Dare to be breastless?

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I have been to four plastic surgeons now, and all agree that I have a 50/50 chance of implants working for me due to my radiation after left mastectomy.  I have had many surgeries for various health reasons and am only 45.  The thought of the  flap surgeries, even implants, sounds so risky for me and I am trying to decide if it is really worth the risk to go through reconstructive surgery.  I am considering a profilactic mastectomy on the R or breast reduction on the R...but what if cancer develops in the R breast?  I am praying my husband will just tell me that I am fine without breasts, and that I should not risk more surgery...but he thinks I will be happier in the long run with reconstruction.  In my heart, I feel being breastless will be just fine.  I have had large breasts all my life, and the idea of being the size I want with prosthesis, or nothing at all, is quite wonderful.  Any thoughts from any others in my position?

Comments

  • Lolita
    Lolita Member Posts: 231
    edited September 2008

    I have only been breastless since last November, but so far it has been fine.  My husband was talking about reconstruction until he saw a video about the procedure. He never mentioned it again.  Of course, there is some sense of loss, but I was glad to be done with the treatment so quickly.  Mostly, I am just glad to be alive and healthy right now.

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited September 2008

    I am going through reconstruction (expanders w/implants) I did not have Rads.  Im the same age as you.

    After my BLM  & expanders were placed I did start out with 100ccs in each side.  But it did not show very much.  ( my right side was Profilactic)

    I felt very comfortable wearing my summer tops & Tshirts (fitted)  I thought a few times...Why did I bother to go through reconstruction?   It felt fine & Nice really.

    I know there are alot of Ladies here who have not had reconstruction that will be here soon to tell you how they feel.

    Good luck, Its a hard decision to make *& having had Rads makes it a little more tricky in deciding.

    Pam

  • wallycat
    wallycat Member Posts: 3,227
    edited September 2008

    I have had no reconstruction since my bilaterals (june 07).

    My DH was horrified when he, like your hub, Lolita, saw what it entailed.

    I can't add more----yes, there are some days when it hits me and I am very wistful for my boobs back (I too was large breasted.  It got me lots of attention, gave me confidence and I had very sexually responsive boobs), but the majority of the time, I don't give it a second thought.  I am grateful I could avoid the rads.  I am hopeful that mastectomy has significantly reduced my risk of recurrence plus am grateful no more "checkups" to attend to.

     I go around flat all the time.  I've never even purchased a form/bra and figure this is one benefit of surgery...NO MORE BRAS!!  Jogging, boating, biking are all so much easier.

    Best to you with your decision.

  • kerry32
    kerry32 Member Posts: 125
    edited September 2008

    It is such a personal decision that only you can make - but it is a very hard one to make.  I too am not a candidate for impants due to heavy rads.  So for now i'm going to stay like this - maybe consider the other types of recon- diep,etc  down the road.  I was large also and this is a very freeing experience - i look better in clothes to tell the truth - the only thing i can say is that i am very glad i removed the other breast - 1-it relieves my mind of the worry for every mamogram and 2 it is much easier to match the prothesis if you are bilateral - you can be any size you want -

    good luck with your decision

  • aike
    aike Member Posts: 10
    edited September 2008

    You are right in that there is no hurry to have reconstruction...it can be done at a later date.  I think your word of "freeing" is right on.  I think about all the clothes I could wear and how I will not have to have MRIs and Mammos every year.  Did you ever consider reduction in the other breast, or why did you decide to have it removed too?

  • paige-allyson
    paige-allyson Member Posts: 781
    edited September 2008

    I am scheduled for prophylactic mastectomy of my remaining right breast a week from Tuesday. After learning last year about reconstruction and what it entails it was very clear that it's not for me. My husband totally agrees and was horrified that I even considered it briefly. I am looking forward to being breast free and not having to 1) have anymore mammograms and MRIS and 2) not having to wear prostheses and being able, if I want, to wear smaller ones. I already have a swimsuit I want picked out at the Speedo website- something I could never wear with my natural breasts and certainly not with just one. I've never been very identified with my breasts. I think I'll feel fine about my body without them- better in fact.

  • otter
    otter Member Posts: 6,099
    edited September 2008

    aikenberry, I, too, ask myself that same question:  "What if cancer develops in the right breast?"

    I had a left mast/SNB without recon in Feb. '08.  At the time, I never even considered doing anything with my right breast, because mammography, ultrasound, and MRI indicated there was nothing suspicious there.  Will there be something, some day?  Will I regret the decision to keep that healthy breast?  Possibly; but at this time (7 months post-surgery), I'm fine with keeping it.  OTOH, my breasts were small--just 34/36 A; so reduction or rearrangement was never an issue.  (OK, maybe breast augmentation...but that's just not me!).

