how to treat an ulcerated (breast) tumor

abigail48

I got through this last lunar month without any major bleeding events. it bleeds most times when I change the dressings, several times a day, but not much and is easily contained/stopped. g rowning, yes. a good t rade-off? has grown probably a cm and a half in all 4 directions in the nearly 6 years. but it takes me a lunar monthto recover from a major bleeding and during that month I'm quite weak and can't do what I need to do: have to get the clerk I know well or a younger one or my helper to do the grocery work at the check out counter, now have recovered from the really bad one last month and don't need to do that.

abigail48

that can't be right: I'm not that big a woman. it's impossible to measurethough becauseit's nowhere even. I think some directions may have shrunk. the sentinal? lymph node though has definitely grown and is making inflamation there.

abigail48

this dressing has been on now for over a week. I'm afraid to take it off, even taking off a bit that falls off due to lymph sometimes generates a bit of bleeding, and I 'm pretty positive if I try and t ake off any that doesn't fall off by itself it w iill generate another hemhorrage and I can't afford any more bleeding. the last warm saline solution didn't work and it's this stuff I used to stop that bleeding, not really terribly bad, that's still on here.

. any advise??I;ve not done the castor oil pack this week first time in going on 7 years, and I'm not bathing or doing a town trip this week either.

cp418

I'm guessing you never managed to get a visiting nurse to check in on you. This medical professional could really help you with wound care. I found this product with a GOOGLE search but do not know if it is safe to use for you. Have you ever seen this type of wound seal powder when you purchased your medical supplies?

http://www.cvs.com/shop/health-medicine/first-aid/...

Maybe some others can offer you more advice. I'm wishing you the best to avoid getting an infection on top of this complication.......

abigail48

have finally contacted the dr, he should have gotten my letter th I guess. for the wound care product I can't seem to make the site work but there is a cvs here if could get there

abigail48

not sure I could use it fast enough anyway, in a few recent bleeds have to slam on a handful ofpaper t oweling or tissue sometimes after a searoff with very hot water and get covered in blood anyway

abigail48

not sure I could use it fast enough anyway, in a few recent bleeds have to slam on a handful ofpaper t oweling or tissue sometimes after a searoff with very hot water and get covered in blood anyway

Bounce

Dear Abigail

I know there are a lot of people here who would like to help you - I just don't know how to.

Please make telephone contact with someone you know and make them aware of how you are doing.

Don't rely on the doctor getting your letter. Please call.

Sending you warm wishes and please keep us updated.

cp418

Yes - you must call the doctor office because a letter may easily get misplaced. The Office staff would not expect to be contacted by a patient via mail - where as phone call gets immediate response. Please have someone call for you if you are unable.

abigail48

I've always found that a phone call is too fast a way. wehave only one dr so will see what happens. I was given hia name by a patient of his. phone calls like pills a slippery slope

abigail48

I've always found that a phone call is too fast a way. wehave only one dr so will see what happens. I was given hia name by a patient of his. phone calls like pills a slippery slope

abigail48

well I was right. back to the future. it had been 10 days so I tried to take off that old dressing and sure enough a pretty big bleed, not as big as the one before l ast but bigger than the last one 10 days ago. so dizzy and weak again. was afraid to try and use the wound heal, I do have a fou r p ack now but it says in the utube video for a two inch wound, that's not nearly good enough for this one. as for a public nurse I could find no contact number, I guess the nearest would be an hr away then try to find the cottage here, wouldn't work well

cp418

Is there someone who can contact the visiting nurse for you? You had previously mentioned someone brought you sandwich/food. It sounds like you need special dressing for your wound and some assistance to change it. It has gotten too complicated for you to handle alone so why not allow someone to help you?

abigail48

this for stephanie particularly. just read your recent post. so you never can tell!! change of weather? leaving it the alone? the cypress oil? the folded tissue with breast balm from moon maid botanicals someone here suggested years ago, I spread the salve on the tissue, (and did it again now along with the cypress oil on a bit of toweling in the sandwich bag, then folded over toweling then more sandwich bag then a square of toweling, but the whole thing came loose an hr or so ago, it was hard and dry and no bleeding. there's still a bit of WHITE toweling on the beast, but all or almost all the rest from 10 days ago and two? days ago is gone. I'm not fooling with it, no washing no bathing no de briding, leaving it alone. with any luck, perhaps, I can at some point do a co pack do a hair wash, do A TOWN TRIP get back to work at the studio. pre mature but wanted to posted some good news for a change. I put the folded tissue with the salve under the beast where it usually begins not always the hemhorrhaging, then the dressing with the new toweling paper baggies etc then a shirt

wrenn

It is great to hear you feel so encouraged Abigail and ready to get back into the studio. It sounds like you have energy too so maybe you haven't lost enough blood to make your hemoglobin too low. You are determined and that is very impressive. Keep us updated on how you are doing. Hoping things keep going well. Take care.

abigail48

spoke too soon wrenn, woke up blood all over. just finished cleaning up though not the soaking clothes and sheet. could have been worse though worse than 2 days ago? not nealy as bad as 10 days ago. I think I have to learn to sleep on my back and not on my rt side

BrooksideVT

Abigail, could the friend who gave you the doctor's name maybe set up an appointment for you? It does seem a visit might be in order, and, as someone mentioned, his office is probably not set up to respond particularly effectively by mail.

