Poll How many TN's have had Endometriosis:

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KPolasek
KPolasek Member Posts: 184
edited June 2014 in Triple-Negative Breast Cancer
Poll How many TN's have had Endometriosis:
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  • KPolasek
    KPolasek Member Posts: 184
    edited August 2008

    I was diagnosed with endometriosis and with Hypothyroidism when I was 25 yrs old.  I started a thread about connection between hypothyroidism and bc . possibly Triple Negatives?

    Just curious about endometriosis .... which is thought to be an autoimmune disease as well.

    Thanks!

    Kay Polasek

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited August 2008

    Dx triple negative.  Am hypo thyroid.  Was not dx with endometriosis, however, not tested for it.

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  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited August 2008

    Nope, no endometriosis. However, I do have an auto-immune disorder. You might rephrase your question to ask if triple negatives have any type of auto-immune complaint. Do you think there could be a connection?

    Annie

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2008

    No, none here, but I got my BC at 63, so I was post-menopausal, waaay post meno-pausal.  So that might make my info not worth much.

    No, no auto-immune, either, just a dad who died of Lung cancer, his mom of colon, his dad of stomach, one sister of bladder, one sister of uterine, one sister of liver.  Now, of the 5 cousins of this group of aunts and my dad, 3 have had cancer, two have died, I am the one still living who has had it and my sister is 74 and is still okay.  Sheesh, I think genetics are hugs.  And no one had breast!  Damn disease!

    Hugs, Shirlann

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  • nomadnan
    nomadnan Member Posts: 9
    edited September 2008

    Hi all,

     Triple negative. Endometriosis--had hysterectomy in 1999. Have been on Thyroid meds for hypo for many years.

    No family history of breast cancer.

     I hope this helps your poll.

    Nancy

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  • wetcoast
    wetcoast Member Posts: 193
    edited September 2008

    hello,

    triple negative, edometriosis--had hysteretomy in 2005. Have been on thyroid meds for 20 years. I aunt passed from breast cancer but LOTS of other types of cancer in immediate family and distant family.

     laurel

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited September 2008

    Hi Kay,

    I had fibroids and a very heavy flow before I was diagnosised with breast cancer.  I now have some autoimmune concerns.  Hope you get lots of feedback.

    Warmly,

    Sadie

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  • luckymel
    luckymel Member Posts: 643
    edited September 2008

    Had endometriosis, yes.  Some auto-immune issues now.  Hypothyroid since age 14.  Are you onto something?

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  • Jen44
    Jen44 Member Posts: 631
    edited September 2008

    Had endometriosis, yes.  Had hysterectomy at age 38.  Diagnosed with bilat breast cancer at 44.  No other issues with auto-immune or thyroid.

    Keep laughing,

    Jenny

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    I had fibroid's that grow very fast and a hysterectomy at age 35.  Yikes! why so many hysterectomy's? No family history of bc.

    Flalady

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  • Boo46
    Boo46 Member Posts: 539
    edited September 2008

    No problems with any of the above for me. Had my thyroid tested post treatment and it was normal.

    Sue

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  • carolbythecreek
    carolbythecreek Member Posts: 9
    edited September 2008

    No endometriosis but auto immune diagnosed in 1990. Also I'm the first in my family with breast cancer of any type.

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  • ADK
    ADK Member Posts: 2,259
    edited September 2008

    Endometriosis & Crohn's disease (also an auto-immune disorder).  Hysterectomy was recommended to me 4 years before BC dx.  finally had the hysterectomy after dx because I could not be tested for endometriomal cancer due to a severely tipped uterus.  Had a grapefruit sized endometrioma removed in 1992.  No really family history of BC, just a first cousin.  You might be onto something here.

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  • NarberthMom
    NarberthMom Member Posts: 615
    edited September 2008

    No endometriosis.  Had low thyroid and was on synthroid for 10 years prior to bc diagnosis, but thyroid levels were stable during and after chemo

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  • brena
    brena Member Posts: 458
    edited September 2008

    Endometriosis 10years before BC diagnosis.

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  • gramof4
    gramof4 Member Posts: 66
    edited September 2008

    No endometriosis. Hypothyroid though

    Joyce

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  • chumfry
    chumfry Member Posts: 642
    edited September 2008

    Triple-neg tumors in 2005 and 2007.

    Evidence of endometriosis found during 2003 hysterectomy for adenomyosis (a condition also involving the lining of the uterus).

    Hypothyroid for at least 15 years. (Can't remember when I started thyroid meds...)

    --CindyMN 

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  • glassger
    glassger Member Posts: 4
    edited September 2008

    I had endometriosis, also fibroid dysplasia and subsequent hysterectomy when 32 years old. Diagnosed with hypothyroidism in 2000, but since treatments for triple-neg stage IIB in 2007, thyroid now tests normal. Does that help?

