For those starting chemo in June

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  • janie44
    janie44 Member Posts: 1,460
    edited February 2005

    Mary that sounds heavenly. Makes me want to get rocked, or stoned one. I bet your daughter will love the book. You will need another rock rub after bending over it.

  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi girls, Getting stoned? that doesn't sound like a bad idea if it helps the stiffness. I think its worse the last couple days but its been rainy and chilly so hope it gets better. I got the memory book done and don't really care to do two more for the other kids but you know how that goes, You have to do it three times no matter or your favoring one over the others and God forbid I baby one and not all three. It got a little costly. There is so many things you can buy in the scrapbook dept. thats cute. Hopefully I get around to 2 more. I have to get it sent now. Well the rock rub (not to be mistaken for "The Rock" the wrestler, who could give me a rub any time)is hot smooth stones and she rubs them on your muscles and it just feels really good.I got one like that in Az. This gal only charges 35.oo for an hour. Heck I spent more than that on smokes, and boy I would love a smoke right now. Well I have laundry and a spare bedroom that has all my clothes in it and all my crap I buy to make baskets for gifts etc. and I can't even get in it to fold my laundry so I have to do some cleaning out. I had a grandson and nephew all wk.end so I need to get things done. Janie good idea I will get stoned then get rocked. Nah, I would get the munchies and I just can't gain any more weight, Of course I wouldn't give a crap how fat I got my main concern would be watching the flickering t.v. screen on the channels that don't get a reception and chanting cool.Thats what I have read happens anyway. To be honest I never like the smell of it but you have to try everything once or twice. and when my mom had the pancreatic cancer I forgot all about pot helping the sickness or I would have helped her all I could. I feel really bad about that cause that might have eased her suffering. I just didn't think!!! Darn me. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Hi ladies,

    Mary, so many of my clients from my private practice are druggies, it is a miracle I don't get high just being around them. I don't know how they get the drugs so easily. I guess I am naive about some things.

    I wonder if PJ is on her trip. If so, I hope they are having a good time. I hope Renee has worked out her lymphedema woes.

    I had my lst trip to the local center this past week. It went pretty well except for having the reaction during the infusion. I am taking Benedryl every night to try to keep it tolerable.

    Do I dare ask how your work is going? Last week was not fun for me. Too many things happened to even go into.

    Warm fuzzies,

    Janie
  • PJB
    PJB Member Posts: 2,615
    edited February 2005
    Hi, girls, nope not on my trip. Unfortunately, that's not til next month.

    Mary, I had a couple people offer to get me pot when they heard I was going to be going through chemo. Didn't do much for me in college, so I didn't figure it'd help much now. But that rock massage thing sounds heavenly. Those books you're making for your kids sound great. My mother in law did some of those for her three kids (not so fancy, tho, doesn't sound like) a few years ago. It's a great gift. Of course, I'm so lazy, I haven't even gotten our 12,000 pics of nathan in photo albums yet....

    Janie, so sorry to hear you continue to have reax to the medicine. And sorry to hear things at work are tough.

    Things here are great. We had a beautiful weekend, so we got out to ride bikes and such. But those weekends just don't last long enough. Got a parent conference at school today and then work!

    You guys have a good one.
  • rlswkndr
    rlswkndr Member Posts: 148
    edited February 2005
    Janie- I got my L sleeve and glove. She didn't like the swelling on my left hand- the infiltrated drug side- so I have a glove for that hand too. I'll be quite the sight when I fly next week!
    Mary- AAHHH the 'stoned thing' sounds so good. I can't wait to use my gift certificates for massages. I dont' know why I've put it off?
    I will be in Dallas 17-20 and hoping for awesome weather. I dont' get much time to be outside, but anytime in the sun and warm will be great.
    I tried a qi'gong class (chi-gong) it is slow movements of the body. Some of it was easy, some I need to practice, but I enjoyed it.
    Now to run my errands before the rain turns to freezing rain, which will turn to snow before tonight- UGH!
    Renee
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi girls, OH warm weather, How grand. Hope you have a great time. The place where I got stoned is moving to a big new place and they will have trainers and work-out crap so I am going to join the work-out part and see what I can do. I have to get my muscles moving better. I would like some geriatric exercise. Maybe I can lay and rest and someone can move my legs and arms for me???? You know it feels like I am solid, not flabby but maybe its the extra fat? I know chemo is suppose to shrink the muscles but I think it went a little far. Maybe I have fat around the brain.Great; now I have fat, chemo brain. My butt looks like a baggy full of pebbles, its past cottage cheese. I got the memory book done and its pretty good. I scanned and cut out a picture of each grandmother on my moms side and I have 6 generations. We all resemble even though they have funny hair dos and the oldest grandmother looks really mean. I sure wouldn't want to pi*s her off. My cousin said its probably because they had to sit for hours back then to take a pic. This pic is hard cardboard type pic. Its my grt. grt. grammy. Ops gotta go, hugs Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Good evening,

    Glad everyone seems to be doing fairly well. We have the bad stuff behind us. It is beautiful in Georgia. I had to turn on the air today!

