how to treat an ulcerated (breast) tumor

abigail48

have to get diagnosed first I bet, and I don't do phone calls unless the furnace gives out here in winter. as for the hospital bet they'd be after me to cur my hair. been a long time since it's been three weeks since I washed it. have not cut it

you'll remember since 1967. today I washed the comb and brush and wet combed and brushed it. works well.

wrenn

Abigail, I think you would be trading a short time of discomfort and mistrust for many years of a good quality of life where you weren't consumed with this stuff. It doesn't matter what the diagnosis is.

You need help to have a decent quality of life (in case you live another 20 years) and for that to happen you need to put aside your fears and just go for it. It might be a few hours of worry about what they are thinking or doing but then you would feel comfort and relief I bet.

Your choices are to spend the rest of your life as you have the last couple or fix it. If you are thinking you will just wait it out until you die it could be a pretty miserable death.

I hope you decide to go for a good life.

Artista928

80 nowadays is not considered end of life. In the surgeon's office I used to work for we'd do knee and hip replacements on people in their 90s if they were healthy. I don't know where you live but I can't think of one medical place where they would care about hair. I've gone in plenty of times unwashed/unkempt during this cancer journey. Their job is to help you. Whatever fears you have and experience in the past you need to put it aside. This is serious. Unfortunately for majority of us death isn't in our sleep or instant but long drawn out. 80 is not old, only if you think it is. Call for medical help.

Beatmon

Is there anyone on the boards that lives close enough that could help with some transportation? If so, I'm certain someone would volunteer. What kind of dressings do you use or need? I have a nurse friend at a helping hands clinic that might be able to round some up

ChiSandy

Abigail, toilet tissue? Paper toweling? Good grief--I’d be shocked if you didn’t have an infection from doing non-sterile wound care. Nobody in the ER would care about your hair--but they sure would about the festering & bleeding. Let them clip the bleeder off and send you home with sterile dressings, so you can enjoy the rest of your years.

abigail48

no toilet tissue havn't used any for years. kleenex brand tissue clipping it off have no idea what that means, doesn't sound possibl.e I have sterile dressings but too hard to keep in stock, i use paper towel dressings but protect my clothes with fold over sandwich bags above and below the toweling. years ago someone here had a relative with such a tumor and she said they bleed

abigail48

the lymph what you call festering I guess is what the body used to clean and heal

ChiSandy

Abigail, Kleenex isn’t sterile either. Don’t protect your clothes--protect yourself. Paper towels and sandwich bags are keeping your wound fulminating, and it won’t heal that way! “Clipping off” a bleeder is to put a tiny clamp on the bleeding blood vessel so it will stop bleeding.

abigail48

there's not just one blood vessel now at going on 7years. but many covering the w hole thing it would take me minutes to tear open and make a dressing with sterile pads and by then the bleeding would make me very weak and the clean up hrs. , and there's no way I cold stop a hemmhorage with anything e lse, it's immediate and fast and copius and it would take a second to soak that dressing. the cyst was 10 cm and has grown some in these years by the time a surgeon clipped the main blood vessel he's be covered in blood

wrenn

So, are you thinking by getting help things would be worse? Are you thinking you can stay alive longer by treating it yourself? I am trying to understand exactly what stops you. Have you just decided that this is what your life is going to be from now on?

I think if we had more clarity on what your thinking is we might just listen and not offer solutions. We've been going in circles here for years now and people here obviously care for you and don't want to see you suffer. But it has to be frustrating for you to hear us offer suggestions if you have made up your mind that this is the way it is going to be.

abigail48

it's been my experience that I would suffer worse with conventional help, it's my experience that people die in their early eighties usually by the way after a bleed I usually feel better and the beast is less inflamed and is quiet, makes me wonder about the old remedy of bleeding perhaps a good idea after all if the surgeon knew what he was doing and didn't go to extremes as happened with that romantic poet what I'm thinking: I'd like to go out as naturally as possible if possible

wrenn

Thank you for that Abigail. It makes sense. I am turning 70 and won't intervene with anything that comes up other than for comfort.

If you check youtube there is a bit by Sherwin Nuland called 'How We Die' and he talks about how the medical system intervenes too often.

BrooksideVT

Yes, the surgeon who clips your bleeder might well be covered with blood, but:

A. He's used to it.

B. From then on, you will not be covered with blood. Yippee!

C. You can refuse any other treatment.

Artista928

No disrespect Wrenn, but it doesn't sound like Abigail is comfortable. As stated above, she can refuse treatment. Even folks on hospice are given enough care for comfort. You would really just keep doing what she's doing and not get the bleeding under control?

wrenn

I don't understand your post Artista. My take is that I don't want Abigail to suffer but I respect her for makingchoices that work for her.

NancyHB

Abigail has been posting for years (hi Abigail!) about her journey and experience, but has never really asked for any help. She shares her story as well as her different alternative treatment remedies. From reading her posts I can see that she's getting worse, not better, and it breaks my heart to see anyone suffering with pain, bleeding, and weakness.

Abigail is making the choices that are best for her, regardless of what any of us might think or belieive. I, personally, would love to swoop in help care for her: get her to a doctor, get her sterile dressings, stop the bleeding, help with palliative care, anything that would alleviate the stress on her body and give her more days, weeks, months, even years of peace and pain-free living in her art studio. In my mind, this is what she needs. But it's not about me, and this isn't what she's asking for, so I have to remind myself that those are my desires, not her.

