anyone have DIEP-lose weight=how did it affect your foobs

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KinAZ
KinAZ Member Posts: 180
edited September 2018 in Breast Reconstruction

I will be having bilat mast in Oct..with immediate DIEP reconstruction.  Im just wondering if anyone has lost weight after reconstruction and how it affected the new foobs....My ps says yes they can become smaller.  I am a D and would like to stay a D....so I thought I would ask my sisters out there who may have been there and done that.

Hugs all, Karen

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Comments

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Hi Karen,

     I needed to lose weight when I had my DIEP surgery, so I asked my surgeon to make the flaps as large as possible, so that my new breasts wouldn't shrink down to nothing if I ever get thin again.   They are belly fat, and will supposedly increase or decrease in size as weight fluctuates.   I have really been trying to lose weight, and it's coming off very slowly.  I've lost about 12 pounds since February, but I cannot see any difference in the breasts yet.  I want to lose another 40 pounds, so I'll have to check back in with you when I've done it.  It's best to have DIEP done once you've lost the weight and are stable, but I had a cancer diagnosis and wanted immediate reconstruction, so I didn't have time.

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited August 2008

    I'm in the same boat as you Sandy - I'm trying to lose weight following my reconstruction surgery. I want to lose at least 25 pounds before April '09 when my Stage 2 should take place. I'm thinking about switching from Weight Watchers to Jenny Craig - I'm a life-time member of WW - but after my initial weight loss 18 years ago, I've never been successful at keeping it off, especially with their new "Points" plan. I'm hearing people get fantastic results with Jenny Craig - are you following any particular diet? I'm surprised you've lost 12 pounds and can't see a difference in your breasts yet - I really want my new foob to be smaller, it's about 2 sizes larger than my good side. I'm hoping the weight loss will help - and even more - that it'll help my stomach look better. Not just the abdominal bulge - but everywhere since  the "added benefit of a tummy tuck" turned out to be an "added nightmare" for me. I still look like I'm 5 months pregnant! Cry

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    I'm not happy with my abdomen either--my original surgeon did not pull me tight at all, and so now it is up to me to lose weight and hopefully obtain the very flat abdomen that most DIEP patients enjoy.  Unfortunately, that means the skin will never be taut like I hoped.

     I'm not on any particular diet, not yet.  I am just trying to make better choices, avoid french fries like the plague, and get as much exercise as possible.  I am working really hard in the pool most evenings, but I did skip tonight.  I am not sure that I have been losing fat, as I've had four surgeries in the last year.  I have been dealing with a lot of abdominal swelling, plus healing from having lipo four times.   I wouldn't doubt if 12 pounds of fat has been sucked out and I've accomplished nothing by my own methods!

     I swear I think that my upper abdomen is fatter than it was a few months ago.  I'm on Tamoxifen, and think that it is causing a redistribution of the fat to my tummy.    Dr. DellaCroce has done lipo just about everywhere and I think things were better before.   I am going to be really upset if this doesn't go away as I lose weight.  My rectus muscles are very tight from the repair, but I don't look as tight as I feel and it's really starting to bug me in a big way.  

     I had my husband pick up some Lean Cuisine meals for me, and just need to remember to take them to work so I won't need to decide what to eat when I'm really hungry. 

     Your stage II will fix the size difference, so at least you know that will be fixed!

  • pinoideae
    pinoideae Member Posts: 1,271
    edited August 2008

    Sandy be careful of the high sodium content of lean cuisine meals.  I think there area a couple of them that have less sodium than others.

  • BethNY
    BethNY Member Posts: 2,710
    edited August 2008

    I wish I were posting here about my fantastic weight loss, but I'm here to tell you that gaining weight definitely affected the size of my breasts.  I joke that I am ruining the amazing body my plastic surgeon gave me.

    Ten pounds didn't do a thing, but 25 pounds and BAM-- I'm up a whole cup size.  So As I start to take the weight off I'll keep you posted, but I expect them to get smaller as I do.

