little-G
    Little-G Member Posts: 647
    edited September 2008

    I took the pill for maybe for a couple of years in my late 20's, because of endometreosis and wanting to have kids.  I was dx at 45, pre-menopausal.  I am also very slim, have ate pretty good most of the time.  Not counting the oreo I just ate :-)  It's so hard to say what causes this.  So many variables in everyone's life.  I don't think about that part anymore.  It will just drive you crazy.  Instead I try and focus on now.  I'm doing OK now, and I'm glad for that.  I wish all of us the best!

    g

     However....I do agree with avoiding hormonal bc or any of these other pills they come out with now to shorten a girls period!!  give me a break....don't get me started on that!

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited September 2008

    I was on the pill 3 different times- for about 10 years total.  Last was on the pill for 3 months at age 35- when I had a TIA.

    I dont fit the bill for getting bc either. (slim, never smoked, Had 1st kid at 25, Exercise, Dont drink alot, breast fed both kids, amost 13 when I got my period)  I dont think alot of women do fit the 'profile'

    my 20 yr old is on BCP.   It has really helped her dibilitating cramps.

     I would like to know if there are some that may be safer then others.

    Anyone have info on them?

    Pam

  • susaloh
    susaloh Member Posts: 103
    edited September 2008

    I´m German and live in Germany, but Kleenex, my story is similar to yours in many ways! I was diagnosed at 45, I had my kids at 30 and 32 and breastfed them for 2.5 years in total (living in the U.S. then by the way), I´m slim, don´t smoke, used to be vegetarian, had one grandmother who developed bc at 75 and died of something else at 98... The differences: I only took birth control pills for maybe 4 years in total in my twenties and started my period already at 12. No idea what causes this.

  • unique
    unique Member Posts: 554
    edited September 2008

    I took BCPs for nearly 15 years, and I feel this is most likely the tumor cause. I breastfed my son for 3 years! No other risk factors, don't drink (maybe should, huh!) smoke and try to eat well.

    Dx. 6/11/08, ILC, 4cm, Stage IIB, 2/12 nodes, ER+/PR+, HER2- 

  • kim2005
    kim2005 Member Posts: 49
    edited January 2009

    I really believe there was a link for me and perhaps for many with ILC and either previous birth control pill OR HRT....perhaps all the synthetic estrogen.  I also took infertility drugs for 3 years.  Took birth control pills for 20 years...when I began BCP's in the late 70's, they had much higher amounts of estrogen in them too. 

    I just got done reading Breakthrough with interviews with 28 doctors who are VERY accomplished and intelligent...one oncologist believed there is a strong link and many others agreed

  • Kleenex
    Kleenex Member Posts: 764
    edited January 2009

    What is "Breakthrough"? Is it a book? Or?

    One of the things they always admit, after saying that there's no documented connection between BCP's and breast cancer, is that "The Pill" is really a lot of different drugs. I think mine tended to be heavy on the estrogen, because one of the main reasons I was taking them was to keep my acne under control.

  • Kleenex
    Kleenex Member Posts: 764
    edited September 2009
  • Seabee
    Seabee Member Posts: 557
    edited September 2009

    I took birth control pills briefly in my late twenties, but stopped because I couldn't remember to take them regularly. Went to an IUD instead. Then in early menopause I foolishly let a gynecologist talk me into trying HRT, and the time frame corresponds closely to when my tumor probably started to develop. Once again I didn't continue HRT for long because of the nuisance of remembering to take a daily dose, and soon the news broke that HRT seemed to increase BC risk, so I certainly didn't try it again.

     I know they say you have to do HRT for awhile to make it a significant risk factor, but frankly I'm skeptical.  I think it did have an infuence in my case, and I blame the gyn for pill-pushing.

  • kim2005
    kim2005 Member Posts: 49
    edited September 2009

    I was on BCP's for 20 years, beginning as a teenager.  I was never able to get pregnant so my body did not produce that protective progesterone.  I took infertility drugs for several years as well.  One OB I see now thinks that I've been estrogen dominant for years.  Now the OB AND my oncologist say it's OK for me to take bioidentical progesterone to balance my hormones.

  • Kleenex
    Kleenex Member Posts: 764
    edited September 2009

    kim2005 - That's interesting - the bioidentical progesterone. What will it do for you? And, HEY! You're the one who mentioned "Breakthrough" last year - what is that? A book?

    Shouldn't there be some identifiable symptom of "dangerous levels of estrogen" that could be tested for, or are there women out there full of estrogen who are completely fine? I do remember reading somewhere that if you take BCP's or especially HRT and your breast tissue changes (becomes more dense), you might want to stop as that may signal that estrogen is harmful in your particular case...

  • kim2005
    kim2005 Member Posts: 49
    edited October 2009

    Hi Kleenex,

    Geez, you can see from the nearly one-month delay that I haven't been on the boards much!  Yes, I did read Breakthrough last year and although Suzanne Sommers is QUITE controversial, the interviews with many of these doctors made sense, especially in regards to the estrogen dominance.  The drug companies created Progestins (designed to mimic progesterone) which ended up causing MANY adverse issues.  Progestins are NOT the same as natural progesterone and research is showing that there tends to be a great imbalance in many women, hence the estrogen dominance. 

     I just saw my oncologist today and we were even talking about how at one point progesterone was used to treat breast cancer.  I do believe there is a greater roll that we are still learning about. 

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