    As for whether or not you should have recon ... that decision should be yours.  Yes, I know, our guys might think they own our boobs, or at least rent them.  In reality, we're the ones who have to deal with all the breast issues (constriction, jiggling, judicious exposure, proper concealment, bra discomfort, whatever ... and BC of course).

    I had to laugh at Lolita's comment:  "My husband was talking about reconstruction until he saw a video about the procedure. He never mentioned it again."  My breast/onco surgeon referred me to a PS so I could learn about recon options.  My husband and I went to the PS consult together.  After seeing some photos and diagrams and watching a video, my husband walked out of there shaking his head.  I asked him what he thought, and he said, "You'll never do that."  He was right; but I think he meant he would never do that if he was the one making the decision.  He is a minimalist when it comes to medical care, especially surgery.  He didn't even want me to have a mastectomy--mostly because he thought a lumpectomy/rads would be simpler.  (I had the mast anyway.)

    So, "dare to be breastless"?  I'm breastless on the left side as I type this.  Heck, I'm bra-less most of the time, these days.  I'm always on the lookout for a comfy, soft-banded (LE issues), wide-strapped, size-A bra, to wear when I "need" a bra.  Otherwise, life is good.

    otter 

  • JoniSeattle
    JoniSeattle Member Posts: 5
    edited September 2008

    I had my second radical mastectomy a week ago and do not plan to undergo reconstruction.  I want to feel well and get on with my life.  With my first mastectomy 2 years ago I found that foam swim forms (very inexpensive and available at places like Nordstrom's swimwear department) worked well in any bra I had.   When I'm not at work, I usually wear casual sport clothing (e.g. yoga or running clothes). 

     I do have problems finding bras that don't have "underwires", so suggestions on brands/models would be welcome.

  • NancyD
    NancyD Member Posts: 3,562
    edited September 2008

    aikenberry,

    I had a bilateral mx in early July. I haven't purchased any prosthess (except the soft fluff-filled ones that came with my Softee Two camisole). I'm feeling strongly that I will have recon but am currently having radiation tx, so I will wait until that's done and then consult a ps.

    Since I plan to have recon, I'm not going to invest in any expensive prosthesis. I have been trying to wear clothes that camoflage my breatlessness, wearing blouses with ruffles and jackets, but it's been hard in the summer heat. And certain clothes just drape better with breasts. I'm hoping when the weather cools, and I can wear more layers, that my flatness will be less evident.

    When my rads are done and I can wear a bra again (they told me not to while having the radiaiton), I have an "occasional" solution for the clothes that need a breast formation to look right. But I will probably be confusing a lot of people as I go from flat to busty, to flat depending on my clothing, LOL.

  • OLBinNJ
    OLBinNJ Member Posts: 236
    edited September 2008

    Joni,

         Buy the underwire bras you like and make a small slit to remove the underwire.  I also like the leisure forms for swimming and in some bras.

    Nancy - try a leisure form like the Amoena 126.  They are inexpensive, and good in the heat.

  • kerry32
    kerry32 Member Posts: 125
    edited September 2008

    aikenberry - to answer your question on considering a reduction on good breast - no i never did consider that. Right from the beginning I felt that would not work for me.  Plus some types tend to present themselves in the other breast more often and i had that type so that helped my decision.  I wear the prosthesis from morning to night with no discomfort so as far as that is concerned it' s very easy.   PM me if you want.

  • wallycat
    wallycat Member Posts: 3,227
    edited September 2008

    I forgot to mention that I recently had a job interview.....of course I went flat, as I own no forms.

    I even BROUGHT UP my cancer and pointed to my flat chest.  Granted, this is in the medical field so that may be more forgiving, but still....at 51, I am not stupid to think that age descrimination for work does not exist....add to that the BC/flat issue......

    I GOT THE JOB!

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited September 2008

    Hi Aikenberry.  The decisions we face are hard and also very individual to our own personal perspective and circumstances.  I had my first breast cancer in 2000 at the age of 47 and opted for a lumpectomy, chemo and rads at that time.  Five years later I had a new primary tumor in the other breast which was much more locally advanced so I decided that bilateral mastectomy was the best option for me. I also knew that I really was not interested in further surgeries for reconstruction, not only because I had extensive radiation, lymphedema and was at high risk for recurrence, but also because I felt I had already given enough of my life to the cancer treatments.

    The thought of going through additional surgeries and the accompanying risks of complications or failure was more than I could envision to be in my best interests.  I was more interested in healing, getting further away from treatment side effects, and getting back to a life that did not completely revolve around cancer.  I have not regretted that decision.  In fact I find that going flat has its own benefits in convenience and comfort, both of which rank high on my list nowadays. 

