What is your post-cancer personality?
This article in the NY Times this morning describes much of how I felt throughout treatment and made me think about who I've become since. Certainly, I've lost so many of my hesitations and insecurities and, so, have become much more my own friend and advocate. This has allowed me to open myself to many new people because I no longer feel threatened by others' differences and oddities. All in all, I'd say that cancer gave me a new, courageous attitude and the ability to embrace a much wider world.
I'm curious about others....after the dust cleared, how do you see your post-cancer YOU?
August 12, 2008 Cases
Having Cancer, and Finding a Personality
By RUTH PENNEBAKER
They say cancer changes you. They may be right. When I found out I had breast cancer 12 years ago, I became a comedian.
Not the kind anyone paid to see. Just the kind who lurked around hospital corridors and examination rooms offering offbeat opinions, wiseacre remarks, outrageous commentary.
To my oncologist - a short, brisk woman who informed me my tumor had been "fairly aggressive" - I complained about the title of the pamphlet she had given me, "Chemotherapy and You." I said I'd prefer it if the title were "Chemotherapy and Somebody Else."
I complained, too, about the little marketing-friendly write-up that listed her family and her hobbies. The family was fine. But hobbies? I didn't want a doctor who had time for hobbies. I wanted her to spend all her waking hours focusing on curing cancer, particularly the type indicated on my own nasty little pathology report.
To everyone else, especially the people wearing white coats and carrying big needles, I announced I was writing a book about cancer. I tried to look rabidly litigious whenever I spoke.
In the midst of all this - the comebacks, the wisecracks, the flapping mouth - I had a dim idea of what I was doing. I wanted to be someone, a recognizable personality, a full-blooded, memorable human being, and not just a cancer patient. I had already lost the person I used to be, that healthy, energetic 45-year-old woman. I wasn't capable of losing more.
Other friends had their own spins on claiming individuality in the cancer world. One, a psychiatrist, questioned every medical decision that was made. Another, never timid to begin with, terrorized the technicians. "You get one chance to stick me and find a vein," she told them. "If you can't do that, find me somebody who can."
I also took comfort from Anatole Broyard's beautifully written, intermittently hilarious account of his own cancer treatments in "Intoxicated by My Illness," published in 1992, two years after his death from prostate cancer. Mr. Broyard, a book critic and editor at The New York Times, had fired a prominent surgeon because he hadn't liked the way the man wore a cap in the operating room. It looked, he wrote, "like a condom stuck on his head."
The way Mr. Broyard saw it, : "A critical illness is like a great permission, an authorization or absolving. It's all right for a threatened man to be romantic, even crazy, if he feels like it. All your life you think you have to hold back your craziness, but when you're sick you can let it go in all its garish colors."
Yes! That's what I was experiencing, too. Those garish colors, that craziness and freedom, that painfully stark clarity about what was important and what was not. It was as if, I sometimes felt, I had lived my life half asleep. But now, now, I was wide awake.
As my treatments wore on, though - the catheter in my chest, the chemotherapy, the anti-nausea drugs, the baldness, the fatigue, the radiation - my high spirits and sense of clarity began to wane. One night at a play, I noticed a woman across the room. She was attractive, middle-age, vibrant. Completely unlike me, as I had become over the past few months. I huddled in my seat, feeling spent and empty and old.
The last time I visited my oncologist after my treatments were over, I felt lost. The image that kept recurring in my mind was that someone with a gigantic pair of tweezers had picked me up, shaken me and tossed me back down. Now what?
"I feel as if I want to ask you," I told my oncologist, "how to live."
She told me I could live as I had before - working, taking care of kids, exercising, traveling, enjoying life. Anything, really. I could lead a normal life.
As I left her office, I realized how completely I'd lost myself over the past several months. I needed to be reminded who I was.
Can you tell me who I am now? I never asked my oncologist that question. Probably she would have thought I was joking, the way I always was.
Comments
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Thanks for sharing FitChik. I admire those who can find humor in adversity.
