how to treat an ulcerated (breast) tumor

abigail48

and by the way as the horrified poster said about my paper towel dressings I've been using commercial ones currently, still no independent drug store but the internet does fine. the bad part is the heavy nasty stuff I have to give to the trash people. but they deal with cat shit, kotex and whatever.

beebs2704

I've been following this post for awhile and notice how there are lots of offers to help on a regular basis, lots of suggestions about seeing doctors. Abigail it seems that you want to manage this in your own way. Although I'm uncomfortable with how you do that, as I, like others, know that you could receive help that would remove your suffering, I respect that it's your body and your choice. I also think we'd do best to leave you alonewith that choice and not further pitch you with any more advice.

abigail48

and as for infection as someone mentioned quite a while ago it seems to be looking better, more pink than bright, that's the mushroom stuff probably which keeps it from bleeding, but it;s less too with the tempering of the weather. I do wish though I could bathe in marigold decoction. I did put some in a bath the other day but too expensive to do often. and I am bathing a bit now!!

abigail48

and as for suffering: nothing compared to what I read here, especially the radiation thread

abigail48

seems what will probably kill me isn't the cancer but the shakes. I remember mentioning this in the first deleted thread on alternative, that was in 2011, my head had been shaking for a few months again then, now last few nights I've had what I guess is parkinsons reactions, in sleep, wakes me up, difficult to throw off the reaction to usual mode of relaxation.. google says protein for dopamine, also blueberries and something else.....??

abigail48

having a lot of trouble getting the

supplies here, ups recalcetrant as always but now disaster for me. such a difference not using paper towels. whoever it was who scolded me about that great karma insues to you

rameshd33

Hi Abigail, how long ago did your tumour open through the skin

abigail48

the very beginning, I'd noticed something from a photo in 2010, that a cyst I'd had from taking birth control pills had risen and hardened 45 years later. I was juicing fennel, for a year, learned it was estrogenic and stopped. stopped in jan, in march the first red spot, then another now the whole cyst is out and growing. growing now from the inside too. going on 6 years now. no conventional therapy. I eat no meat, havn't since 1972, try to eat organic as much as possible but i no longer have the energy to cook or do much of anything. I'll be 80 years old in may I joined bco in september 2011, 6 months after the first sign. at the time I didn;t know how to edit posts, and was bullied a whole lot. finally the whole alternative thread was deleted it had some good alternative sites mentioned too I've never been able to find since..........got supplies finally, paid for a saturday delivery and everything came then, so I now have a lot of good stuff. very expensive but worth it. got to stop de breeding? it though, hemhorrhaged today but I've learned how to stop the bleeding without having to strip and seer it off in the tub and have a month to recover energy. can no longer afford those months of recovery

bluepearl

This is actually quite sad. No, I did not get abigail48 banned. No I don't have to prove that cancer isn't a fungus anymore than I have to prove the moon isn't made of cheese. Abigail48 goes around and around and never gets any satisfactory answers. I think she may be very lonely and needs the engagement of people on this forum (and perhaps others...I don't know) to alleviate that loneliness. Which is ok. And I think it would be beneficial if it were read that way. I hope abagail48 can find some community here; it no longer really matters what anyone believes as it only matters what abigail48 does and for this, one can only offer the spirit of friendship and some advice on how to care for her wound, whatever it may be. I think she would be a very interesting person to visit as a friend....and lots of good stories about her life. The elderly often get left behind these days. Take care abigail48.

abigail48

thanks blue pearl. I moved here 43 years ago, it's a very small place and I know and am known to most of the people here, the snow birds are the most congenial, theyre gone now but will return in the spring like all migratory animals. am I lonely, I'm a loner for sure but I don;t feel lonely, the internet does help for sure, especially now that I'm pretty much house bound but I've never much liked social in person stuff. I hate phone calls, my I phone I finally got one for emergencies, is on turned off mo de all of the time now I enjoyed the company of my biker, but he;s been gone now almost 10 years and I have no desire to replace such a company even were it possible

sbelizabeth

Abigail48, I live in California and I have marigolds blooming still. I'll send you all I have if it would please you. Just PM me with your address.

Blessings to you, my friend.

abigail48

no longer have the energy to make infusions. have sent for more calendula aerosol though I couldn't get the bottle I have to spray, didn't matter. stuff is great. most wish I had the energy to make olive leaf decoction agan and gring the organic black pepper still have some of both

rameshd33

Thanks Abigail, I did follow your posts through. I read somewhere about a whitish mass. I have a similar issue, but from what I've been told it is a Secretory Breast Carcinoma, which is a very lethargic cancer, stays in place, sometimes comes out of skin, and never distant metastasis. generally harmless , except for the largely annoying malignant wound management. Treatment if any is mostly Simple Masectomy. Effectiveness of chemo or radiation is highly debated

abigail48

interesting possibility, probably partially, thinking the white stuff is the vaginitis fungus. forgetting words constantly. it comes on soft then hardens and seems to cover and prevent bleeding. the tumor does grow. the under rt arm node has grown a lot. all the clear lymph and white stuff seems to come from it. but who knows, will probably never know been bleeding a very lot again today, until recently (I hope) definitely started from a cyst came on in 1964 back pain cough, spread or simply old age. will no doubt never know

rameshd33

Thanks Abigail, be strong as always. From the sounds of it, you seem to have a slow growing tumour, but I agree there are somethings we will never know. Pray for you.