Abigail, as always we continue to support and encourage you to seek outside medical assistance. We can't always undertand why you don't, but we haven't had the same life experiences you have. In the end, I wish you peace with whatever choices you make.

Beatmon

Abigail, have you considered Kotex to help stop/mop the blood flow. They make excellent emergency dressings. Not perfectly sterile but absorb more than paper towels

abigail48

very interesting idea had not thought of. I may even still have some in the trash room. very unsterile at this point no doubt, but my helper wouldn't have trouble getting some new ones.................regarding clipping, clip the new big one, clip the ole big one, clip the more tiny ones yipee it'll just make a new one probably bigger and I expect like root canals the tiny ones get microscopic at some point and impossible to clip..............regarding no infection for this going on seven years, and that alternative stuff won't help, thinking about that post, and the posts here are so much help, bet the essential oils curtail any hint of infection. seven years ago the sterile dressing and the silver gell stoped the outgassing immediately and so far forever, which reminds me no towntrips no colloilal silver, and just got a new aerosol of it, will remember to use it once or twice a week, makes a dressing last much longer..............but still afraid to take...off this last one. perhaps this morning

abigail48

and hill, if i checked myself into the hospital I'd not get impact exercise on my bad knee as I get here going up and down stairs to the bathroom. and my hip would no doubt break without that impact exercise

BrooksideVT

Abigail, if you were in the hospital, you could walk up and down their halls and their nice, wide stairs. Today, they are all about patient rights--you're not stuck in the bed unless it's you who doesn't want to get up. You could also have physical therapy for your knee or for general strengthening. In our local hospital, patients have PT twice/day.

If you have specific diet requirements, they will honor that too. I always like that they bring you food and then take the dirty dishes away (mostly that they take the dirty dishes away).

Also regarding patient rights--you could meet with a doc and discuss the best way to stop those bleeds. You could then take your time to decide whether to go ahead with whatever treatment plan they suggest. You would have control. You would also do them a favor. I am sure they'd be amazed that you have had this trouble for all these years and always kept infection at bay with natural means.

I agree that it might be a good idea to keep kotex handy in case of a bleed.

abigail48

took it off. mess on the dressing big mess under it, no bleed. lots of mushroom stuff. said before the mushroom stuff prevents bleeding. a blue place very small mold? or the mushroom stuff trying to fruit. have any of the scientists who track these things tried to find out what kind of mycelium the mushroom stuff makes. and can they even tell what kind without a fruiting body? ...........dressing towntrip type, sterile pads, lots of essential oils, and wonder if no bleeding yet anyway is probably also the cypress oil, and I do hate to use it but whatever works.....wouldn't it be funny, both kinds of funny if the mushroom mycelium was psilocybin type, though there are other mushrooms have blue fruiting

flaviarose

I am not a medical professional, and have no idea whether this product would be helpful in your situation - they have a powder that stops bleeding. You can get this stuff at cvs and Walgreens. Not sure if it is the same stuff they use in the military. http://woundseal.com/wp/how-it-works

abigail48

thanks flaviarose. there's a video, it's better with wounds two inches or less. I got some but havn't used it, good to have on hand though for first aid

abigail48

i've not had a heavy bleed for a long time, but I'm not debriding the beast, doi

ng castor oil packs, bathing all would trigger hemmhorage and I can't deal with the weakness that would ensue, all this means I'm not fit for towntrips though so currently pretty much house bound

Lisey

abigail, glad you checked in. Is someone coming to your house to bring you good and supplies?

abigail48

yes I've had helpers for going on 16 years now, same ones since before the biker died, had to do something when he went off with his latina love with the car. any way I don't drive. but this couple have been life-saving for all these years

abigail48

the days are okay, the nights terrible, burning a whole lot though very little bleeding. the node under my rt arm has grown remarkably and the beast has grown too, an inch in most directions and a whole semi-circle above seems it's more inside than out. but days I can sleep. so nights I'm mostly here speaking to friends and others o nline. viva the internet. in the end of may I'll be 80 years old. 52 years with this trouble when I was still foolish enough to believe the conventional medial hype. that everyone mainly did then is not a good excuse: trust your physician unquestionally was the agreement

abigail48

and post script. gary gleaned something I've found valuable when he said hillary had parkinsons. he fournd her crossing her fingers. my head has shaked for years, not especially badly but annoying nevertheless. if you c ross y our f ingers, forfinger under middle finger the shaking will stop in

a few seconds

BrooksideVT

Abigail, do you think you may have developed an infection? It really might be time to let a doctor take a look at it. You don't need to let him/her touch, and under current law, you are free to refuse any treatment, but often a different point of view can be very helpful--that's the reason doctors don't treat themselves, at least not for out-of-the-ordinary issues.

A couple of areas where traditional medicine has resources not otherwise available are those prescription meds for pain management and infection control. How do you feel about allowing a little traditional assistance in that area?

abigail48

the good part is the dr has cashed the check I sent him so I guess I have one as long as he stays well and not retired. I don't know his age. am I interested in letting anyone see this beast not at all so far, nor interested in spending any time in a waiting room waiting. good sleep last night after none the night before. yay tart cherry juice!!