    I have a sideways question concerning this since it seems to relate to autoimmune type things - I'm celebrating one year since last chemo today, and finished rads on Nov. 19th 2007. Does/did anyone else have joint pain that far out? From what I've read in other venues, it's not unlike symptoms of fibromyalgia or even some forms of lupus. Thanks.

    ~ Mo in Oklahoma

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  • KPolasek
    KPolasek Member Posts: 184
    edited September 2008

    I was diagnosed with fibromyalgia .... no treatment helped .... and then I convinced my doctor to try giving me a slightly higher dose of levothyroid ... guess what ... my symptoms went away.  I had read somewhere that thyroid disorder sometimes have the same symptoms as fibromyalgia.  I saw an endocronogist after that and he said that most labs are using an antiquated system.  Find a good endo (forget about gen physicians) and have your thyroid checked.  I might be wrong but it is worth checking out.

    My last radiation was 5/9/08.  About a month later I had a hard time going up and down stairs.  We have a new program for people who have gone through chemo and radiation called Pathway to Recovery.  I get up early three times per week and spend an hour exercising.  It has really helped me ... no problem with stairs anymore... and this comes from a person who does not like to exercise.

    Blessings,

    K

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  • pinoideae
    pinoideae Member Posts: 1,271
    edited September 2008

    Bet you like exercise now, because you can see the benefits.

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    There are a lot of ladies that have auto immune diseases after bc treatment.  In my little mind...I think they hurt a lot of peoples immune system with treatment and it takes forever to repair.  Why they don't watch us for this and be proactive is beyond me.

    Flalady

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  • 2z54
    2z54 Member Posts: 261
    edited September 2008

    I am 54 and TN now, and on chemo. DX on 7/23/08... will have bilateral mast later.   Yes... when I was 35 I had an ovary, and tube removed as well as a huge endometrioma that had engulfed them. Wish now that I had had a complete hysterectomy, although I just found out yesterday that my bc is not genetic.   (All the women on my father's side of family have had it and/or died from bc. Go figure?   Just don't have the right tests yet... I think.)>

    Anyway... think you may be on to something.  I was noticing a casual link between sinus infections/antibiotics and bc from posts on another site.   I've had plenty of them too!

    sue

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  • kmartin
    kmartin Member Posts: 78
    edited September 2008

    Yes to endometriosis and hypothroidism.

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  • Labgal
    Labgal Member Posts: 62
    edited September 2008

    Yes, I had to have a hysterectomy in my early forties for endometrosis, but I also have an non specific autoimmune disorder alin to lupus that I have been in treatment for many years as well.

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  • Methusala
    Methusala Member Posts: 285
    edited September 2008

    Triple Neg

    BRCA 1 +

    On Thyroid med for 5+ years now

    Yes, I have endo.  Weird thread, eh?

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  • Jacquio
    Jacquio Member Posts: 39
    edited September 2008

    I had extremely heavy periods for years, was put on the pill in my 40s and that worked. Once I went off them at 51 by doctor's instruction, the heavy weeks long periods came back. Never diagnosed with endo, but I am interested in this thing with auto-immume/fibromyalgia/osteoarthritis because I have days where I just ache everywhere, then it goes away and I feel good for a while. Does anyone experience this? When I say ache, my feet hurt, my back hurts, neck, hands, everywhere.  Then it goes away, and is less achy, more tolerable. I thought it was just stress, but am wondering now if chemo and rads did this. And, will it go away? I walk and feel better usually after walking. Trying to keep very grateful for every day and positive outlook, but it's not always that easy.

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  • cas145
    cas145 Member Posts: 7
    edited September 2008

    I was dx with endometriosis in 1986, dx with fibromyalgia in 1991,1st dx bc in 06 at 42ys of age 2nd in 07 trip neg. I have a question also i am now on 3 monthly checks by specialists, my question is do you girls have any regular scans or any other tests? ( Im in Australia) Cas

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    cas145,

    Here in the US we have CT Scans or Pet Scans the first year along with blood work. Your scan schedule is usually done by how high risk you are.  Higher your risk for recurrence's ( a lot of nodes positive, bad tumor margin from surgery, etc...) the more often they will do scans. If you had a recurrence before they usually scan every year or six months.

    Flalady

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  • ReneeST
    ReneeST Member Posts: 4
    edited September 2008

    I had endometriosis with a hysterectomy in 1997

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  • PineHouse
    PineHouse Member Posts: 416
    edited September 2008

    Another triple neg here.  I had endometriosis resulting in left oophorectomy in 1988 (age 27).  Was diagnosed with BC in 1996.

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