    Sandy- I definitely felt like I was pulled tight enough in the abdomen the first time around, however, gaining so much weight definitely changed the contour.  It wasn't terrible-- so if any other girls out here are thinking, oh crap I can never gain weight... trust me, there are still no rolls when I sit, but the skin did get a little bit loose. 

    I did have this revised with my surgeon, and I wonder if I can get it tighter through exercise... please keep me posted on your success. 

  • KinAZ
    KinAZ Member Posts: 180
    edited August 2008

    Thank you for all the input...I will be meeting with my ps in a few weeks and will discuss it with her then.  I just feel torn...I do NOT want to wake up with out boobs, and DIEP was the recommended option.  She did not think I would be happy with implants as they could not get the same proportion I have now.  I am only a D, but have a large frame, and plenty of belly fat for D mounds.  I would like to lose 50 pounds but would hate to see my new mounds disappear!!!!!  After all her handiwork and recovery etc.... My surgery is scheduled for Oct 7th....I will post again after I meet with her again.  Thanks again my  bc sisters!

    Karen

  • helenjjc
    helenjjc Member Posts: 3
    edited August 2008

    hello karen,

    yes,every lady that want to do DIEP ll surely face it,when i did mine DIEP surgery i did foob excise,and a cream was recommered for breast excise before i went for the surgery and it for it not to be thin if i finish my DIEP surgery but i can refer you to a songeon that can help you with a cream for your DIEP surgery.

    Helen,

                                 GOD IS WITH YOU,DON'T BE AFRED

  • eva2004
    eva2004 Member Posts: 19
    edited August 2008

    Helenjjc,

    I've read your TWO other posts on these boards ..

    What did you say your dx and tx were ?

    Who did your DIEP and where ?

    And what exactly are you trying to sell here ?

    Eva

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Oh well, after losing two pounds last week, we are now in Las Vegas for four days, and I know that I have wiped out the progress I'd made.  I'm with my husband and two teenage sons, and it's so hard to make good choices when I'm eating with them!   Beth, I'll let you know how I do...feeling somewhat discouraged now, but somehow I will find a way to be thin once more.  It's just so much harder now.  I was very thin at 40, but had a disastrous lasik experience, and went through a major depression during which I gained this weight.   I just didn't ever feel strong enough again after that to tackle the weight loss, but I've received a head start due to the lipo and tummy tuck, so I really, really want to take advantage of that and succeed now.

  • pinoideae
    pinoideae Member Posts: 1,271
    edited August 2008

    lol eva, sandy have fun in vegas with your family.  What the hey, you are on a vacation!

  • KinAZ
    KinAZ Member Posts: 180
    edited August 2008

    Helen, I am sorry I do not understand your post.  Could you please try again.

    Sandy, dont beat yourself up while in Vegas.  I agree with Sharon, You should enjoy the good times with your family and battle the battles later.  You have earned it!

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Thanks ladies.  We are having fun, but why does fun always mean a lot of food to go along with????  LOL

    Summer, I'll have to look more closely at the Lean Cuisines.  I was only worrying about calories and just assumed the rest would be okay.  Thanks for the info.

    Eva, great post.  I am curious about Helen's 3 positive nodes out of 2 removed.   

     Karen, you can have implants after DIEP if you end up unhappy with your size.   That's the great thing about using your own tissue--the breasts will change along with the other changes in your body.   I have heard (and read an actual study done) that women who have lipo in the abdomen, flanks and thighs tend to see an increase in bust size, so if your surgeon does lipo in stage II, maybe you can take advantage of that. 

  • Hannahbanana
    Hannahbanana Member Posts: 170
    edited August 2008

    Sandy sounds like fun in Vegas and it is too hard not to eat a lot when there. We go every couple of years and plan on next spring.

    As far as weight loss in the tummy area depends on your body too.  Some of the gain or pouch look comes from visceral fat which is the fat that is around the organs in the abdominal area and can only be removed by diet and exercises not surgery.  I have this issue in that I gain my weight in my stomach looking pregnant even after my tummy tuck which had my muscles tighten.  When I gain weight (which is were I am now) it stretches my tummy out.  Exercise helps tone my abdominal area. 