abigail48

and sending you good thoughts as well and for enlightening me as to possibilities

abigail48

white stuff: candida albicans??

rameshd33

Candida, quite possible, however I personally think, it may be the eosinophils secretions that eventually harden over time, therefore the name Secretory Carcinoma. It may be the abundance of the eosinophils that must be making the tumour grow sluggishly. From what I have read and heard, this type rarely spreads too far, and if managed well prognosis very good, nevertheless annoying to manage an open wound. Again we may never be too sure anyway

Eosinophils = white blood cells or simply puss

rameshd33

Here is some information

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC40811...

I'm no medical doctor, just sharing something I came across and thought your case might resemble. I know you won't, but seek expert advice if you can

wrenn

rameshd33 did you have a mastectomy? I am curious to know how yours was treated.

Abigail made a decision years ago to avoid clinical intervention and we here (after many months of frustratingly trying to talk her out of it) now just try to support. She is a genius at figuring out what works for her to make this more tolerable for her.

I badly wanted her to have the breast removed so she could enjoy her old age and not spend her days tending to this wound but am adapting to just listening to her ordeal and hoping she gets joy from the little things in her interesting life.

abigail48

hi wrenn. close call tonight. up to come downstairs and finally here 4 hrs later, all cleaned up and so far not hemmhoragging more now. thinking while cleaning up everyone dies of unmentionable, pneumonia, that usually when unlucky enough to end up there, parkinsons, cancer or bleeding out, and I think I'd rather do that here than call 911, have drivers see the mess and me and lug me away to the hospital, but who knows when it comes to it. don't know how long it took me to stop the bleed but it was certainly longer than 20 minutes. my adorable great uncle by marriage it must be said, died on the table after my mother encouraged him to have the even that long ago catterac surgery. they had no children so after that my mother felt obliged to travel to illinois? every time aunt edith called for her. uncle billy when he visited would feed me scraped apple. that's when you cut an apple in half and scrape the raw fruit with a spoon. delicious

voraciousreader

abigail....back in September a neighbor a few years younger than you passed and I thought of you. Due to hoarding she pushed away her husband and children many many many years ago. She seemed to live comfortably despite her loss. I know your beloved passed a while ago and I recall that until recently you were visited upon. May I ask if you still are visited upon? I ask because I worry if something does happen to you and you don't as for assistance...how will any of us who care for you know how you are? Following my neighbor's passing.... I was relieved to hear that her daughters returned home to help her during those last very few weeks. I would like to encourage you to begin formulating an ACTIONABLE PLAN in the event you choose to want help. Please also keep in mind that the most altruistic thing that you can do for yourself is to create a simple plan that can guide your loved ones towards giving them and you peace of mind during the end of your life and afterwards that spells out your wishes. I know you are also an artist and wonder whose hands you want to pass on your most valuable art? In my neighbor's case...there was little in the home that her daughters found that was salvageable. I am sure these sisters are heartbroken on so many levels. The worst being the lack of time spent with their mom following their formative years. It seems their mother's independence in choosing her possessions over the emotional needs of her children was IMHO a very sad and poor choice for all of them.

Abigail...I know how independent you are and until now you have been served well by your sassy independence. But now it is time to reassess if you might now serve yourself better. No one at your age needs to be spending so much time and good energy at cleansing wounds. Imagine how much more time you would have to create art or do other things that you enjoy doing if you didn't have to spend as much time as you do now caring for your health?

You needn't explain your actions to me. And please understand I am not being judgmental. I am sure as you have explained to so many of us that you understand your body better than anyone else and therefore feel the need to continue doing what has worked for you. I can only wish that you think beyond yourself and begin thinking about that ACTIONABLE PLAN and share it with your loved ones. My neighbor didn't and it has left her daughters shattered. I know in my heart that I would never want to push away my loved ones due to my fierce independence. I am at a point in my life where I am STRONG enough to graciously ask for and receive help from my kids. I believe the stronger you are...the easier it should be to get help.

Abigail....it is time for you to do some soul searching that might help you gain clarity as to what might work better for you now....I know Western medicine is something you reject. But rejecting Western medicine does not imply rejecting help altogether.

VR...❤

abigail48

l have long time 15 plus years a couple to help, bring groceries and mail. I also told them recently about my trouble. thanks voracious for thinking of me. as for the art, my executors will take care of that and I have a fan in ann arbor who wants to do a show of my early work though I don't see how I can get that work framed and to him. must make a note to the executors about that. one of my twin sisters is a member of bco, knows of my trouble and the threads where I post

abigail48

the doctor even cashed the cheque I sent so I guess I even have a dr too

abigail48

also the landlords here look out for me

Beatmon

Abigail, I so respect your decisions even though they are not ones I've chosen for myself. Anytime you feel up to it, please tell us more about your art. I wish you could post some pictures.