    Mary, those people in the old pictures do look mighty uncomfortable.

    Warm Fuzzies,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Good Evening girls, Just stopped in to say hi. Snow tonight, Oh how exciting, could we get ice and howling winds with that? hang in there girls, Hugs Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Wow! You've got snow?!?! It is short sleeve weather here right now.
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005
    Janie, I am going to come stay with you girl.I am, so tired of no sun. It hasn't been as cold as it could have this winter but I am just sick of cold. One would think with this extra layer of fat One wouldn't get so cold but hey, one does. One tried on her summer shorts and one needs to shop. One will go broke. My belly seems bloated but I think its fat.I have leveled off at 145. I am telling people its the steroids. It probably ain't but who cares, it beats saying I am eating like a pig. Well better go dream about the snow. I will send some to Texas and Georgia because I like to share. I am nice that way. Burrr hugs, Mary
  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    As Bob Barker would say, "Come on down!" Did I tell I recently found out that Taxol bloats the belly? I am going to use that and chemo brain from now on. Oh yeah, and the steroids. Send the snow right here. I will make snow cream. You might know I would turn it into food. Later,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi girls, Sick with the flu today. Just a lot of muscle pain and weak and head ache. Slept most of the day and going to shower in hopes of feeling better. You know there are times I can't stand my husband. He is the stupidest human, telling me how to wash his harley shirts.What brought that up out of the blue??? I have been washing them all this time but all of a sudden now I might ruin them???? what the %&*#. If I had a tire iron in my hand!!!!I am gonna tell him I can't be trusted with the chemo brain and all so maybe he better wash them from now on with all his clothes cause I would hate to ruin anything. This is not a good time and he doesn't have a clue. The poor clueless idiot. Well better go take a shower and hope to feel better.Hugs, Mary

  • PJB
    PJB Member Posts: 2,615
    edited February 2005
    Mary, your husband is the master of bad timing. I think the suggestion he do his own laundry is a good one. In fact, my husband does all our laundry. He doesn't trust me with it. Of course, I'm heartbroken about that...

    All's OK here. Mary hope that flu passes quickly. How's your dad?

    Hope Renee and Janie are OK, too.
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi PJ, Hey my dad is doing better and getting around again. He could still have to go on diallisis or however spelled, I am not awake yet. We have two more months to see how he does. I feel better today so on my way to work.Hows your sister now that shes all done? HI to Janie and Renee. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Hi backatya girls!

    Hope everyone is feeling better. I'm glad it's Friday. Catch you later.

    Janie
  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Mary,

    How are you and your Dad? And how are PJ and Renee and families doing?

    I still have a weekly rash with the Herceptin, but nothing to stop treatment over. I took my nail polish off today, hoping my nails had grown a lot, but it looks like this is going to take a while. I will just keep them covered until the icky part grows off. I would like for Calgon to take me far, far, away for a while, but it doesn't look like that is happening any time soon.

    I hope your post treatment is going well. Are any of you on hormone therapy?

    Had any fun lately?

    Warm fuzzies,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi Girls, I am fine as can be.My dad is getting along o.k. thanks. Sorry you are still putting up with the rash Janie. I am not on harmones as I am er/pr-. Aren't you -too? It must be a pain to do treatment so long. I wish I was doing the Herceptin. You will be over due a good vacation when you get done. I hope you go someplace and have a great relaxing time. I have been shopping for bargains all wk. end. Rainy but not too cold. Well hope Renee and PJ are fine and enjoying their wk. end.Later girls, take care hugs, Mary

  • PJB
    PJB Member Posts: 2,615
    edited February 2005
    Had a great weekend, thanks, Mary. Bought some furniture yesterday and had a perfectly lovely day today, so we got out and got some exercise.

    Go to get blood drawn week from Monday and my 3-month with the onc. The paperwork is underway for the genetic testing. Looks like it'll be up to a month before I even get clearance from my insurance company. So, it'll be a few months before I know any results.

    Mary, are you not eligible for a Herceptin trial somewhere?