    Also remember that the body loves to swell after traumatic surgery including lipo.  When I had my work done I wore a lot of compression garments during the time to help in the swelling.  You might want to look into that and try wearing them at night or around the house to see if it helps along with drinking lots of water.

    I did so well after my tummy tuck and lipo the last couple of years but once I was diagnosed with cancer and all the different surgeries along with tamoxifin the gym seems a million miles away.  I need to hire a personal trainer again.  My neighbor challenged me to a 5K fun run in December so I am determined to not make a fool of myself.  I do better with a goal I would rather have a tropical vacation instead of a fun run but hey I will take what I can.  The hardest thing for me is to get past the mental portion for motivation.

  • BethNY
    BethNY Member Posts: 2,710
    edited August 2008

    sandy I always hit big on the wheel of fortune slots-- I know it's crazy, but worth a shot!!!!

    win big, eat what you desire, and we'll tackle the rest after vacation!!!! enjoy!

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited August 2008

    Have fun Sandy - win big! It's hard for me to remember that entertainment does NOT have to include fattening foods..........try for extra walking and maybe you'll even lose weight!

    Hannabanana - you're so right about the visceral fat. I have no fat left under my tummy skin after my Stage 1 surgery, but still my stomach bulges outward and I know it's from all the excess in and around the organs. I'm thinking about Jenny Craig - I always do - but I always end up back with Weight Watchers because ultimately they teach you how to use portion control and read your labels. I'm still in the "recovered from surgery-summer vacation" mental mode - but when I get back to work, it'll be back to WW. Embarassed

  • Hannahbanana
    Hannahbanana Member Posts: 170
    edited August 2008

    Swimangel I am a life time member of weight watcher and think their program is one of the best because it teaches the tools to maintain and be healthy.  I get stuck on the portion control which is were I am now and know the tools to lose the extra weight but just doing it.  Been on the Jenny Craig types and did great but of course I didn't have to think just eat.

  • LisaF
    LisaF Member Posts: 200
    edited August 2008

    There really is no free lunch, huh?  I had to have a hysterectomy four years ago and was excited to have a "mini" tummy tuck to go with it.  It was and is great, but that nasty fat found its way to other places.  I now am the proud owner of "back far" and the bra bulge that I didn't have before.

    I just had my lumpectomy with a reduction on both sides.  Now I'm worried that the fat they took out will be found in other places.  Time to hit the gym after I recover!.  And, of course, things look even more dismal if I have to have chemo.  Oh, well, one step at a time.

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Beth, I have always loved the "Wheel" machines, but did poorly this time. They have a humongous one here at the Palazzo, and it's a progressive.  The jackpot is over $11 million.   I really should stay away from slot machines though.  I stayed here overnight for a show last February, and joined their player's club.  They sent me a coupon for four free nights.   That came in handy for the trade show I'm attending now.  This hotel is relatively new, and I can highly recommend it!

    Hannahbanana, I'm sure what you are saying is correct.  I still have a bunch of internal fat to lose.  That's why I look like I weigh less than I really do.  I just read about the omentum a couple of weeks ago--didn't know it existed.  Oprah had a doctor on her show displaying one of normal size, and one from a person not even very overweight.  The latter was huge--no wonder my tummy is not flat.  I think the photos are still online on her site.   I have worn compression garments after every surgery, and should be wearing one now, but it's 104 degrees and I just can't do it.

    I must have walked 6-7 or more miles today, some of it at a pretty good clip.  I am going to put my foot down and insist on decent food tonight!   Lunch today at the show was free, and it was chicken tenders and french fries.  I never eat fried chicken of any sort, and to top it off, the only sauce they had was ketchup.  Ugh!!!!   If I had not been incredibly hungry, I would have passed on lunch.    Oh well, tomorrow is another day, and we'll be home!  I might sneak in some more slot fun tonight--depends on whether my hubby wants to give me some more cash.

