Ibrance (Palbociclib)

Romansma
Romansma Member Posts: 1,515
edited September 2022 in Stage IV/Metastatic Breast Cancer ONLY

A bottle of Ibrance came in the mail today. I will start taking it tonight with Femara. Hoping that others starting on this drug will join me here to talk about side effects and how to avoid or treat them. So far, I've been warned about low white counts. I run very low as it is, probably because of my extensive bone mets. Anyone currently on Ibrance?

Edited by Mods to add Mod Note: Unfortunately, Romansma passed away in 2016. Our thoughts are with all who loved Hope.

Edited by Mods to add:

For more information on this medication, see the main Breastcancer.org site's section on Ibrance for information on how it works, who it's for, what to expect, and side effects. Also, read the latest research on the Research News on Ibrance pages.

Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated social workers called 'Care Champions' to help navigate the complexities that accompany treatment, such as identifying resources to help find emotional support, and workplace transition, transportation and financial assistance.

For cancer patients taking a Pfizer Oncology medicine (e.g. Ibrance) or caregivers, please visit www.PfizerOncologyTogether.com.

For live support call: 1-877-744-5675

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Comments

  • Romansma
    Romansma Member Posts: 1,515
    edited February 2015

    Yes, please join us. Side effects shouldn't be too different between the stages, although PFS and OS will be. Do you take with or without food? Morning or evening

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  • Lenn13ka
    Lenn13ka Member Posts: 313
    edited February 2015

    They want you to take it with food the same time every day. I have been taking it at 6:00 pm. I guess according to the trial nurse it gets absorbed better. My blood counts were a little off on day 14 but not enough to make any changes.The first couple of weeks I had no issues at all. Really tired yesterday and today but only have 2 days left in this period and then a week off, so it will be interesting to see if you rebound that week. Back at Dana Farber next Friday for more blood work

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  • nancyh
    nancyh Member Posts: 2,644
    edited February 2015

    Hey Romansma, thanks for starting this thread.

    By some miracle, I was able to get palbociclib (with Femara) via expanded access on clinical trial. I started a couple weeks ago and have had zero side effects. I take both pills in the evening with food. This drug combo is a long shot for me as I've exhausted all the endocrine therapies, but even if I get a couple months break from chemo, I'll be happy.

    Look forward to hearing others' experience.

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  • brandall
    brandall Member Posts: 687
    edited February 2015

    I have been on a trial since last June where I may or may not be on palbociclib. I personally feel I might be on the placebo arm because I have had zero side effects. I'm taking it with faslodex and I haven't really had any side effects from that either. Sorry I can't be more helpful. I'm on a message board for people who were on the CDK 4/6 inhibitors and most people only report the low white blood counts. HTH!

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  • Romansma
    Romansma Member Posts: 1,515
    edited February 2015

    Ok, good. Decided to take my dose right after dinner last night. Good to know that's what others are doing too. There were no instructions with the packaging when it was delivered.

    I am not taking this on trial and yes, it's a bit of a long shot for me too, but I'm not interested in chemo right now.

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  • Springlakegirl
    Springlakegirl Member Posts: 216
    edited February 2015

    Romansma,

    I just noticed this thread! I have just been approved to receive Palbociclib/Letrozole, and will start on it as soon as I can. My pharmacy is trying to get the drug, but it shouldn't take too long. Thank you for starting this thread, and please continue to post any side effects you may be experiencing. I will join this conversation as soon as I start. Thanks!

    http://deniseneish.com/

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  • Lenn13ka
    Lenn13ka Member Posts: 313
    edited February 2015

    I will try and share as much information as I can from the trial I am on as I will be followed pretty closely . I have access to the trial nurse and see a Dr. Once/month. The trial is basically about the side effects of the drug and is a feasibility study on whether palbociclib can be tolerated enough to become part of standard treatment

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  • Romansma
    Romansma Member Posts: 1,515
    edited February 2015

    Springlakegirl, I was told you could only get Ibrance through a specialty pharmacy. Is that what you are doing? If not, you might call MO and ask them to check. When I went on Afinitor last year, my MO gave me a prescription to get filled which was not the way to do it. It could only be filled by specialty pharmacy, too. It wasted a few days for me.



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  • Springlakegirl
    Springlakegirl Member Posts: 216
    edited February 2015

    Yes, they are getting it through a specialty pharmacy. Thank you!

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  • Romansma
    Romansma Member Posts: 1,515
    edited February 2015

    Great! Should only take a few days. Day 2 is down the hatch! I haven't noticed anything different.


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