    Take care, you guys. Paula
  • rlswkndr
    rlswkndr Member Posts: 148
    edited February 2005
    Happy Valentines Day!
    We are doing fine up here in the cold. I get to escape for on Thursday when I go to Dallas for 4 days for work. I hope it is warmer there!! I get to celebrate my birthday while there with Ry and Jess- they are driving up from Galveston. We had snow, rain, snow, rain and that was in the last 30 hours. Go figure. I'm running a bunch of errands today in all that slush.
    My hips are still stiff and sore after sitting to long or when I get up. I know that is one of the side effects of Arimidex too but mine hasn't gone away since taxotere. I started Arimidex a week ago, so I wonder if it will ever improve. Walking helps so I try for my daily dose of that.
    Have a great week. Renee
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    PJ, There wasn't a trial for stage 1b when I went in and Onc. is affraid of the heart damage from Adrimicin. I hear they are doing it for stage 1 now but onc would rather wait and use it later. If it goes to my brain I doubt it would do much good but I don't want to have a heart attack either so I will go with the flow. Renee, I still have very stiff hips after sitting for a few mins. or more. I just shuffle along growling and it gets better as I go. I think thats the steroids from A/C. Steroids are good but too much causes deteriation in the joints and we got a sh*t load. Gotta get back to work. I walk like a new born cow all swaying from one side to the other and my legs feel like they are bowed. People probably think gee, I wonder what kinda drugs she takes??? None and thats my problem. It has to get better someday or I may have to stop sitting down and just stand all the time. Have a great valentines day girls.Chocolates and Hugs, Mary

  • PJB
    PJB Member Posts: 2,615
    edited February 2005
    Renee, it was sunny and 75 today down here in Texas. (I'm about 2 hours from Dallas). Of course, it's supposed to turn rainy and cooler later this week, but it's bound to be better than up there where you and Mary are... Hope you have a great time in Big D.

    Mary, anything on the starting your own biz front?
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Renee You have a great time!!! I hope you enjoy the weather. It really hasn't been as bad as it could of been this winter. I am going to the Dr. tomorrow, the rad dr.because I have a tender lump under my arm. It has probably been there since rads. but gonna get it checked anyway. You know its really kinda scary when you think it could be back. I know its nothing but its still in the back of my head. Its been here 3 days now that I know of. I just scratched because I itched and there it was. My rads. onc. is only in on Wed. so rather go now as to wait and worry until next Wed. OOps, gotta take dad to hosp. and get abdominal cath. irrigated so gotta go. Hugs Mary

  • PJB
    PJB Member Posts: 2,615
    edited February 2005
    Oy, Mary, I bet you ARE nervous. I think so much stuff can happen with rads, tho, I'm sure it's nothing awful. I'm glad you'll be able to see the dr. tomorrow to be certain.

    Best to everyone,
    Paula
  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Mary, Let us know how it goes. I see the local onc tomorrow before treatment.

    Hugs to all,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi Girls, Well when it rains as they say. My husband said they are going to shut down three Spartech plastics plants. He works for one but there are several in the U.S. No one knows which ones so we are hoping the one he works for isn't one of them. Gosh that would just about put the icing on my cake sorta speak. Well good night girls and I will get back tomorrow. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005

    Oh Mary! I hope you don't have to go through this on top of everything else. I am dealing with something big at work right now. It seems that some people get their jollies out kicking you when you're down.

  • PJB
    PJB Member Posts: 2,615
    edited February 2005

    Thanks go to Renee for posting about compression sleeves on another thread. I figured since I've had no problem with lymphadema, I wouldn't need one for my upcoming flight to Philly. Called the onc's nurse; she said it'd be a good idea to wear one. So, she's gonna check out what I need to do to get one and call me back...

  • mary1220
    mary1220 Member Posts: 1,246
    edited February 2005

    Hi Girls, everythings o.k. with me. Why a sleeve to fly? I haven't had lymph. either and have flown several times but my oncy never said to get one. Is it to prevent blood clots from pressure change? I will check out the other booard too. Later girls. At work. Guess what? my mouse is screwed up again and all you hear around my house is my husband or I yelling at it. Now my bosses is too. I tell ya, I am bad luck, I bought what I thought was a good one as it wasn't the cheapest one t Wally. I will have to go to Springfield to best Buy. Yea I forgot to capitalize Best but its too much trouble to go back. Thats at not t before Wally. I can't go back at all with the mouse AAAAAHHHHHHHS%it!!!! Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited February 2005
    Hi Girls,

    There is a big discussion on flying with sleeves on Moving Beyond Cancer: Air Travel?

    I think my lymphedema did show up after I flew.
  • PJB
    PJB Member Posts: 2,615
    edited February 2005

    Well, now the nurse called back and says she talked to the doc and he says i DON'T need a sleeve. i hope he's right...

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