How long should I stay out of work?
I'm scheduled to have a lumpectomy (possible mastectomy if tumors are too large) in two weeks. I was originally told by the oncologist I would have radiation and chemo since I'm 44. My primary care doctor told me I should take off work completely during my treatment because I have asthma and a special needs child. It is very difficult to work full-time already and the chemo and radiation would just wipe me out. My dh works very long hours so he is limited in what he can do.
My problem is I used up so much vacation and sick leave just to get through the two biopsies, PET/CT, MRI etc. I only have 2 days of leave left. My work offers a donated leave program but I would have to be out-of-work for 60 business days to qualify. Since dealing with cancer means dealing with several different doctors, the 60+ days I would need off would be under the care of different doctors. None of them (according to their office staff) wants to sign the paperwork until I start their part of the treatment. The surgeon's office said he would fill out the paperwork for my surgical recovery time, but we don't know how long that will be because my planned lumpectomy may need to be a mastectomy. The Oncologist met with me after my initial diagnosis but now I have to wait until after my surgery to see him again. I have no clue when I'm supposed to meet with a radiologist. I cannot afford to take unpaid leave from my job and I feel like I hit a brick wall.
I'm not trying to be lazy as I love my job and enjoy working. I'm just not a superwoman. I already work full-time, cook dinner, do laundry, clean the house, coach soccer and help my special needs son with his therapy and homework. (DH is clueless because he grew up with a full-time housekeeper and thinks clean sheets magically appear on the bed each week)
Thank you for letting me vent. Here are my questions:
Has anyone else had to coordinate several doctors for an employer sponsored leave program or for disability?
How long after surgery do they usually start chemo or radiation? (could be a lumpectomy or mastectomy)
Is there anyone I can contact to help me coordinate all these doctors?
Thank you,
Beth
Comments
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Doctors are quick to recommend time off work and ideally that would be best in any illness. Reality is another story when you work full time. I took a week off with my lumpectomy and could have easily returned to work 2 days later, I would say the same about the mastectomy but I a had a drain in for 10 days. I also worked through chemo although I did end up taking quite a bit of time off, partly due to catching a flu bug midway through it.
I'm not sure what you mean by coordinating doctors for a leave or disability program. If it's just a matter of getting one to sign off that the leave or disability is needed, any one of them should be sufficient to justify the need to your employer, multiple doctors signing off on it generally is not needed. I would recommend using your onc simply because he is the one you will have the longer term contact with, he will also be most familiar with the side effects of the cancer drugs you'll be receiving.
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Is you're primary doctor also unwilling to sign off on it?
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I'll try to answer a few of your questions, at least how things were coordinated with my company.
Time off for my surgery was considered disablility leave. This was coordinated by the disability carrier and my surgeon.
Doctor visits, time off for Chemo fell under the Family Medical Leave. I only took off the days I absolutely needed to recover from each TX. I would take 1/2 day off on Thursday for the infusion, work on Friday and recovered at home Saturday thru Monday. Then I'd need another 1/2 day off for hydration. Only needed 2 days off for each chemo TX. My onco signed the papers for FMLA.
I get my radiation treatments before I go to work each day so I haven't needed any days off yet. I still have some paid time left under FMLA in case I need time off at the end of rads.
I had a lumpecomy and had to wait a month before starting chemo. Not sure about the waiting period for mastectomy. If you need to do both chemo and rads, chemo will come first. Rads can start right after your last hydration.
I'm sure you are very overwhelmed with everything right now. I felt the same way. Once you have your surgery and know what you are dealing with, the docs will guide you through the TX options.
Good luck with your surgery.
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It really does depend on you and how you heal. Originally I got three letters from all three doctors. One stating approx. when my chemo would start and the length of the total treatments, one from my surgeon stating his recovery time and one from the plastic surgeon stating his recovery time. That being said, my last day of work was January 15 of this year. I have yet to go back, and I probably won't go back until January of next year. I also received donated leave, but was able to arrange a telework agreement, so basically I do all my work from home. My counts are still really low, so we are waiting until my reconstruction is over before I go back.
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Thank you all for the information.
My primary doctor is the one who told me I should take a few months off because I'm asthmatic and borderline anemic. I also have a weakened immune system ever since I had mono in my late 20s. The Primary doctor is on vacation this week so I asked one of the nurses about the form. She insisted the primary doctor could not sign the form because she is not the one who is performing the surgery or prescribing the chemo. The person I spoke with in Human Resources told me the Primary doctor was fine, but her staff said no. I made an appointment with her for next week anyway because I want to make sure my latest sinus infection is gone.
