Anyone starting chemo in Aug. 08?

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  • alibug05
    alibug05 Member Posts: 182
    edited August 2008

    Well guys I go today to pick out a wig and for my post-op check-up.  Friday is the big C-Day - yep that is what I am calling it.  Misty1 I am soooo glad that you are keeping us updated.  You keep going strong it gives the rest of us hope!!!!!  Alittle about myself - I have been married to wonderful man for 3 1/2 years, I have 2 awesome kids - Gunner is 9 (4th grade) and Ali is 13 (8th grade) - I live in Ohio about 1 1/2 from Columbus.  I too have a great support system - besides my hubby and kids - my Mom has taken me to every appt. - my Dad is there for whatever I need, I have a great sister and sister-in-law, my in-laws are great too.  My ex-hubby and his wife have been very supportive with the whole thing and I know I can count on them for the kids whenever I need them.  His wife is even bringing me some hats with hair on them tonight so I can try some on.  Life is too short to fight so we all get along really well and right now I don't have the energy to worry about stupid stuff like that!!!!!!  I work full-time for an entertainment booking agency.  We book country and rock acts for fairs all over the mid-west.  It is a pretty cool job and I have met some really cool people over the last 10 years - Kenny Chesney, Montgomery Gentry, Steve Holy just to name a few.  I process the contracts from Nashville so it keeps me busy and I love all my co-workers - they have all been VERY supportive.  Well I am off to get busy before my appointments today!!!!! Good luck for all who are starting this week and keep going for all the ones who have already started!!!!!!!!!!!!!!!!

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Just took first steroid dose for tomorrow's big day at 9 AM...I can already feel the extra weight.  Oh Joy!

    Good luck mommomjuju!  There are lots of us joining you this week!

    Stacy

  • Tonya36
    Tonya36 Member Posts: 66
    edited August 2008

    Well Stacy, Hood1980 and I are tomorrow.  I am going to pick out my wig today and just get some things done.  Its a pretty day and I want to enjoy it.  I went "chemo" shopping last night and bought all that I could think of that I "might" need (but hopefully won't!!!).  I woke up this morning and my first thought was chemo.  I sure hope that the anxiety is worse than the actual chemo.  I am 36 yrs old.  I live in Tennessee.  I am divorced after 14 years of marriage.  I am employed by the local 911 district here in town as a dispatcher.  I enjoy my work its the 12 hour shifts I hate.  I have my mother and friends who are my support system.  I couldn't make it without them.  I am very glad to have this site also.  Sometimes you just need to talk to other people that understand what you are going through.

    Well Good Luck to everyone that is starting this journey this week.  I pray we all have an easy time.  God Bless.

    Tonya

  • Misty1
    Misty1 Member Posts: 272
    edited August 2008

    Good Morning,

    I posted something earlier this AM, but perhaps I hit the wrong button?!

    Wow, Stacy-big day is tomorrow-I am sure it will go fine.  It looks like others are getting started, too. 

    I turned 40 last fall and never expected this to happen within the year!  I have been happily married for almost 15 years to my best friend.  We have always been very close.  We never had children, but I guess I have enough of them at school.  We work hard, but we play hard and try to travel and have fun.  I live in MD and have my family close by, but my husband's family is overseas. 

    Today is day 6-big bang this morning!  I got out of bed, probably a big too quickly, and just about passed out in the bathroom.  I don't know what happened-just sort of blacked out!  My husband called for me after hearing a thud.  I quickly got up and had a good laugh.  Went for a walk.  Felt a big nauseous-took a compazine.  I think I am just going to take one of these each day for the first week next TX.  Even though I have had few of the SEs, I don't feel 100%, but I feel much better than I thought I would.  Still just having trouble finding food that sounds appealing to eat.  I have been visiting the bathroom about 2-3 times each day, but that's it.  I am not going to take anything to stop because I don't want the other extreme.

    Girls, we can do this!!!  I know we will all look back in a few months with a big sigh of relief that it is over.  I just keep counting the days.  That definitely helps.  Summer will finish soon and fall will go by quickly.  I think this is all going to make us appreciate what used to be our "normal" hectic lives even more.

     Everyone, keep me posted on what you are going through.  Can't wait for others to share!

    ~Misty

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Misty,

    Where in MD?  Just moved back to Texas from Winchester, VA about 45 mi south of Hagerstown...OUTLET SHOPPING!!