I hate to see you start to worry about blood loss and the medical community now knows so much new stuff about wound care.

wrenn

It is a bit frustrating for me to see you spend so much energy on this when it could be solved quickly and get you back to your creative pursuits but I understand that you feel more comfortable handling this on your own and this does seem to have become a life project for you. Ideally though I want it fixed and for you to spend time reading, writing, creating and relaxing. Take care of yourself Abigail.

Your biggest fear in doing anything mainstream, if I remember, is that procedures would cause major bleeding but that is happening anyway so at least with intervention it would resolve once and for all. But again. Just the way I would do it and I respect you for doing what you do. :-)

abigail48

I suspect it was inoperable long before I discovered it, I discovered it 47 years after the cysts appeared, I'd think it was then pretty much everywhere. yes a surgery if possible would cause bleeding but probably a bleed on the table, been prone to bleeding all my life, not a suitable candidate for conventional treatments.

Momine

Abigail, nobody is suggesting surgery. But a professional nurse or doctor could perhaps come up with something for the wound care that reduce the bleeding and bother.

abigail48

and weakening and dizziness. suggested hear woundheal but I think it's not appropriate for this particular trouble, bit this nurse wouid.....need to join me in the bathtub, the bleeding comes on so strong and so fast I have to clap a handful of tissue or paper towel on very fast. took the batch off once this time, it was hemmhorraging every where, clapped another batch and its still on. waiting like last time for it to come off on it's own. I am managing to sleep on my back, gary says it's the way to sleep, not curled u p with my hand holding the beast which I like and makes it star t..............got to start dealing with the clothes and sheet saking i n twp plast ic pails of cold water, dr bronner's peppermint liquid soap and h203. I finally after 50 years got a washing machine at the new studio but it's never worked. ......Hi Momine

abigail48

I can find no contact number for a visiting public or even provatr nuurse in this county. there is a nurse about a nalf hr away but she doesn;'t visit you have to go to her. I have part f not sure if that includes home visits, cant find the lit here. I think all my ins is for hosbital pays

cp418

Maybe the Doctor's office could make the contact for you for a visiting nurse. They would know the contacts to assist you in arranging a visit. I agree the woundheal product is not appropriate for your condition. It is your choice but it seems like a good idea to reach out and allow someone to assist you in making these contacts. I hope someone is checking in on you and bringing groceries. We respect and value your privacy but are concerned for your comfort too.

BrooksideVT

Abigail, one of things a doctor can do is identify that bleeder and seal it off. Wouldn't you be happier if just that one little task were taken care of?

Maybe you could pm someone here with the name of your town or county and that person can (hopefully) locate the nurse for you? Sometimes another set of eyes or hands taking just a slightly different approach can figure out the solution.

In my area, the agency on aging has a telephone helpline with every resource under the sky. They also can assign a social worker who will be your advocate and make sure that the nurse visits.

druout

Dear Erin

I think it's time you simply take care of this by calling 911 and get yourself to the nearby hospital. That way they can start getting your bleeding perhaps permanently under control. And perhaps the local doctor can see you there. I'm not sure a doctors office can handle this when the bleeding starts. You need to be proactive at this point.

Love,

Hillary

abigail48

oh please h ill. a stay in the hospital would just make me weaker and I can't afford that until I have to if then. contacting the dr is just to make contact which I havn't until now in case I need o ne in the h ospital if I do get there at some point; not able to take off the latest dressing yet, means probably n o towntrip this next week too. appreciate y ou're keeping track though

Artista928

Abigail, I've worked for a surgeon's office for 10 years. If you came into our office, I would send you straight to the ER. You very well may now have other issues going on that you just don't know, such as infection. The ER will run labs to check for things that a doctor's office or visiting nurse won't be able to do. You should get this taken care of now. This has been going on too long and changing bandages and using alternative stuff isn't going to help you here. Call whatever the medical emergency number is in your country and make the trip to the hospital. You are playing with your life.

abigail48

my life is nearly over whatever I do I'll be 80 in may. plenty long and a good life as well. like to keep it good which I probably couldn't with any conventional treatment. if y ou've read my posts, the first month was deleted by the power that runs this site, you'll remember that I;ve never never had a good result with conventional medicine. it was conventional medicine got me here with the first tier of birth control pills which never mentioned cancer as an effect. they probably didn't know then, 1964, so they should have kept their opinions to themselves until they did, and now they do know and are still prescribing the estrogens to young, and old women

druout

Well, it just might make you stronger! However... We do care. Take care of yourself!

Love,

Hillary

voraciousreader

abigail...I think you might qualify for palliative care....pm me with your phone number so we can connect....btw....you sound like a young 80!