Looking for Medullary Breast Cancer patients

silvergirl2013

I was diagnosed in 2008 with Medullary Carcinoma(3cm triple neg tumor), underwent lumpectomy, chemo(taxotere & cytoxan) then radiation. I was recently diagnosed with a "recurrence" of the same type, only it's in my lymph nodes this time and not in the breast. I started chemo 6 weeks ago, and will have a bilateral mastectomy with recon/ and removal of all lymph nodes(rgt side) following 6 months of treatments.

I am looking for anyone with Medullary as My Dr and others I've inquired with have not had any patients with re currant medullary.

Thank you

Moderators

Hi Silvergirl2013 and welcome to Breastcancer.org!

You may want to post your question in the Less Common Types of Breast Cancer forum to better reach others who have a similar diagnosis. There's even a thread about Medullary Carcinoma there that you can join, or start your own!

We hope this helps!

-- The Mods

MsBliss

I'm going to go to the other thread but I thought I'd mention I had medullary features, atypical, it's called.  The definition of "true" medullary is very ridgid and must include certain features, although I think the definition has changed following the results of a Danish study.