    Stacy

  • Misty1
    Misty1 Member Posts: 272
    edited August 2008

    Just outside of Columbia, MD-I think Winchester is about an hour away.  You'll have to let me know if you are ever up this way.  Wouldn't that be fun to meet?!

    ~Misty

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    MISTY- that would be so cool...We still have a house in Winchester and several friends there too.  DH and I will be in NYC Sept. 18-21 mid chemo trip. We miss the Shenandoah Valley so much.  HOT, DRY and FLAT here!  Not a lot of culture either.

    Stacy

  • Hood1980
    Hood1980 Member Posts: 537
    edited August 2008

    Hi Misty1 & Mommy3,  I'm in Waldorf, in southern md!  It's a small world, isn't it?!  We love to go to Shenandoah in the Fall.  The leaves are gorgeous!  I also have an officemate that commutes everyday from Columbia!  BTW - I start treatments tomorrow and I don't know anything about taking any meds before I get there..... should I be???

  • Misty1
    Misty1 Member Posts: 272
    edited August 2008

    Hood-you are close to me!  Maybe one day we could try to meet somewhere in the middle!  I am surprised you are not taking anything, like a steroid.  I took some the day before, the day of , and the day after.  I am sure your doc knows what's going on, so I wouldn't worry.  These were taken to preventatively lower allergic reaction and other possible things.

    You and Stacy are a go for tomorrow-best wishes-we'll all be there for you!!

     I had to change my wig appt from tomorrow to next Tuesday-stylist is sick.  I am starting to worry about eyelashes/brows.  I have seen some other posts about losing them.  My doc told me I probably wouldn't lose them.  What was anyone else told?  I know-the hair is bad enough, but at least that can be taken care of with the wig.

    ~Misty

  • Monique
    Monique Member Posts: 121
    edited August 2008

    Hello everyone - I am joining the group soon.  I will be having my port put in next Friday the 15th.  I should be starting the chemo sometime the following week, will know more tomorrow.  I am grateful for all the information on this board, it sure makes things a little less scary.  To Misty1, Momm3 and Hood1980 - I live in Fairfax, VA (near Shenandoah).  I started a thread on the board called Northern VA ladies and have a few people on there from Md and one from DC.  It's nice to connect with people around the same area.  We are going to try and arrange some get togethers at some point, maybe some of you could join us if it's not too far from you homes :)

    Looking forward to having some friends and advice while going through this bump in the road :)

    Monique

  • jdpeaches
    jdpeaches Member Posts: 24
    edited August 2008

    Hey August Group,

    I had my first onc appointment today.  Sounds like I start Chemo in two weeks.  I'm trying so hard to learn the termanology and figure out what going to happen.  I'm glad to find a group that's going throug this with me.  I had right mast on 7/2, DCIS and a 2cm invasive, pr-,es-, her2+, thats all I know so far.  Hope I can talk with you guys tomorrow.  I'm sure your all in bed I just can't seem to sleep my mind is just spinning. What's involved in putting in the port? 

    jdpeaches

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Peaches,

    Sorry you had to join us...I am up right now too.  Took 2 doses of steroids today to prep for first treatment in the morning.  Apparently, one of the SE's of the steroids is sleeplessness!!  Great.  Had my port put in 2 weeks ago and am doing fine with it.  Have advil ready as it is somewhat sore for the first week or so.  Also you will be advised to not us that arm for 2-3 weeks ie. lifting above 90 degrees no lifting heavier than a gallon of milk, etc.  It is so that the area has time to heal and "settle in".  After all you are putting a foreign object into your body.

    Good Luck!

    Stacy

  • Tonya36
    Tonya36 Member Posts: 66
    edited August 2008

    Hello everyone.  I hope you all are well.  I am getting ready to go for my first AC tx this morning at 0930.  I hope everyone else starting today has an easy time.  Good luck to us all.  Have a good day.

     Tonya

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Hi All!  Leaving in 10 minutes for first TAC Tx at 9:00.  Slept only 3 hours last night due to the steroids...Good luck Tonya and Hood as you head off today too!  I'll post again tonight!

    Stacy

  • mommomjuju
    mommomjuju Member Posts: 12
    edited August 2008

    I had my first treatment yesterday morning.  Everythng went well.  I was sleepy from the steroids but slept well last night. No SE but this morning I have redness with no itching on my face. Also I go back to doc for Neulasta shot today. I was told that tomorrow would probably be my worst day.  The Aloxi should last for about 5 days.  Hope so.  It was not as bad as I expected.