     I would highly recommend you check out our own Barb's site BreastFree.org which has a wealth of information about the choice to not reconstruct but to either go flat or use prosthesis.  There are personal stories, lots of bra, swimsuit and clothing recommendations, along with pics to help you decide if a non-reconstructed chest is for you.  You can find the site here:

    http://www.breastfree.org/ 

    There was also a thread I started some time ago regarding my decision to go flat without wearing a prosthesis which included comparative pics. You can find it here in addition to the BreastFree site: 

    http://community.breastcancer.org/forum/82/topic/610613?page=1#post_611232 

    Bottom line is you need to do what is right for YOU!  Others, including your husband may have valuable input, but it is what YOU feel is the best choice to help you progress in the process of healing, both physically, emotionally and spiritually.  Don't let others talk you into something you really don't want to do.

    Best wishes for your chosen path and speedy return to a life not controlled by cancer.

  • TammyLou
    TammyLou Member Posts: 740
    edited September 2008

    (Please don't throw tomatoes!  EEEEE!)

    I think that it is okay for you to try booblessness for a little while.

    I was small breasted and never wore a bra...so the thought of being forced to wear one to tote around prosthesis aggitated me...didn't suit my lifestyle.

    However, almost all of the large breasted women I know wear bras almost all of the time.

    So, you don't have to change your lifestyle to get through life.  I don't mean sex life or going to the doctor and getting naked life...I mean just going to the grocery store life.

    Going to the grocery store with your boobs on...or not.

    That life.  We spend almost all of our lives in that life.

    For myself, I felt remarkably conspicuous.  I still do.

    I hated going to the gynocologists office...feeling like I had to explain my body.

    I still do.  Supposedly, the scars will fade and not be so noticeable...but, I know.

    Reconstruction blurred the outward signs that I am a cancer patient.  When I have a shirt on, nobody knows.

    Women who tolerate prosthesis...blur the outward signs that they are a cancer patient.

     When you take your shirt off, your skin is a roadmap that spells out your history...same as me.

    Reconstruction helped the grocery store life...on the outside, I look "normal"...same as you do with prosthetics.

    These are very like prosthetics...the difference is that I don't have to strap them on.

    Tammy Lou

  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited September 2008

    My husband wanted me to have reconstruction. He didn't see the videos though perhaps if he had, he wouldn't have had that opinion. I wanted reconstruction too. I tried, but after almost a year of failed attempts, I gave up. I didn't want it THAT much.

    The truth is that now that I am used to wearing a prosthesis, it is much more like my old breast than the implant ever was. An implant does not move like a breast. When you lie down or do yoga back bends, it sticks out like a softball. Very embarassing and feels really weird. I also don't think there are many women who look natural naked after reconstruction. My reconstructed breast looked pretty gruesome. Personally, I think the flat chest looks aesthetically better and there's really nothing to explain. Reconstruction can look like a botched boob job whereas a flat chest is obviously a mastectomy. Reconstruction is really just a substitute for a prosthesis, not a substitute for a breast.

    I agree with TammyLou that it was nice not to have to remember to put on my prosthesis. However, for me, the downsides of that implant outweighed the downside of putting on my prosthesis every morning. Also, I didn't want to use my own tissue because that would require disfiguring another part of my body in addition to the long recovery time.

    It's a very personal decision. Just wanted you to hear my experience since I have seen both sides.

     Hugs, Susan

  • rumoret
    rumoret Member Posts: 685
    edited September 2008

    I had a mastectomy of my left breast in 2006.......and I may decide on removing the right breast in the future. I really like being flat chested on the one side and think about the freedom of not having the right breast.

    Do any of you experience aching in the middle of your upper back? I wonder how many of my aches are because of having one breast. I do wear my prothesis that attaches to my skin, and I wear my light weight foam form on other days....but I always feel like I need a massage right above the bra line. I sleep on my back because my left nodes were remove and I don't want the blood flow restricted and waking up with my arm totally asleep!

    Terry 

  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited September 2008

    Hi Ru,

    Yeah..I have that problem. My left breast is really big and heavy and so is my right breast-form. They feel the same weight, but they mustn't be. That painful spot..I got rid of mine last week by going to a brilliant physio. The problem was down around the shoulder and shoulder-blade area. It felt so good to get it fixed. I'll be going back if it happens again.

    I also have similar thoughts about being breastless..if I'd had a double m, instead of a single, I might have seriously considered leaving things alone! 

  • pip57
    pip57 Member Posts: 12,401
    edited September 2008

    I lived with mast of cancer side only for several months.  Hated the lopsided feeling.  Hated having to wear a big prost to match the good side.  Hated worrying about the good side betraying me too. Hated worrying about bra strap causing lymphodema in my arm.  My one shoulder started drooping and my back hurt from the unbalanced weight.  