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Thanks Marin...good article! I see you have a new av too...loooong hair!!! Looks good.
As far as humor...it's the only thing that got me through sometimes. Kind of freaked some people out, but whatever.
Me
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Thanks, Marin, for posting the article. I can identify with most of it, only while I kept my sense of humor I was not a comedian. I have become a little more assertive as far as letting my family know what's on my mind and not keeping things bottled up too long. I also feel more entitled. I deserve to treat myself well and not feel guilty for indulging myself once in a while. At the same time I feel like cancer is lurking, waiting for the opportunity to insinuate itself on my life again, more than it has. Its been difficult moving beyond that fear. I suppose I need to give it more time.
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RIV54: Boy did you hit the nail on the head. I am nearly finished with treatment -- only ten more rads to go-- and finished chemo in May but I have terrible fear of recurrence. I am starting counseling this week to get a handle on that emotion...perhaps you're right, maybe it just takes time.
Great article, btw. Thanks for posting Fitchik.
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Marin, thanks for sharing that. Funny how so many of us take to the comedy and other to dispair in the wake of this demon. Well, not funny really, interesting though. Odd what makes us us, is what determines our reaction to it and our outward signs I suppose.
{{Gina}} I worry and I had an early cancer. I can only imagine what you ladies in the stages of III and IV go through. I only wishiwere there to extend a hand, or a shoulder or offer a huge {{hug}} when any of you need it. It's so hard to know you must experience what we all feel with the initial dx, only 10X that when you get that final dx of III or IV. I'm sorry for that, that I can't understand it and offer some help in raising your spirits when they need them. I can say, that without a doubt, what you go through and share on these boards, is what keeps me from the darkest of thoughts, b/c there is always someone like you, who has a real reason for concern as opposed to me, who little chance of understanding where you are coming from. Please know I keep you all in my thoughts and in my prayers that you get through life with NED. My heart and mind are keeping your close in my prayers and thoughts.
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oh, I'm an absolute riot now. j/k. i think i seem the same to everybody who knows me, except for my husband who sees how much it's changed me. i have developed a general malaise about everything. unfortunately, my get up and go got up and went. i don't know why cancer didn't make me want to enjoy each day to its fullest. sometimes i feel guilty about that....especially when so many others are in far worse shape. i'm grateful for my current prognosis, but can't say i am enjoying my life.
the good part for me is i've become the go-to person for anyone around me who has cancer or is taking care of someone with cancer and that part i like. i'm constantly reading about cancer and its treatments and how to treat side effects and i try to help them where i can....i make them patient 3-ring binder notebooks to keep track of everything to make navigating their illness a little more organized and manageable. that feels rewarding. i like reassuring newly diagnosed breast cancer women whom i meet along the way.
i will say that humor throughout active treatment is what got me through my docs turning me into a big, fat, beefy, red-faced bald guy with 1 1/2 bewbs.
thanks for posting the article, marin...i really enjoyed it! especially the condom hat. LOL.
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I'd like to say it's changed me in a such a way that people dont' annoy me anymore. Nope they still do!
I'd like to say it changed me in a way that I'm completely patient and understanding with my kids. Nope I'm not!
I'd like to say I've changed that I enjoy everyday, every second and "live like I'm dying". Nope I don't.
I'd like to say i've changed that don't get angry at the ones I love, that I don't expect them to be "perfect" that I forgive easily. I don't.
I'd like to say I eat perfectly and workout with joy. Nope had Mcdonald's yesterday and skipped running!
How have I changed? I'm not sure really. I don't put up with drs that don't listen thats for sure! I do let do of anger quicker. I'm more understanding to others who are going through a crisis. I don't take myself too seriously. Maybe that's it! I just don't take myself too seriously anymore. I am who I am - weirdness and all - so hey move on. And I don't take life as seriously anymore. It's too short to be overly serious about it - move on and move forward.
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Marin thanks for sharing.
Jill-- love your response.