  • Roya
    Roya Member Posts: 346
    edited August 2008

    My port was placed yesterday.  You were right Stacy! It was so sore last night that I could barely get comfy!  Hugging a pillow helped.  Wished I'd asked the doc for a few pain pills. Chemo to start Friday.

    A little about myself.  I am from Kansas City but we are living in Paris because of my DH work.  Before we moved to Paris we lived in San Francisco.  We have traveled around a lot but it has been fun.  Three kids,  girls are 4 & 17.  Alexa, the 4 y/o, is soon turning 5.  My son is 14 and is truly being a teenager in every sense of the word.  We have a cat named Kitty. 

     I'm currently a stay at home mom.  I was looking for a job when I found the lump in my left breast.  The doc said I found it early.  I had my lumpectomy (left)  on 6/20/08,  nodes -/5, clean margins. Since I am triple neg, I will take chemo then radiation.  I've put off my job hunting for now.   I will continue to do my volunteer work. 

    My family is being very good and supportive.  My kids appear to be terrified but this is because 2 of their friends have lost their moms to cancer and this is how they perceive things.   I am spending a lot of time explaining to them that this disease is not a death sentence.  My 17 year old has elected to talk to a psychologist to help her get through this with me. 

    Lots of fabulous boutiques with lots of beautiful wigs here in Paris......too many to choose from Cool.  Everyone tells me to pamper myself.  I have never really done this since I've had the kids.  In the past, I have always put them and DH first.  Now things are going to change!   I am going to take better care of myself. 

  • jdpeaches
    jdpeaches Member Posts: 24
    edited August 2008

    Hey momma3bn,

    Thanks for getting back to me.  I have an appointment for the port on Aug. 13th.  The tissue expander I have is sore enough I can hardly wait for more pain.  Can you see the port under the skin? 

    A little about me. I am 45, married for 26 years. Daughter 21 that just married in March, Son 17 senior in high school. I'm an administrator for a law firm in Houston, pretty stressful job but my bosses and coworkers are very supportive.  Great loving husband and tons of extended family and friends.  However, none of them know what a port is or what HER2 marker positive is.  I'm not even sure I know what it is yet.  I'm so thankful to have you guys to talk to. I had right mastc. 7/2 and am going through reconstruction with tissue expander etc.  Pathology said I had 6cm DCIS and 2 cm Invasive, est & prog neg., HER2 positive what all that means I'm still trying to solve.

    My oncologist didn't say anything about taking steriods. Oh boy  I have a lot to learn.

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Hi all!  Just returned from TAC Tx #1.  All went well - worst part was icing my fingernails/hands during Taxo administration.  Apparently it is to help keep the nails healthy.  I'll do it!  Don't want to lose my hair and nails, too!  Off to try to nap - will post later.

    Hood and Tonya - how did it go?

    Peaches,  I am only a few hours away from you in Tyler.  No you can't see the port specifically.  Just a bump.  Not too bad though.  Bra strap and seatbelt when driving gets in the way though as it is placed at your collar bone.  Can't help with the HER2+  I am -.  Go to American Cancer Society web site they should have all of your answers!

    Stacy

  • DFOnt
    DFOnt Member Posts: 145
    edited August 2008

    Hi

    Just had my first Oncologist appt today and found out I will be starting chemo on Aug 22, so here I am!  I will read through all these posts and get caught up and then post more info.  I'm getting a Picc line put in next week.  Anybody else here in Ontario, Canada?  I'm glad I found a group that is mostly a little bit ahead of me, it will help me be prepared!

  • MariaG67370
    MariaG67370 Member Posts: 88
    edited August 2008

    Had my first TX of TC yesterday.  Feeling fine, no nausia or constipation or other SE..  Am putting in a full day of work.  Not sure how I will be on day 3.  My blood counts were fine so I did not have to have the Big "N" injection today.  Each chemo center must be different.  I do not take any steroids on days leading to the treatment.  I am given them the day of the treatment before the chemo meds, same thing with the anti nausia medication.

  • Misty1
    Misty1 Member Posts: 272
    edited August 2008

    Wow-It looks like some of you girls survived your first  TX  yesterday or today.  Way to go!!  I was thinking about all of you.  I hope your next few days are uneventful!  Stacy, really thinking about you sleeping last night!!  Monigue-let me know if you ever get a group together up this way.