    In Jan 08 I had the other breast removed. I am very happy with the results.  I do not wear anything.  It is very comfortable and liberating.  I still have some feeling on the mast sites.  I'm not sure that would be so with recon.  I did post the question once, but nobody with recon responded.

    Take your time to check out all the options before you decide what is right for you. 

  • rumoret
    rumoret Member Posts: 685
    edited September 2008

    Thanks. It would be interesting to see how many of us ache in the upper back from having one boob. Hope more chime in.

    Terry 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Like most of the other ladies here.......which by the way I must say to you all......I couldn't say it any better myself, I really am adverse to more surgery. I guess at this point I just can't see putting myself through all of that with all the what ifs. I had my MX in March and am glad to be past that nightmare. I am comfortable to go with just me at home and wear my prosthetic to work and out. I have gotten used to it quickly and have no discomfort with it.....even swimming. I am small breasted so being lopsided isn't as big an issue for me and I can get away with using a few diffrent types of forms to fill out my bra besides the expensive prosthetic altho I use it most of the time. Good Luck with your decisions!

    Otter, I see your still bra shopping huh??? What gives??

  • lv2cmp
    lv2cmp Member Posts: 1,363
    edited September 2008

    I did bilateral in 04 and opted for no reconstruction.  I have prosthesis but never wear them.  I wore them when I got them for about a year and then they were put in the box and I have not worn them sense.  I like the liberating feeling of being braless and boobless I suppose and its much more comfortable.  Everybody has their own thoughts and opinions though and we have to listen to our heart.

    Amy

  • Sassa
    Sassa Member Posts: 1,588
    edited September 2008

    Brief history:  I used to be very big breasted.  I had a modified radical mastectomy of the right breast, 11/06, and a simple mastectomy of the left breast, 6/07. No reconstruction.

    Since that time I have had PT and now visit a licensed massage therapist to help in my quest to correct the neck, back and shoulder problems caused by being so large breasted and then from being so asymmetrical from having one breast removed.

    I have learned the following from my physical therapist and massage therapist about body mechanics:

     Being large breasted caused me to have rounded shoulders.  I started to also have pain in the middle of my upper back below the shoulder blade, near the arm pit area when I had the mastectomies.  The problem is caused by the muscle that controls the forward and backward muscle of the shoulder.  It attaches at that point below the shoulder blades. 

    As you carry your shoulders  differently because of the weight distribution or work on regaining muscle flexibility, you experience pain in that area as the muscle adjusts to the different position of the shoulder.

     I have had the pain on the right side. the left side and now have it again on the right side.  The newest bout on the right side is due to the fact that I had a constriction on my right upper chest release that lets me move my shoulder back more than I had been able to.  That particular muscle is now contracted more to hold the shoulder back so I feel that achy, burning sensation at the attachment point below the shoulder blade.

    I will have the massage therapist work on the area at my next appointment..

  • paige-allyson
    paige-allyson Member Posts: 781
    edited September 2008

    I just had my second mastectomy on Tuesday and am REALLY happy with my decision. For the first time since May 2007 I feel comfortable with my body. My new avatar of me burning my hideous mastectomy bra in celebration was taken Thursday. No prostheses for me anymore!

  • pip57
    pip57 Member Posts: 12,401
    edited September 2008

    That is how I feel.  Totally liberated.  I wish I had thought of burning all my bras!  I just uncerimoniously  pitched them in the garbage can!

  • paige-allyson
    paige-allyson Member Posts: 781
    edited September 2008

    I'm a performance artist wanna be! I can't tell you how fun this was.Maybe it's not too late- you could get some other bras and burn them. Not quite the same I know, but you might enjoy it.

  • MariaG67370
    MariaG67370 Member Posts: 88
    edited September 2008

    I had my bilateral mast on JUne 12, I had no reconstruction and don't intend to have any.  I also have not bought any prosthesis and not in any rush to do so.  I like being flat chested and "free".  I was a 40D most of my adult life and have enjoyed running around in just a T shirt during this hot summer and not worry about hot binding bras.   I am comfortable with the way I look and people must be too because I am not aware of anyone staring at my chest because it's flat, not at home, not at work, not at the gym, not on the beach or at the pool and certainly not at the super market. And If people did stare, well tuff, it's there problem and they have to deal with it not me, I owe them nothing. I just have to please myself.

  • Sassa
    Sassa Member Posts: 1,588
    edited September 2008

    And if you are like me, MariaG, you enjoy having people (men) look you in the eye when talking to you instead of  checking out your chest.

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