When people ask me the great epiphanies I've had from cancer-- I say,
When the traffic light turns yellow, before cancer I used to speed through it, now I stop and wait for the red light.
Seriously. This is my great knowledge. Oh, and I don't talk on a cell phone and drive, but I don't think cancer had anything to do with that.
I will say that I live FULLY, to honor the women that are too sick to live fully, or the lives that cancer robbed before getting the chance.
And by living fully, that by no means is perfection. Okay, I have no cavaties, and I recycle, and vote, but I love my VICES (evil laughter) they are good and plenty. And by good, I mean, totally bad for me, and I don't care.
I love life. I love my life. Doesn't mean everyday is great, it just means I'm grateful to have every day.
I still sweat the small stuff, I fully utilize my Bitch switch, and I'm selfish.
I also have empathy for people with illness, and I feel fortunate that I get to help women going through cancer.
I try to remember that the two most common elements in the world are carbon Dioxide and Stupidity. A little laughter goes a long way, to have good friends, you ,must first be one, and even though I beat cancer, shit is still going to happen.
Yup. that about sums it up.
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Thanks for this thread! I can identify with so much that has been said. Feels like I've been picked up, chewed up, and thrown across the room. So now I have to get up, and go on with my life! I just spent a few days with a friend who is stage IV - diagnosed a year before me, and she's been given 2-4 weeks (mind, that was 6 weeks ago, so maybe she has other ideas!) But, she is pretty sick, her world is pretty small. You would think that would make me grateful to be alive and well - I am, but it's hard to get past the fatigue and mental fog.
On the other hand, I think I am more motivated to put to rest - finally - some of my demons. I'm learning to be kinder to myself - no choice, not as much energy. But it sure hasn't made me a cancer saint, and I get so tired of the "positive attitude" stuff. A woman I used to work with is on treatment 4/6, bald, arm swollen, etc. I saw her boss the other day, and asked about her - the boss said "Oh, she has such a positive attitude". I wondered if that is the whole truth, or if she (like me) can't just lay it out for just any one - they would run, really fast, Because it sucks to have chemo, and be bald and sick. And her life is changed forever, because it could come back.
So, I'm not there yet. I don't know who I will be post-cancer. I think it will be more real, less driven, hopefully kinder. But, still flawed that's for sure! And if cancer has "blessed" me, I'd trade it for a cure, or better yet, prevention!
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I agree, great thread. When I was diagnosed the first time (14 years ago), someone I didn't really know (a survivor) said to me, "you won't believe this now, but you will come out of this a better person." And I couldn't imagine what she meant at the time, but it was true. Little problems and annoyances don't matter much. Every day is a gift. Complaining and whining are usually a waste of energy. So when I was diagnosed again, I had to wonder, what is it that I didn't learn the first time???? I'm still not sure the answer to that question, but I do know that it's been a different experience in some ways, and I've gotten to know people with whom I would not otherwise crossed paths. On the other side of treatment, I have come to appreciate people who seem to know just what to do to help. I want to become one of those people!!
CHJ
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This is a good thread.
I still don't really know WHO I am, post bc. I am 1 1/2 years past my bc dx, on 3/15/2007. Since I have past the 1 year mark, I thought things would 'settle down' into that NEW NORMAL I keep hearing about, but no... every time I turn around, there is something else I have to deal with.In June, I had another dreadful trans vaginal u/s to check my endometrial lining, and it was THICK!, and the abnormal report was just 'filed away' by my pcp's office for TWO weeks before I called for my results. Anyway, I just had a D & C with Hysteroscopy today, and now I am feeling crampy... Damn Tamoxifen!!
I didn't mean to go into so much detail, but I guess even though I now sort of recognize the person in the mirror, I still don't know who I am, post bc.
Harley
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Harley, kudos to you for giving a voice to the women that don't have it figured out yet.
Yet another fun thing about cancer. We don't all have it figured out, and even for those of us that think we do, there are a lot of times that we don't either.