     Peaches-welcome!  You had your mast. the same day I had mine.  I had an expander put in, as well as my port that day, too.  I am also HER2+, which is a good thing because of being able to get Herceptin(H).  However, this marker is not favorable because it shows a more aggressive form.  I am doing four treatments of TC+H every three weeks.  Then, I will continue to get H every three weeks for the year.  You need to have your heart checked occasionally because there is a small risk of that being affected.  I will also take Tamoxifen for five years because I was ER+.  I have already had two expander fills and am going for the third one next week.  It's amazing how it has seemed to take a nice shape so far.

    Well girls, it was day 7 for me.  Pretty uneventful day-good news!!  I worked out, went to the pool, and went to my DH's company picnic-ribs were actually great to eat!!  I spoke with a good friend there who went through chemo four years ago (18 months of it!) and said that I could be on the upswing of this TX.  I go for blood count tomorrow and meet with the onc to check in.  I am hoping for good counts.

    Hope everyone sleeps well tonight!!

    ~Misty

  • Hood1980
    Hood1980 Member Posts: 537
    edited August 2008

    Hi Mommy3 and all,  I had my first treatment today.  It only took a little over 2 hours after arriving at the infusions center.  I had several pre-meds - benadryl, Aloxi, dexamethasone, Zantac, and Emend.  Next was the Cytoxan  for 30 mins and last was the Taxotere for one hour.  Heparin was used to clean out my port which worked great even though I just had it put in last Friday, I didn't feel a thing.  Like others have said on these boards  - the benandryl makes you sleepy and I just rested most of the time with my blankie & pillow from home.  My DH kept refilling my water bottle (I had 1.5 liters of H2O during the treatment) and entertaining me.  I feel fine except for being tired.  I go back tomorrow for my Neulasta shot.  I get blood work to test my counts in two weeks and if all is well my 2nd Tx in 3 weeks.  So far so good!  I wish all of you ladies the best and hope it is smooth sailing!  God Bless!   Joyce

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2008

    I just came back from my chemo education session. I signed the consent forms with all the side effects, and was told that I will need a port.  Starting AC every two weeks on 8/27. I f all goes well, I should be done by New Year's Day!

    I have to look at it from the view that these potent potions will be zapping my tumor so that I don't need as much surgery. And being a woman of faith, I am trusting God for that to happen.

    My wig waits in a corner of the bedroom. Going to have it styled next week.

    Bette 

  • jdpeaches
    jdpeaches Member Posts: 24
    edited August 2008

    Hey everyone,

    Sounds like all had a good day today.  That's great.  I've had a very busy day at work, and dinner with friends. I just got home.  I've thought about you gals all day.  I feel like I have a new family forming..awsome.  I will say a prayer tonight for us all that we will be strong during the next few months and that the SE will remain at a minimum.  I still don't have the exact names of the chemo drugs my onc is using on me. He is supposed to send me the names and proposed schedule.  I don't even know all the abreviations you guys use. How did ya'll learn them already??? I need a cancer teacher. 

    Sleep well....God bless, peaches

  • Tonya36
    Tonya36 Member Posts: 66
    edited August 2008

    Hello ladies.  I am so glad you are all doing well.  I had my first AC tx yesterday.  The treatment went really well.  I had Aloxi, Emend, Dexamethasone,2 tylenol and a benadryl.  They cytoxan took about an hour to infuse and the Epirubicin they push in and it took about 15 min or so.  I then had a bag of iron because I am slightly anemic so he wants to take care of that now so hopefully no blood transfusions later.  I go today for the neulasta shot.  They are going to show me how to do it myself and from here on out they will send it home with me to take the day after chemo.  Next week I go in for blood work and more iron (this is going to be a weekly thing).  I could take iron pills but they work slower and cause much constipation and the chemo itself may do that so we opted for the iv injections.  They only take about 10-15 min so I would rather be safe than sorry.   Anyway I got home about 2:30 and was so tired finally gave in to a nap about 4.I woke up in sweating and very nauseas.  My friend told me I hadn't eaten much that day so made me eat some soup and it eased it off.  I was okay then just a little queasy.   About 5 hours later it started again and I ate a small baked potato and again it eased off and and I went to sleep and just woke up with some queasiness so I ate 4 peanut butter crackers.  I don't think they were kidding when they said eat 5 or 6 small meals a day to help with nausea.  I still haven't gotten sick thank the Lord.  I feel okay actually just a little queasy.  I have to take Emend and steroids for the next two days to help with nausea and if I need something else they gave me phenergan.  If that doesn't work then call them and they will give me something else.  Evidently this AC or EC regimen is hard on the stomach but so far I am not going to complain.  I hope you all have a wonderful day.  I am praying for all of us.  God Bless.