Please remember my offer to round up supplies that I can send you. I have many friends left practicing nursing etc., even though I am retired. We have sources we could probably send things so you didn't have that worry and then maybe have some more pleasant time for your art. Please message me.

voraciousreader

abigail....I feel relieved knowing you have a close circle of family....friends....and fans!💏

That said....please give it a thought to asking one of them to help you get relief from spending so much time and energy caring for yourself. Please treat yourself the kindness and generosity of others.

On a side note....on Saturday...I visited the Guggenheim and saw an exhibit on the works of Agnes Martin. The line of people trying to get into the museum was insane! Luckily friends and I got there early and were able to get in the museum rather quickly! Anyway....it was amazing to see such beautiful art made by a passionate artist who spent much of her life with mental illness. Like you she was quite independent but thankfully had enough people in her life to make sure she could continue living independently so it afforded her the opportunity to continue making art. What was so remarkable was her mind set not to let anyone feel sorry for her! She succeeded in death what she wanted from life and that was to be remembered for creating art that was as appealing to herself and that which could ultimately be shared by the masses.

Get as much help as you can and get that artwork of yours into the hands of those who can get your artwork preserved.

👩❤💋👨

rameshd33

Not yet, however I am open to simple mastectomy without taking out any lymph nodes. However I am not for any sort of chemo. I believe that open sores are annoying, but by themselves will never kill, especially in a highly localised non metastatic tumour. If I find a surgeon willing to perform a simple mastectomy, I might go for it. Management later on by nutrition, rest and positive thinking. I believe that will help me.

The bottom line is , if you strongly believe in something, then it will work for you. I know people who strongly believed that no treatment is best for them and they are living long, albeit with some discomfort, like Abigail. There are some who went conventional, suffered discomfort during the treatment, however are still arround because they believed the doctors. The human mind and body have a wonderful ability to heal, however some discomfort will always be there, the choice of which one is entirely yours. Abigail has chosen the no treatment wound way and she is at oeace with her decisions, I respect that without any judgement. Good thing is that she appears to have a very indolent and non lethal cancer. There are others who chose chemo and radiation, I respect that too.

Nowadays doctors have started debating the value of aggressive treatment for localised non metastatic superficially palpable tumours, which do not affect a vital organ. As opposed to that aggressive treatment may be the only option for tumours that can cause blockage of vital organs, such as colon, easophagus, bile duct etc.

A

rameshd33

Hi Wren, after convincing ourselves that mine is a Secretory Carcinoma, which will be non responsive to chemo and radiation, one of the doctors I have seen is happy to perform a simple mastectomy, I am working full time and cannot manage the open wound. I am not afraid of it or anything, just the annoyance of it. Apart from the oozing and occasional bleeding, I am otherwise in good health and have a healthy appetite. I do eat organic mostly, but I also include Turmeric , coconut oil, yoghurts, goats milk in my diet. I ensure that I get enough iodine, selenium, magnesium and boron through the foods I eat. I am of Indian heritage, so I am trying to align my diet closely to what my ancestors ate. Many of them lived healthy active lives well into their 90s. If that diet worked for them, chances are it will work for me.

The bottom line as I understand it is, that if you follow a treatment plan that you wholeheartedly belive in it will work for you. There will be some pain and frustration throughout the healing process. There are people who choose not to treat themselves using conventional methods and have suffered the malignant wounds for some time. Others who belived in the conventional, suffered through chemo or radiation . But the true believers often outlived their prognosis.

I respect Abigails choices, she is almost 80 and has endured the tumour longer than most, just because she strongly believes in her choices. She does suffer as she says, but had she chosen conventional she might have suffered earlier and then got better in her older days. As I said above, because I am much younger and work full time, open wound is not an option for me. I may choose simple masectomy with no chemo etc

wrenn

Ramesh33, That sounds like a good plan. I too would not be able to tolerate all that Abigail has but she has handled it well. Her main dilemma (I think) is that she bleeds easily and worries that she would not survive surgery. She is great at researching what works for her too. A very intelligent woman. I did think it would be better for her to just have it removed so she was free to pursue other things but then I am turning 70 and spend my time playing Angry Birds and cursing at the news so her life is actually more interesting than mine.

I didn't have chemo and so I avoided side effects that many suffer and although mine (aggressive metaplastic triple neg) often comes back within 3 years I am past that timeline and doing well.

Wanted to mention that recovery from simple mastectomy is relatively easy. I had complications because I had an inept surgeon but I basically was only using regular Tylenol the day after surgery and really didn't have pain. It was mostly discomfort from drains misplaced but surprisingly a fairly simpel surgery. I hope yours is non eventful (physically). The psychological side of this disease is what causes stress for many of us.

Keep coming back to tell how you are doing. All the best.