    My massage therapist is also a personal trainer and I think I will ask her to help me work out.  Lisa, I think you've got it right. One step at a time, one day at a time.

  • dah0123
    dah0123 Member Posts: 115
    edited August 2008

    Hi Girls,

    I am going for a DIEP consult this Fri (currently have implants).  I would like to lose about 10 lbs (have already lost 20 lbs with Weightwatchers) and don't know if I should try to do it before or after having DIEP surgery.  Is it better to be my ideal weight beforehand?  I'll still have plenty of fat for my new bilateral tummy boobs because that is where all my fat seems to settle since chemo put me into menopause 12 years ago ( I was only 110 lbs before chemo and gained 50, but then lost 20, since).  Any input appreciated as I don't want to have hanging skin or weird lumps and bumps in my abdomen.  Maybe implants aren't so bad???

    Thanks!

    Debbie

  • KinAZ
    KinAZ Member Posts: 180
    edited August 2008

    Debbie,

    Be sure to ask your pc and let us know the recommendation.

    Good luck, Karen

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Debbie, the DIEP surgeon will be able to answer that for you.  You don't want to diet away the tissue that would be needed for the flaps, and if you only need to lose 10 more pounds, that will not affect your outcome if you lose it later on.  I know of a lot of ladies choosing to have implants removed and having a flap surgery.  There's about a 50% complication rate with implants, and you'd need to replace them at some interval of time.  I really love my DIEP breasts---they look very genuine, they're soft, and will last me forever.

  • Diane1959
    Diane1959 Member Posts: 13
    edited August 2008

    Sandy,

     Can Breast be lifted somewhat from a DIEP flat surgery and can this be part of the surgery the same day or do they still hang like normal?

     Thanks Diane

  • Diane1959
    Diane1959 Member Posts: 13
    edited August 2008

    Sandy,

    Would you also know that when they do the DIEP flat on you to rebuild the breast, will the do this just from the belly button down?  Will they do some lipo above the belly to make it somewhat flat as well?  Is the scar from the surgery down around the bikini line?  I'm meeting with my PS on Tuesday and have really have to make some decisions soon of what type of reconstruction I want to have at the time of removing my breast. I really appreciate all the information I can get from anyone out there.

    Diane

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited August 2008

    Hi Diane,

     I think the flap is usually taken from just above the belly button to just above the pubic hair, but that will vary depending on how much flesh you have and how the surgeon prefers to do it...I know some women end up with higher scars than others, so it can vary.  That's another good question for your surgeon.   Also, whether or not you'll receive lipo depends on your  doctor.  My original surgeon was not going to do any lipo other than to the outer sides of the breasts and at the hips if necessary---no thigh, no tummy.  The NOLA doctors are very generous with lipo.  Having a tummy tuck when overweight can give you a flatter front, but you still have the sides and back to deal with, and after Dr. DellaCroce kindly did my abdomen, flanks, inner and outer thighs, I felt that my backside was really throwing everything out of balance, so he did my lower back and tush too.  I couldn't believe it when I first took a look in the mirror---he did an amazing job.   You will need to ask these questions as you decide upon a surgeon, to make sure they will do everything possible to make you look great.   I did have both breasts lifted during stage II.   Feel free to pm me and we can talk more via phone or email if you'd like.  I can tell that you are anxious about deciding in just a few days.