    Tonya

  • alibug05
    alibug05 Member Posts: 182
    edited August 2008
    Good job ladies - You all sound like you are doing fairly well (considering)! LOL  I just took my 1st dose of steriods this morning and will take another tonight!!!!  I go tomorrow at 12:00.  The nervousness that I feel is probably worse than anything.  You have all helped me through it though cause I read your posts and know kinda what to expect!!!!!  Hang in there all of you and hopefully I will post tomorrow after I get done!!!!!!
  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    HI!  Well actually got sleep last night.  Felt slightly queasy all evening after first TAC yesterday.  Pretty good this morning.  Getting ready to finish school supply shopping for the 3 kiddos.  Then, offf for the Neulasta shot.  Nurse said to take Claritin for a few days with the shot that it is a better pain killer than Aleve, Advil or Tylenol for the bone pain.  All Right!  I try it out an let you all know! 

    Have a great day!

    Stacy

  • Misty1
    Misty1 Member Posts: 272
    edited August 2008

    Stacy-glad you had a good night last night.

    Tonya-hope you are having "0" SEs.  Take your anti-nausea drugs as soon as the feeling comes along.

    Alibug-We're with you for the first one.  Good luck!!

    Day 8-Today was definitely my best day.  I went for a 1-week check-up with onc today.  She was happy to hear that I have had few SEs.  However, after the blood draw, my WBC count came back very low-0.2!!  AAAAHHHH!  The nurse gave me a Neulasta shot-hopefully, they will come back up before I go back to check next Thursday.  No problem with the shot or SEs from that so far.  Stacy, I bought some Claritin to take for the next four days, too!  My onc was extremely surprised!! (so was I)  Anyhow, I went and relaxed under a tree at the pool today, keeping out of the water and away from kids.  She told me I have to avoid restaurants, movies... for the next several days.  I'll keep everyone posted.  Hope everyone is doing well.

    FYI...I go to a center for the wig trimming next week.  However, I ordered some extras from tlcdirect.org    They came today and are actually nice looking!  The prices are pretty good.

    ~Misty

  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Oh my Misty!  Wow surprised the count was so low!  Had my Neulasta today maybe it will help taking it earlier.  Don't go for blood work until the 18th.  So far so good today.  Main SE today is some redness from the TA part of the chemo.  I am fair complected and it looks like a minor sunburn on my chest and neck.  No blotchy just red.  Nurse said it could be from the steroids too!  My hats from www.headcovers.com came today and they are great!  Really nice, fit well and very soft.  Definitely not cancer patient look - NO TURBANS in my house!!  Misty, they have a great cool max work out hat with built in sweat band.  I ordered one and it seems like it will be great.  You may want to check it out if you end up not wanting to work out in a wig...just a thought!

    Hope everyone has a great night!

    Stacy

    ***Nurse said to take Claritin for 7 - 8 days after Neulasta as the bone pain lasts about that long.  I really trust her.  She's been an oncology nurse for 20 years!

  • Tonya36
    Tonya36 Member Posts: 66
    edited August 2008

    Good evening ladies.  I just wanted to check back in.  Stacy I am glad your tx went so well and you are feeling good.  Misty...I hate your WBC dropped but hopefully that Neulasta will kick in quickly.  I had my Neulasta show a couple of hours ago and they just said tylenol.  I might just have to go get me some claritin also.  Thanks for the tip.  I posted this mornig when I was up early and I went back to sleep for a couple of hours and I have felt great all day.  I haven't been home much of the day just running around with friends and the wonderful "Wal-Mart" trip.  I'm sure it will kick in soon but I am hoping for the best.  Alibug05 and Roya I think you all are tomorrow and I wish you MUCH LUCK.  I hope your treatments go as well as mine did.  It was a little slow but no reactions and for that I am grateful.  Lashon I think your tx was today and hope it went well for you.  All you ladies will have to post and let us know how you are.  I also see taht Carly 68 and jpearl haven't posted in a few days so I hope you are well and will keep in touch.  I think of you ladies often and I hope all goes well for all of us.  God Bless.

    Tonya

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