Gladly holding the mirror while you stand there and look.
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I don't feel like a better person. I feel tired and moody and grumpy and achy. The weight I have gained makes me feel even worse about myself. I have 2 little boys that need a young energetic mom not somebodies tired 85 year old grandma. My brain doesn't feel connected to my body anymore.
My personality has been changed to a old, fat depressed person. Whoopee!
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Breast cancer was a freeing experience for me and my life is better since my diagnosis. I too have lost inhabitions. I used to worry about the dumbest things and now I'm a lot more laid back. I feel so lucky and grateful for having a (so far) positive outcome. Breast cancer has made me realize how much worse things could have been and how many people have things much worse than me. I feel grateful that I didn't have a disease worse than cancer like ALS. Cancer taught me that I could rise to the occasion and rather than ask why me, I knew the answer was, why not me.
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A provocative question.
I feel like a different person than the person I was 10 years ago. But since I was diagnosed with BC 4 years ago, I can't blame the BC altogether. In the past 10 years I've had a few major "hits" that have all contributed to the person I am now. So it's hard to isolate how much of it is BC and how much of it is the cumulative effects of everything.
Unlike others, I am less laid back, less risk-taking, less life-embracing, and I hate that. I feel like a little scared mouse that pokes its nose out once in a while to see if the cat is out there waiting to chomp on me. I have constant anxiety that hums on a low level. Any disruption in my routine throws me into a state of panic. I have little faith in my ability to make positive changes in my life. Many of the changes that have occurred lately, in the past few years -- though out of my control -- have been negative and continue to pile up. So I'm just scared and nervous much of the time.
Sorry to be such a downer.
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Don't appologize Carolsd - it's just the way it is. I can certainly relate, things pile up. There have been too many losses and disappointments to blithely assume that everything will work out. But I am working on my "startle response", because it really hurts me. And, although I have had several of those phone calls out of the blue that changed my life forever, and not in good ways, many times things do work out.
I've had a rough month - I went off Effexor in May and have been struggling with that decision. But it's occurred to me this week that I HAVE to go easy on myself. That was perhaps the only nice thing about treatment - I had no expectations of myself except to get up and get through the day, and I had permission to be good to myself. So why should that change? Maybe that's the gift that BC will give me, since I always felt I had to be doing, accomplishing to have any worth. Nobody else cares, and it's just making me tired, tired, tired, and stressed.
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Cancer made me braver. Things that used to scare me now seem to pale in comparission with having cancer. So I am tougher and I am more outspoken. (big surprise to everyone here, eh?!)
Marin- your new avatar is gorgeous!
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When I was dx'ed it was as if my whole life was instantly brought into perfect focus. I could clearly see what was important and where my priorities should lie. I had been given the gentlest of wake-up calls (DCIS) and I wasn't about to ignore it and go back to sleep. Not that I hadn't lived life to the full before or been focussed on material or unimportant things, it's just that I had greater clarity about it.
As for humor, I've always loved it but probably held back sometimes not wanting to be flippant about everything but rather be more 'balanced'. Now I think humor IS everything and I want to spread it around with gay abandon. I feel I must make at least one person laugh EVERY day. Laughter is EVERYTHING to me. Especially other peoples laughter. I want to make people feel happy. I want to hear them laugh. Genuine belly laughs! That's what makes me feel good more than anything else.
I can also indulge myself now guilt free! If I want it and can afford it, buy it and enjoy! Heck what am I waiting for?
And I'm more forgiving too. I don't think 'you should..'. as much. I don't think about 'worst case scenarios' as much. I don't fear dying as much. I believe my kids are going to be fine. I believe I did a pretty good job as a parent, not perfect, but pretty good.
It's now 3 months since my dx and I don't still have that perfect clarity and focus anymore but I remember how I felt and so I'm still living with those ideals and choosing not to step back onto that full speed 'gotta go fast, not sure why' treadmill of life.