  • dah0123
    dah0123 Member Posts: 115
    edited September 2008

    Hi all,

    I had my consult with the DIEP PS on Friday.  He said that it didn't matter if I lost the weight before or after from an aesthetic point of view.  Though they will barely have enough for a bilateral DIEP with what I have now, so they really don't want me losing much weight now.  My biggest concern with DIEP is the risk of losing one of both of the flaps.  In the presentation that they had me watch beforehand, it said that there is a 3% (or 6% for me since I'm bilateral?) chance of losing a partial flap and 5% chance of losing a whole flap (or 10% for me?).  That would be 16% chance of losing a a partial or total flap.  This presentation also said 13% (x2?) chance of fat necrosis (areas of dead tissue that have to be removed later).  However, when I asked them these questions, they said that 10% of people have to return to surgery and that they lose the flap in about 1/2 these cases or approx. 5% of the time.  They weren't clear if it would be x2 for a bilateral (they didn't know if their stats were per person or per breast).  They take a picture of your butt too in case this happens because their next course would be to do an SGAP if a DIEP flap fails.  I would HATE to have all of these scars on my breasts (already have them), then add a huge scar to be abdomen, then have a flap fail and have to end up with yet more scars on my butt!  I saw the pics of the scars with SGAP and I didn't like what I saw.  Or, even worse, or just as bad is to end up with one DIEP breast and one implant.  It seems like the woman who have DIEP either have a great experience or terrible.  A pedicle TRAM is at least a guarantee (pretty much) that you won't lose the flap (though you do lose the 2 muscles - does it really have any affect on you)?  Why are pedicle TRAM's so frowned upon when the potential risks are so much less re: total flap failure?  This is what I'm struggling with.  Too bad you don't know which side of the odds you are going to end up on with DIEP??  I'm just venting now but any input or insight appreciated! :)  Diane, what did you decide??

    Debbie

  • TammyLou
    TammyLou Member Posts: 740
    edited September 2008

    I think it depends on where you're at in your life.

    Many people don't want pedicled trams because you will lose some core strength and there is a risk of hernia (your belly will be reinforced with mesh to help prevent that.)

    The pedicled TRAM has some limitations in terms of shaping, etc. because the tissue remains attached to its original blood supply.  Some women have a noticeable bulge from the muscle being bunched up.

    How about MS Free TRAMs?  There is less risk of failure (more robust blood supply) and less risk of tissue necrosis than DIEP and less risk of hernia than with pedicled TRAM.

    In the big picture, there are other muscles in your torso that can take over much of the function of the rectus abdominis. 

    I'm thinking that there are some (more sedentary) women whose normal daily activities have not been affected by their pedicled TRAMS much at all.  (Mainly because they're not out jumping off of cliffs on a regular basis.)

    However, if you have pre-existing back pain / condition, I would be inclined to steer away from pedicled TRAMS.

    Tammy Lou

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited September 2008

    Debbie,

     With a highly experienced DIEP surgeon, the risk of flap failure is less than 1%.   You need to seek out the best of the best, no matter which method of reconstruction you choose. 

    Here are some sites with excellent information:

    http://www.breastcenter.com/introduction/procedures.php

    http://www.breastcenter.com/resources/faqs.php

    http://www.drfrankisik.com/diep_flap_breast_reconstruction.html

    http://www.diepflap.com/faqs.html#07

    "The DIEP flap procedure is today's gold standard in breast reconstruction. Advances in breast reconstruction have made it possible to use excess skin and fat from the abdomen (rather like the tissue removed during a tummy tuck) to construct a new breast without the need for implants or the sacrifice of abdominal muscle. This procedure, known as the Deep Inferior Epigastric Perforator (DIEP) flap, is a sophisticated modification of an existing procedure known as the TRAM (Transverse Rectus Abdominus Myocutaneous) flap. TRAM flap surgery is a common breast reconstruction technique that requires the rectus abdominus (sit-up) muscle to be sacrificed and relocated to the upper abdomen. Unfortunately, this technique can be associated with significant post-operative pain, prolonged recovery, loss of abdominal muscle strength (up to 20%), abdominal bulging (or "pooching"), and even abdominal hernia." (http://www.associatedcontent.com/article/360841/the_hype_around_diep_flap_breast_reconstruction.html?cat=70)

  • sassie62
    sassie62 Member Posts: 223
    edited September 2008

    Dear Dah0123

    I have gone to 4 plastic surgeons in MI and they gave me a lot of negativity also.  Some said I didn't have enough ab fat for two reconstructions.  Some said that the failure rate corresponded to the how much muscle or blood supply you take - Tram--Free Tram--Diep--Siep.  Most did not have ANY or minimal experience with anything other than the Tram.  They were pushing implants. I even had a surgeon (if you can believe this) tell me that the insurance company doesn't pay him enough to be in surgery all those hours when implants can be used for reconstruction in less than 2 hours.