The surgeon is also on vacation this week and next week. He could sign the form for the surgical recovery time which would be a few weeks for a lumpectomy. Since I have to turn in the forms before I take off, I will have to amend this if I end up with a mastectomy. The office staff for the oncologist said he cannot sign anything until after my pathology report is back. By the time this all happens, I will be out of work for several weeks.
I think the real problem is a stubborn Human Resources office that wants everything to be simple. They dont' seem to understand that I do not know how much time I need off because I dont' have the pathology report. Another problem is trying to get past the staff at the oncologists office as he may be willing to give an estimated amount of time.
Beth
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Beth- it is a viscious circle - can't do a before b, but c has to be done before a OR b. big hugs.
I only had to work with my rad onc as my time off commenced about 10 days after starting rads. All of my forms were on line with fairly worthless FAQs, but I did talk to the leave people more than once...their concern, and they told me this, was to make sure that my leave went according to plan and that there would be a job for me when I got back. That said, when you look at the forms, it may give you good insight as to who has to do the approving - they are often written to cover work injuries, not illness, which makes it difficult at best to figure out what's going on.
Each doctor has to say how long you'll need off & for what - start with surgery. They should be well-used to the forms what goes where. My rad onc had a nurse help with it to make sure the right words got in the right spot. Let HR or leave management know that it will be amended. With a lumpectomy, I had one week off work, so I didn't have to do any paperwork (it started with day 8). Fortunately, the paperwork didn't have to be filled out unless I knew I'd be out more than 7 calendar days.
The rad onc was very clear in the writeups that it was open-ended & leave management approved the minimum time (4 weeks) and then we amended it to 6 weeks. He was willing to put down whatever I needed. Unfortunately, the surgeon can't say how long you'll need for chemo, rads, or any other TX.
Unless you have to take time off before surgery, don't. The pre-surgical crap (xrays, blood work, etc) can be worked early or late in the day. The doc should have a good idea before scheduling if it will be LX or MX. Assume best case and go for a week & if he gets into it & it is a MX, then deal with it post-surgery.
Someone at the surgeon can tell you how things might proceed - if MX, then chemo starts so many days after. If LX, same thing. I didn't have chemo, so I'm not sure, but the rads probably start a couple of weeks after chemo ends. Without chemo, it is within 6 weeks of surgery. As others have said, you may not need full weeks off. If your work requires 60 consecutive days off, it might not happen until you are further into treatments (my mom started off ok, then needed to stay home after awhile as chemo took a huge toll on her). FMLA is 12 weeks over a year's time, consecutive days not required, so at least apply for that. The paperwork will distinguish between what is needed for individual days and/or longer time frames.
Now, cruel Pam here. Beds don't get changed, soccer coaching doesn't happen (but go to whatever games you can), dinner is takeout, dad fixes sandwiches for lunch or your son gets to buy everyday. Cereal and milk for breakfast. If you have the energy now, do some cooking & throw it in the freezer. Vaccuming - forget it. You won't be able to for the duration (and the docs will tell you so. See, there is a bright side
). You'll be around enough toxins that cleaning the toilet - TOTALLY off limits. Dead serious here. Your number one priority is you and your health. Second is your son. I can't imagine going through it with a special needs child, but there should be some help available. If things get truly disgusting, then it's time for the husband to learn how to put a fitted sheet on the bed and throw a clean flat one on top. Pick your battles and where you want to expend your energy. Is there anyone you can bring in to help with your son & his therapy & homework? No doubt changes aren't easy for him, so it might not work, but think about it. Maybe school knows of a highschooler looking for volunteer hours (this sounds like something my 17 yo would do in a heartbeat). Please take care & take things as easy as you can. Like they say on the airplanes - put your oxygen mask on first. Conserve your time off now, and take what you need later.
i understand - it was next to impossible for me to come to the decision to take short-term disability. Once I did, the weight lifted from my shoulders was incredible. I swear, dealing with HR and leave management is a job in and of itself.
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I sent an email to our soccer league coordinator telling him I will not be coaching this season. I also sent an email to our PTO President telling her I cannot run the Hospitality committee this year. Neither responded. I thought that was strange, but they should understand I have a good reason to get out of these committments.
I'm going to try a little harder to get the staff at the Oncologists office to give me some sort of time estimate. When my biopsy pathology came back he said I would get chemo and radiation. I'm trying to get my boss to help me with Human Resources. I work for a state government and they are pretty inflexible.
Beth
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