Yep, I can relate to that article. Cancer has changed me. I doubt that other people have noticed a huge difference in me but I haven't asked them either. It doesn't really matter, I'm just happy to be here!
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The idea of a post-cancer personality strikes me as needing a bit of narrowing after all these thoughtful posts. It's as though our true personalities are sometimes revealed, at least after we get our strength back--or no, that's not right--at least after we start re-developing our strength, a process we will need to work on always. My first oncologist told me to "enjoy life" when I finished my treatment in Dec. of 1999. I have, though my life is different---older, wiser, less sexual, and in many ways both more sympathetic and less forgiving of those who fold in adversity, or at least who STAY folded. And I've come to see that all human beings are "survivors" -- we all are incredibly strong and incredibly fragile, and we must all care for one another. That is life. Caring is life. So that's not personality, so much, as just an adjustment to experience.
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My friend and co-worker discussed this topic today. She was telling someone about some of the personalities in our office. When she said that I was a type A, I corrected her and said that I used to be but now am a type AB positive.
She laughed and said that she had to agree that I am much less tense and rigid. More ready to play.
I now stress much less about minor irritants and enjoy life so much more. Spend more time with the people I care about and doing fun stuff. Don't plan out stuff like I used to, just throw stuff in a bag and go. Try to see things from others' perspective instead of exerting my own will. I go out of my way to tell others how precious they are to me and why they are special to me.
Though I was an active community volunteer, I never considered myself to be especially compassionate or empathetic but now...I watch people differently and really listen. I pick up on feelings that never occurred to me before. I used to only live in black and white. Not only do I now see shades of grey but all kinds of spectacular color.
Even though having had cancer bites big time, I do appreciate most of the changes it brought about. The thing that I really miss is my blissful naivete concerning doctors and tests. That and my unscarred body. Those changes are still hard to accept...
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This is an interesting question, because there is a part of me that isn't certain I like who I am now.
I used to be very trusting, practically worry-free, and very much able to 'cast all my cares upon God'. I've really lost that, and that's the part I don't like. I'm realizing that my relationship with God will never be the same - not that it isn't good or I'm not working on it - but the 'whatever you want is fine with me' part now has definite opinions :-)
I am very much a work in progress...
But the good things that have changed - I do not give up so easily any more. I fight the important battles. I tell people what I think. I make more of my own decisions, and I'm not afraid to be wrong or to make mistakes, because I am learning, and even better, actually doing. I question doctors now (and go on all of my parents' doctors' visits now), and do my own research. I live a more focused life. I get more accomplished, and, holy cow, I have real goals (instead of floating on the innertube of life to wherever it takes me :-))
It's a different type of enjoyment, feeling like I am doing something, but I do miss the inner tube. Gotta find my balance.
Peace to you you all -
Leslie :-)
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Excellent thread. How have I changed? I'm depressed. Have trouble finding enjoyment and laughter. Have no reason to believe it will ever get better. No longer feel that I have "purpose" in life. Tired of hearing that it's all in how I perceive things and if I just changed my attitude everything would get better.
I have no reason to believe anything will get better. Even the most 'supportive' of friends and family seem to want to 'get back to normal' which is a place I'll never see again. The past is just an empty space; remembering it is only painful. The future is not bright. The present is just where I am until I die.
On the other hand, I have become an excellent actress, keeping all this from my 82 yo dad and other relatives, not to mention co-workers. Nobody likes a loser, so I act like I'm all up and positive. Maybe that just makes it worse because now I'm a phoney too.
No fun at all anymore. Don't know why I'm here. Wish I could disappear.
Beth
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Thanks for this great article. I enjoyed it.
Personally, I reset many boundaries
especially with some v. demanding
family members, oh, critical, I should say
They don't like it at all, but that is too bad
I still love them, but.. enough got to be enough
I am so grateful to be here
and for each and every day
and for all the new friends who have come
my way, my kitty, the little things
the big things, and also..
not so important to be right.. anymore
it is how you treat someone, that really counts
to me
Namaste to all
Sierra
)
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