    I throughly believe that it is who your surgeon is that greatly affects the outcome from what research I have done.

    I traveled to Houston to meet with Dr. Speigel and was very impressed.  She has done 800 Diep/Siep. But she works alone and I would be under between 8-11 hours for two.  She said I had enough ab fat to nicely make a B cup or possibly even a C cup.  I was elated with that prospect.  She said I was a very good candidate where the others said I wasn't.   Unfortunately, she wants me to wait a year and I feel my age could be a factor.

    I have put a call into Liz at Nola because after reading everything on this site it sounds like I need to check this place out before I make a decision.  It has been said on this site that Dr. Della Croce has never lost a flap.

    There is always a chance of losing the flap and that is why I am doing a lot of research and trying to educate myself before I proceed.  Remember implants aren't without problems.  Many people have had their body reject them, harding around the site, infections, etc. and not really happy with the feel.  Remember you are puting a foreign object into your body and some people do nicely and some don't.

    I am so grateful for this site and all the sisters out there for their information.

    Good luck on your decision what ever it is.  Just remember do your homework and don't settle for anything but the best.

    Sassie

  • dah0123
    dah0123 Member Posts: 115
    edited September 2008

    Hi Sassie and Sandy K,

    I met with the "best" and most experienced DIEP PS in the Boston area.  The overall stats that I saw in a Powerpoint presentation by several PS's (including Robert Allen who invented this method) was that there was a 5% chance of total flap failure, 3% partial flap failure and 15% chance of fat necrosis.  It said that 8-10% of patients have to go back in to surgery within 24 hours for some complication.  I then asked the PS himself what his stats were (as the others were overall industry stats).  I insisted on absolute numbers.  So, here they are:  He and his partner have done 407 flaps (306 patients).  32 patients had to go back into surgery within the first 24-48 hours (7 hemotoma, 20 venous, 3 arterial, 2 other).  That is 7.9% going back into surgery.  Their incidences of total flap loss have been 2.7% per breast, or a total of 11.  60 patients, or 14.7% of patients had fat necrosis.  Anyway, that leaves me with an approx. 6% risk of losing one of the two flaps (mine would be bilateral).  I already have had implants for 13 years and havent' had any complications (other than now the right one has capsular contraction and looks bad).  Sandy K, do you know who, other than perhaps Bob Allen (inventor of procedure) and the folks at NOLA that have less than 1% total or partial flap loss?  Who did you go to?  I'm not sure that I want to travel alone to another city to have this done (I'm single and have no parents, sibs, etc).  Also, I understand that you aren't totally out of the woods in terms of potential flap complications until 14 days out so what do you do if you are 2,000 miles away from your surgeon and you have a problem.  I know that if you have a flap issue (blood flow), time is of the essence.

    I don't really see a lot of risks w/TRAM.  The people I know that have lost a muscle have seemingly no ill effects (supposedly studies show that too?).  And risk of flap loss is practically 0. 

    I'd love any comments on the above!!!

    Thank you!

    Debbie

  • cocoathunder
    cocoathunder Member Posts: 145
    edited September 2008

    To dah123 Debbie,

    I understand your concern and worry about replacing implant reconstruction as I just went through that!  Look for my post "Back from NOLA" which I'll bump to the top for you with details about my surgery.  I live in Florida and was scared to travel for surgery.  Surgery was performed 8/12/08, stayed in the hospital there until 8/16 and then stayed in local hotel there until 8/22.  The care was amazing.  I've also posted a update on my results "Update-hip/gap flaps" and photos which you can access by private messaging TIMTAM for instructions.  I am SO glad I did this.  But it's really important to go to someone with lots of experience.  I'm 24 days post-op now and have had no problems at all.

    Karen 

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